FAQ - Cystic Adenomatoid Malformation of Lung, Congenital
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cystic fibrosis more of a chance of getting lung cancer?


my doctor in the hospital thinks i have cystic fibrosis does this increase the chances of cancer
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You cannot contract CF, it is an illness that you are born with !!

I have just read all your other questions sweetheart and you seem to think you have lung cancer, liver cancer, asthma, lymphoma.

I think you need specialist help with these anxieties that you have about getting ill.
The illness you do have is.........Hypochondria
Please look this up..................

http://www.wisegeek.com/what-are-the-symptoms-of-hypochondria.htm  (+ info)

Is Cystic fibrosis a congenital disease?


It is a inherited life-threatening genetic disease .
Go to this website for loads of info.

http://www.cff.org/AboutCF/Faqs

Merriam-Webster has a definition to "congenital" as
" c : acquired during development in the uterus and not through heredity "

You inherit it, it's in you when your in the womb, and your born with it.  (+ info)

Cystic fibrosis lung function test?


I have cystic fibrosis and I've been doing PFT's (lung function tests) since I was little but I never really paid any attention to them. I just knew if my doctor said i had bad pft's, a hospital stay was probably coming. Today my doctor said my fev1 is usually at about 60%. is that bad? is that normal for someone with cf? is it normal for someone without cf? what does fev1 even mean?? lol, thanks :)
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FEV1 is the volume of air that can be forced out in 1 second ... which indicates how well the large and medium-sized airways are functioning .... is by far the most frequently used index for assessing airway obstruction, bronchoconstriction or bronchodilatation; FEV1 expressed as a percentage of the Vital Capacity (VC) is the standard index for assessing and quantifying airflow limitation ...

FEV1 can be used as a guideline to describe the severity of lung disease or through serial measurements the progression of a disease state:

FEV1 80 - 100%: Normal
FEV1 60 – 79%: Mild
FEV1 40 – 59%: Moderate
FEV1 35 - 40%: Severe
FEV1 <35%: Very Severe

Because of your lung condition ... your FEV1 will be variable due to the status of your breathing ... the more secretions and bronchial irritation or spasms ... the less your FEV1 ... there is no normal values for patients with CF ... that is why the usual protocol is to perform spirometry 4 times a year .... to establish your baseline  (+ info)

What causes differences in the severity of Cystic Fibrosis?


I have identical twin girls (they're 16) who have Cystic Fibrosis, they have always been in the same environment, but they seem to have two different severity levels of Cystic Fibrosis, one of my twins is sick very often and has had to spend numerous amounts of time in hospital, has much lower lung function, needs a feeding tube, and will need a lung transplant eventually, my other daughter does not get sick and get infections that much and has always been a lot stronger. What actually causes the differences since they are identical twins?
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Different mutations of the disease may play a part in this. However, this cannot be ruled at the answer either. For example, I have CF as well, my mutation is the G551D, and right now I am currently in a study with 2 other people at my CF center (about 80-120 in the US hopefully at the end) and even at my center 5 people have this mutation. I am about 50% lung function (this is very good for me) but have spent a lot of time in the 40%. To be in this study your lung function had to be over 40% and stable. One girl is not able to participate because she is under that mark, and one boy is in the 90's so he cannot participate because he is doing too well! I think that Cystic Fibrosis is still really misunderstood, and not everything is known yet about it. Everyday there are new treatments that are developing to make life better. Right now I am a lot healthier than my older sister who does not have CF! I have not been ill in nearly a year, which is amazing to me because for about 3 years I consistently had IV therapy every 3 to 4 months for about 2 months at a time.  (+ info)

Exercise to Improve Lung Capacity? (Cystic Fibrosis)?


I have Cystic Fibrosis. It mainly affects my lungs and the amounts of air I can breathe into my lungs and acts almost like“Super-Asthma”.

I current have 65-70% of my lungs left and I’m looking for an exercise regiment to help keep my current lung capacity and/or improve the overall health of my lungs.

