biliary atresia...?

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I've had biliary atresia since I was born. I'm 13 now and have never has any problems. I'm my GI doctor's only patient who hasen't had anything go wrong. What is the chance that I will have problems in the future? Please answer if you know about biliary atresia, have it, or have children or family members with it.
Hi Beki,
My son Nick has biliary atresia and he is doing great just like you. He is 13 years old too and in 7th grade. I think some patients can do very well for a long time without many problems. Maybe you will never have any problems at all. But I've read that up to 80% of patients with biliary atresia will sooner or later need a transplant (most of the time before 5 years old). There's a great online support group called Liver Families. There are lots of teens and 20s with biliary atresia who post messages and support each other. Here's a link: www.liverfamilies.net/forum  (+ info)

Do anyone know if you can have childern if you have Biliary Atresia?

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I have had it since I was born. I don't know anyone who also has it. I have tried looking at some web sites but they don't say anything about having childern for people who are older now. I am a woman so i am wondering if I could carry a child and be safe and healthy at the same time. Its a liver disease and i am wondering if anyone knows anything about the subject.
its a condition where the bile ducts are not develloped i think.
i dont see why it should prevent you from having children.
of course the pregnancy might require more care than usual , but otherwise i dont think there is any relation between pregnancy and this condition,as long as your liver functions are ok.  (+ info)

why my 9mos. old baby has to face death? what is the cause of having a biliary atresia?

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my 9mos old baby girl is facing death because of biliary atresia. she wont live after 2yrs old. how and why is it a baby so innocent happen to be in this condition? she needs a 3million pesos liver transplant to live! help us pls. janet antiola 09216390975
There is HOPE! Im SO glad I found this question!
My daughter was diagnosed with Biliary Atresia at the YOUNG age of 10 weeks! She was jaundiced from birth and there was a blood test done to find out she had really bad liver functions, and then after some tests at the children's hospital, it was determined she had biliary atresia.
I dont know where you live, but they should do something called a "KASAI" procedure. http://www.chp.edu/CHP/Kasai+Procedure . they will hook up the liver directly to the small intestine because your baby's biliary tree (comes from liver to intestine) is probably completely damaged. Some children the Kasai works for years, and some it doesnt. Most do end up with a liver transplant.
My daughters Kasai didnt work very long, and after a month it was determined that she needed a liver transplant. She got listed in Chicago, at Childrens Memorial hospital and after a few months of waiting she was transplanted! My mother in law, GRANDMA, donated! We did living donor! There are SO many options here in the U.S. and so many GREAT childrens transplant centers! Pittsburgh, Philadelphia, Chicago, Cincinnatti, Atlanta are just a few of the great ones!

Biliary Atresia is an awful disease, and while she has it it will be a long hard road. There could be many hospital stays and what not. But once you get past it, it does get somewhat easier. The Life after transplant is much easier then the life before it!

My daughter is now 8 months post transplant and she is doing great! Her new liver is working well for her. But she is on a lot of medications daily and will always be on one the rest of her life we are told...if you want to have some inspiration go to www.cota.org. There are PATIENT CAMPAIGNS you can look at. It is peoples storys and what they have been through!
Also COTA is a fundraising organization! That is how you can get help financially through all of this :) Look into it!

GOODLUCK AND GOD BLESS!  (+ info)

my baby has a biliary atresia & she needs a liver transplant to live.where could we get help?it cost 3 M Pesos

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Im janet teacher in phil and a mother of janries 8mos old. She has a biliary atresia and she needs a liver transplant to be able to live. eith our kind of work we cannot provide the needed money for her to be save from death. we are pleading for your help. please help us...janet & aries +639216390975
In New Zealand this is free. I am sad to hear that you need this sort of money to get help for your child. I hope someone will fund this for you.
Best of luck....  (+ info)

What is the liver disorder, biliary atresia?

