FAQ • Carcinoma, Papillary, Follicular

FAQ - Carcinoma, Papillary, Follicular
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papillary carcinoma cleared but have breathlessness . read optional for detail?

16 years girl chest pain 3 years.breathlessness one year .april 2007 diagnosis papillary carcinoma of thyroid nith lung metastasis .may 2007 total thyroidectomy.june2007 i-131 largerdose.dec2007 ct chest plain lung mets regressed completely.medicines ELTROXIN 250mcg,calcium tablets,INDRAL 20 mg.breathlessness continues (even after rest)and chest pain.continues bedriddensince june 2007.pulse rate high root cause for my breathlessness and the treatment?ECG,ECHOHEMOGLOBIN NORMAL.PFT,DLCO NEAR NORMAL.PLEASE NOTE THAT THERE WAS NO breathleness for 2 days when I-131 was givenon 08.06.2007

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Here is a new article that came out yesterday on cancer related breathlessness.

http://www.medscape.com/viewarticle/569064

the missing portion of the truncated URL is /569064

Unfortunately the URLs may or may not be currently working on YA. Supposedly this will be fixed by next Tuesday but until then if they are not working you will either have to retype the URL or cut and paste the URL into your browser to be able to read the article. Some of the article concerns people who are dying. I know you are not dying but the article still has some good ideas about treating breathlessness.

I've also been bothered by breathlessness and it sucks - so good luck with your search for a cure for yours. (+ info)

had papillary carcinoma thyroid went surg, iodine131 for lung metasic,cured.still pulse rate high (breathless)

i had papillary carcinoma thyroid (age 16) and lungsmetasis (3mm)went surgery with iodine 131(may 2007) in CT scan lungs metasis REGRESSED still i suffer from high pulse rate and breathing problem.tablets taken elthorxin 250 mg, inderial 20 mg.echo normal,ecg normal,(dlco,pft normal) .can any one give me the cause(ANSWER) for BREATHE-LESS-NESS and high pulse rate(after taking inderal 20mg pulse rate is 120) for which i am suffering still.

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Pulse rate can be high because you are short of breath which can at times put you in a panic/anxiety state. With panic or anxiety heart rate tends to increase. I see you are taking meds for thyroid hormone replacement and heart rate control but nothing for shortness of breath. Have you asked your doc to prescribe something for the shortness of breath (example: mini neb treatments not albuterol though because it can cause increase in heart rate, maybe xopenex mini neb or inhalers if not contraindicated.) Hope this helps. Take care. (+ info)

Does anyone know what it's like to die of stage 4 papillary carcinoma thyroid cancer? (matastisized to lungs)?

Most ppl who die of cancer do a lot of suffering, mental and physical. Aggressive, knowledgeable pain control can be very effective.

Toward the end tho, most have come to terms with their situation, and don't fear death. In fact, many long for the relief it offers. They usually slip into a coma and die soon afterwords, very peacefully by outward appearance.

The support of family and friends is very important to ease the person's anxiety. (+ info)

Papillary carcinoma cleared but have breathlessness . read optional for detail?

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Persistent breathlessness can be caused by recurrance of the pulmonary metastases. If the recent repeat CT is clear check with your physician about the Inderal. It could be the cause of the shortness of breath. What is the purpose of the inderal if you are no longer hyperthyroid? (+ info)

Thyroid: Suspicious for Papillary Carcinoma?