Does anyone have any advice for any exercises or activities I can do that are specifically designed to improve lung health and overall capacity?
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Aerobic exercise. Run, job, swim.  (+ info)

How can I be prepared for a lung transplant?


I'm 16. I have Cystic Fibrosis have gotten ill often and suffered a lot of infections and my lung function is low, the doctors think I should have a double lung transplant. My mother is urging me to say yes to it (I'm her only child and we're very close) but she's very scared about it too and so am I. What is life like after a double lung transplant, does anyone have any personal experience? How can i go through the surgery without being too scared and how can I emotionally prepare for this?
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You need to trust your doctors.
In todays age of modern medicine, patients are taken such good care of.
Talk to your doctors. They will help you.

Personally - i think you should go through with it.  (+ info)

Is it ok to have cats around someone who has Cystic Fibrosis?


My granddaughter has Cystic Fibrosis and is 15, she has very low lung function and had to be in the hospital recently because of a bad infection, she's often been in the hospital. She's going to be staying with me for a couple weeks, I will take care of her while my daughter goes on a trip she has to do. Is it ok to have cats around her? I got three cats recently. Is there anything else I should be particularly cautious/careful about while she's here?
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Well I would suggest having someone else take care of the cats for a little while.

The fur may irritate the lungs, and your granddaughter has enough trouble breathing as it is.

Maybe ask her mother, I'm sure she knows more about what the daughter can handle and be around. That's assuming that she's the one who accompanies her daughter to the doctors. Whoever regularly cares for her or a doctor is the best person to ask.  (+ info)

My twin sister and I have Cystic Fibrosis, why do I get a lot sicker than her?


My identical twin sister and I have Cystic Fibrosis but we seem to have two different severity levels of it, I get sick really often and have had to spend lots of time in the hospital with infections, but she doesn't get sick as often and her lung function is currently a lot higher than mine, whereas I am going to have to have a lung transplant soon and we're only 16. Of course we've always lived in the same environment. What would be the cause this difference?
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like the 1st person said no one knows why it affects siblings with the same mutations to have a different severity of it. But there is a book out written by anna & Isa Stenzil. The power of 2 : Twins Triumph Over Cystic Fibrosis. I went to CF camp with them ages ago. Its a really good book and they were the same way. Anna was always sicker than Isa. And then My older brother with CF was always healthier than me when we were growing up. He wouldn't do his meds and he would go YEARS without IVs and I would be in the hospital every 4 - 6 months. Now that were older While I am still in the hospital every 4 - 6 months. My brother had to have a lung transplant. Its just weird.

Good Luck with your tranplant. I hope you get it soon.

26 with CF. Brother 29 with CF 5months post transplant :)  (+ info)

Could trying Marijuana once be dangerous if you have Cystic Fibrosis?


I have Cystic Fibrosis, I have never tried marijuana/weed before and have never ever smoked anything for that matter. I'm from Germany but my friends and I are going to go to Amsterdam for a day. I know they will smoke marijuana. Could trying it once be very bad since I have very poor lung function? Or would one time not matter much?
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One time isn't going to hurt you. You should be cautious with your condition, but one time is not putting yourself in harms way.

I'd recommend vaporizing if you can. Vaporizing is a smokeless option and I've met with quite a few people with CF that find relief with vaporized marijuana and marijuana edibles.  (+ info)

Is it safe to travel overseas after a lung transplant?


I had a double lung transplant a year ago when I was 18 (i have Cystic Fibrosis) and haven't been anywhere since I had the transplant. My friend asked me if I wanted to go to Egypt and Syria with her this summer. Has anyone had any experience traveling to different countries after a lung transplant? would it be safe?
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No, I haven't but I suggest you consult your doctor before you take the advice of anyone on here. Although, I think it would be cool if you went there to travel, and it has been a year. I really hope you are able to go and have the best time. Best wishes.  (+ info)

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