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This is a condition that occurs at birth. The bile
ducts are either blocked or totally absent.
The sites I list below, that you can click on, state
that it can happen because the bile gets trapped
inside the liver and can cause damage or scarring
of the liver cells, known as Cirrhosis or the bile ducts
may be damaged by the body's immune system in
response to a viral infection acquired at birth.
http://www.cincinnatichildrens.org/svc/alpha/l/liver/diseases/biliary.htm
http://en.wikipedia.org/wiki/Biliary_atresia

I hope this information is of some help to you.
Best wishes  (+ info)

Is there a syndromee with biliary atresia and fibrosarcoma?

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They appear to be separate syndromes. Hope this helps

Biliary atresia is a rare condition in newborn infants in which the common bile duct between the liver and the small intestine is blocked or absent. If unrecognised, the condition leads to liver failure but not (as one might think) to kernicterus. It has no known cause, and the only effective treatment is by surgery or liver transplantation.


[edit]
Symptoms and diagnosis
Initially, the symptoms are indistinguishable from neonatal jaundice, a common phenomenon. Symptoms are usually evident between two and six weeks after birth. Besides jaundice, other symptoms include pale stools, dark urine, swollen abdomen and large hardened liver. Prolonged jaundice that is resistant to phototherapy and/or exchange transfusions should prompt a search for secondary causes. By this time, liver enzymes are generally measured, and these tend to be grossly deranged, hyperbilirubinaemia is conjugated and therefore does not lead to kernicterus. Ultrasound investigation or other forms of imaging can confirm the diagnosis. Further testing include radioactive scans of the liver and a liver biopsy.

Biliary atresia is a very rare disorder. About one in 15,000 to 20,000 babies in the U.S are affected every year. Biliary atresia seems to affect girls slightly more than boys. Within the same family, it is common for only one child in a pair of twins or only one child within the same family to have it. Asians and African-Americans are affected more frequently than Caucasians. There does not appear to be any link to medications taken during pregnancy.

[edit]
Pathophysiology
There is no known cause of biliary atresia.

As the biliary tract cannot transport bile to the intestine, bile is retained in the liver (known as stasis) and results in cirrhosis of the liver.  (+ info)

why newborn have biliary atresia can develop spider angioma?

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I have a son with biliary atresia and from what I understand they are not 100% sure why some people with liver disease get spider angioma. Lots of normal healthy children get them too. I've read that up to 15% of normal children have sider angiomas. It's very common. Pregnant women get them too so some people think that spider angioma might happen when there is too much estrogen. When the liver is sick it cannot fully detoxify circulating estrogen. Some people with liver disease get multiple spider angiomas. My son had spider angioma when he was little but he is 13 now and does not have them anymore. If you visit www.liverfamilies.net you'll meet lots of parents of children with biliary atresia and discussion of spider angioma.  (+ info)

in every newborn with biliary atresia how long they will live?

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That depends on the quality of medical care they receive. If you have good insurance and a good doctor then the child will live longer. Liver transplants can lead to a normal life for the child once the artresia has settled in. Most will die if no transplant is available.

I hope you arent talking about your own child -- and if so I will hope that everything goes well for you and the child.  (+ info)

my child[almost 5 months] has biliary atresia and it is now late for kasai. what do we do?

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can a child live till old age with liver transplant?
Go to www.liverfamilies.net for families of children with liver disease. You will find a huge amount of support there, and others who understand, and have some answers to your questions.
My son had Biliary Atresia, failed Kasai. Liver transplant at 7 months old. He's now 5 years old and doing wonderfully. SO normal. It is possible. With out Kasai or transplant, it is not. I wish you the very best. Angus' Mum.  (+ info)

Biliary Atresia disease?

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My kid has Biliary Atresia and went to surgery 4 days ago. Did anyone knows how we can tell the operation is success? I don't know what is the expectation, and the doctor did not explain much to us. We are very nervous now.
Hi, my daughter is two years old and has biliary atresia. Her Kasai operation was successful. We were told the most important things were clearing jaundice (this took two months) and gaining weight.

If you like you can email me at [email protected] or you might be interested in www.liverfamilies.net which is a lively online support group for families affected by childhood liver disease.  (+ info)

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