One of my friends has a lump on her thyroid that you can see. She had a biopsy 3 years ago and it came back suspicious for papilary carcinoma. The doctors told her that her only option was to remove her WHOLE thyroid - (the tumor is only on her right side) then they would know 100% certain if it was cancer or not. But then that means she would have to take synthroid for the rest of her life and she can't live with that. She also can't live with a scar. She says she'd rather die than have her entire thyroid removed. It's been 3 years, she seems fine, but her hair is getting thinner and thinner, and she's gained about 30 pounds. She says the only way she'd CONSIDER surgery is if they'd only remove the part of her thyroid that has the tumor - but Dr's REFUSE to only remove 1/2. They told her it's all or nothing. So she chose nothing. Does anyone have any suggestions? Even homeopathic answers are appreciated.
PS - She's not overly motivated to take care of this, which bother me and all her friends. She has no fear of death, and actually keeps saying that she's run out of things to do and hopes she doesn't live to be 40-45! Yes, yes, she's in therapy and on anti-depressants. She's not suicidal - she's just "indifferent" about dying. The only way to motivate her healthwise is if her COMFORT is threatened. Meaning: she'll only go to the doctor for something if she's in pain or something is causing her discomfort. She say's the thyoid isn't causing pain or discomfort - so "why should I put myself in pain and discomfort of surgery to remove something that's not bothering me?". Plus - she's VERY irresponsible - remembering to take a pill everyday for the rest of her life - she can't do - it's "too much commitment". She can't even remember to take birth control pills and she's got more motivation to take those than synthroid. (She hates kids and her period - which the pill cures)

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I had a swollen nodule in my L Thyroid, that was painless. So I did nothing for 5 years. I was gaining weight even though I was taking Levoxyl every day. My Dr. finally asked me to have an ultrasound w/ biopsy. Turned out to be CA. I only let them remove that side. Needless to say, lab results of that side said the CA had metastasized and I had to get the other side removed within 4 wks of my 1st surgery.Both surgeries were uneventful and my scar is invisable to the eye(got cut open twice too!) I also took radiation so to be certain all was gone. I'm on med's forever. All this happened Nov. 2006-May2007. I've lost 15lbs and never felt or looked better.
Loving and Living Life (+ info)

my father was diagonised with grade 2 transitional cell papillary cell carcinoma of the bladder.?

the tumour size was big 10cm. since he is 67 years old and has heart problems was adviced radiation therapy. after 21 radiations the tumour size waas considrably reduuced and what was remaining was removed by cystoscopy. the parts removed by cystoscopy showed positive in biopsy. what does this mean , can anybody please tell me what to expect now, whether he is still in the clutches of cancer or not?

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Everyone has 70-80,000 cancer cells in our body every single day. If the immune system is compromised because of poor diet, stress from toxins in the environment etc... It can lead to allowing cancer to proliferate unchecked.

Just because cancer is undetectable after removing a tumor or the horse is in the barn due to shrinkage, it does not mean that little individual cells are no longer looking for a new home to grow a tumor in i.e., the brain, liver, or bone.

Learn cancer prevention. Learn about antioxidants. Learn what is effective and what isn't. Learn how to live a lifestyle of prevention and optimal health to survive on in a toxic world. (+ info)

Are there members who have had papillary or follicular cancer?

- Did you have total thyroidectomy? If so, any complications?
- Did you have parathyroids removed? Or did they fail after thyroidectomy due to injury? If so, did function eventually return? Currently on 2400 mg calcium carbonate + Vitamin D daily (plus Tums in between if symptoms start :-(
- Any problems with obstructed airway after surgery? How long?

I'm five weeks post op: total thyroidectomy due to papillary cancer in nodules. Had huge goiter removed (wrapped around entire neck and extended down to upper chest and started extending out to nerves along right shoulder). Two parathyroids on right removed; two on left bruised or injured during surgery. Nerves to larynx okay but believe I lost high tones. (Was a singer.)

Strangest thing: Breathing! Feels like there is something blocking airway. Had one follow up and another schedule in upcoming week. It's bad enough that I awaken OFTEN during sleep with suffocating feeling. While awake must continually reposition head to breathe more easily. TIRING and am exhausted and beginning to get somewhat depressed. (Was an avid singer...) Comments, advice, suggestions?

Thanks and God bless.

x
PS Am taking Levothyroxine 0.175mg daily. Is there a possibility of changes in voice and/or breathing problem if meds adjusted?
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Note: Have other medical problems with docs/surgeon are aware of--including additional meds.
Thanks everyone. The thing is that I am not "thinking negative." I am however dealing with a very real physical pain due to the hypocalcemia which causes some paresis and uncontrollable and painful muscle spasms--about my head, face and neck. Speaking and singing exacerbate those symptoms. To the contrary to negativity, I prayed for full recovery from the disease and the surgery and am fully persuaded that God honors believed prayer. God has also given me the wisdom to know to deal with the situation that I have at hand. "My people are destroyed for lack of knowledge:" [Hosea 4:6 KJV] My faith and confidence in Christ is strong and asking questions of those who have experienced the same issues does not mean that a person's faith is weakening. I'm not "offended" by the remarks and appreciate "encouragement" given in a positive manner. Believing Christians must also trust in those God has given medical gifts and talents.

x

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Yes total thyroidectomy, but done in "two parts', one thyroid lobe removed, then after 6 months the remaining one- the surgeon thought there would be no cancer there. It turned out to be follicular variant of papillary ca, not spread into the lymph nodes, but some of them were removed just in case.
5 weeks post-op is kind of early to tell anything. I am 11 months post-op, even though I could speak very well right after the op, my voice was weak and I could not hold a lengthy conversation. 6 months after I began to feel "normal"- sleeping on one pillow was impossible at the beginning, on some nights I found it difficult to sleep on my side, so needed adjustments, such as extra pillows. I don't think I had an obstructed airway, it was more of the discomfort from the wound and staples while I still had them on. Once the staples and tapes were removed, I was wondering if the wound could open but hospital people all reassured me and said it won't- of course I didn't try to bend my neck all the way back. That was my biggest issue, worrying about the wound, not much about a blocked airway.
Wound healing takes time, general recovery takes time and you just have to take it as it comes. There is some swelling in the neck post-op and once the swelling goes down and things settle down your voice will be back- it can be even better than ever before, but you need training.
Your voice will recover- at least you had no major complications and this is already a major advantage.
I didn't have parathyroid glands removed- therefore just continue taking Synthroid 100mcg daily, but I had a huge goiter too. It was a big relief to get that removed, my breathing and swallowing got easier almost instantly, at least I felt that way. Some people tried to scare me by telling my voice will disappear and I will never be able to sing again, but I proved them wrong. Now they have nothing to say when I tell them I had no choice, couldn't leave cancer growing there. (+ info)

Has anyone out there ever had Renal Cell Carcinoma (Papillary)?

If so how long ago were you diangosed, what are/were the treatments? Did it metastisize? And how are you doing now?

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My husband had it, he was diagnosed in May 2002, had surgery to remove his kidney and after several experimental drugs, chemotherapy, radiation, he lost his battle in March 2004. GOOD LUCK to you and God Bless. (+ info)

encysted papillary carcinoma?

infomation on the above topic please

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There are a number of sites regarding this carcinoma, but most seem to be aimed at the health professional. The first site below is quite basic and the second is more in-depth. A quote from the first one: '..........This relatively uncommon lesion is now being detected with increasing frequency in mammographic screening'. I hope these are helpful. (+ info)

How common is Giant Papillary Conjunctivitis in patients who have never worn contacts?

I was diagnosed with Giant Papillary Conjunctivitis a week and a half ago. Symptoms began a couple weeks before that. I have never ever worn contact lenses. I'm just wondering how common this is among non-contact-wearers?

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A similar condition can be seen in severe atopic conjunctivitis.
GPC is a reaction to protein deposits on foreign objects on the eye. Besides soft lenses, rigid lenses and hard lenses one can see it from prosthetic eyes ("glass eyes"-really plastic) and foreign bodies such as sutures following eye surgery.
Another possibility is you were misdiagnosed when in fact you might have an infectious conjunctivitis with a lot of lid conjunctival reaction. (+ info)

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