has a lung transplant been successful on a young person with cystic fibrosis?

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Hi. I'm a 39 year old CF patient that had a bi-lateral lung transplant two years ago.

CF'ers are often some of the best candidates for lung transplant, even the younger patients, since we are already very used to a stringent medical routine. I've known several other CF'ers that have had lung transplants, with the youngest I've personally known being 13 when he received his new lungs.

Please note that the second response to you received to this question is vastly incorrect in regard to lungs being a close match. The only thing that has to match for a lung transplant is the blood type and relative size of the lungs. If the donor is larger than the recepient then the lungs can be down sized. Also, remember that type O blood is considered "universal" so those organs can be allocated to any blood type offering those with a more rare blood type a decent opportunity for transplant.

The only issue you may really experience is the type of bacteria in your lungs. If you have Pseudomonas (Burkholderia) cepacia none of the US lung transplant centers will perform transplant (currently) since the bacteria is basically unbeatable and the immunosuppression that follows transplant (for the rest of the recepient's life) will only make it worse. However, that doesn't mean that research to fight it isn't on-going or that centers in other countries wouldn't consider transplant for those with the bacteria.

Best wishes - breathing freely is a wonderful thing!  (+ info)

how can you tell if someone has cystic fibrosis?

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i have a new friend and he never really talks about his illness but i know he has one to do with his lungs, he got a lung translpant a long time ago and he is in the hospital from time to time, is there another lung-related illness or is this cystic fibrosis? how can you tell?
There's really no way to tell just by looking at someone whether they have cystic fibrosis or not. The lung transplant and the hospital visits certainly fit with cystic fibrosis, but it really could be any number of things. Unless he opens up to you and tells you, I'm afraid there's no way of knowing.  (+ info)

Cystic Fibrosis and Lung Transplants?

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My younger sister who is 16 has CF. She is going to be going through the tests to be on the waiting list for a lung transplant because her lungs has gotten to the point of what I believe is like, 30% usage left of her lungs. Earlier this year in September, she was in the hospital for a few weeks, and had a blood infection, and had almost gotten to the point of no return which was very hard for our family. Now that she is going to (hopefully) be getting the lung transplant, I want to know what to expect...

What is the life expectancy afterwards? Will she still have any CF symptoms? And any other information that can help me.

Thank you so much, I just want to do everything I can to make her quality of life something to remember.
well i can only speak from personal experience, i have CF and i have had a Bi-Lateral lung transplant for 11 years and 7 months and still going. the life expectancy i was told 10 years, with the advances in immuno suppressant therapy the life expectancy will continue to increase, all traces of CF in the lungs will be gone, but will still remain in the other areas that are affected by CF. i hope that helps out. if you want you can e-mail me with any other question. [email protected]  (+ info)

Has anyone out there had a lung transplant?

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My husband has had a double lung transplant (bilateral sequential double lung transplant) for Cystic Fibrosis. Just like to see how others are going and what diseases they had.
While I haven't had one I do know of quite a few who have. I talk with most of them on myspace :) They have a pretty awesome support group there for cystic fibrosis friende, family members and then a ton of us actually have it :) One girl had both lungs and liver done at the same time. Hope that helps some since I personally have no experience. Probably will in time though.. FUN FUN

http://groups.myspace.com/cyfi  (+ info)

What could be possible cures for Cystic Fibrosis, how would gene therapy work?

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besides lung transplants (which aren't exactly a cure)....what would be possible real cures and how would they work and how close is the medical community to finding a cure?
to be honest and straight forward we dont have a cure right now . gene therapy is working but is still in the pipeline and is not the 100% cure for that. however not to distract you there is supportive therapy for cystic fibrosis and it has increased the median age of patients and quality of life in patients . not to loose hope and pray that one day we can completly cure it by gene therapy  (+ info)

What song by Celine Dione is about Cystic Fibrosis?

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she has a song that is dedicated to someone she lost due to a hereditary lung disease called cystic fibrosis?
FLY was written for her niece Karine, who had CF.
Karine and Celine were very close and Karine died in her Aunties arms...

http://www.youtube.com/watch?v=RtkmsMokvbE

What a beautiful song... it reminds me of my daughter who died in 1992  (+ info)

Cystic Fibrosis, lung transplants?

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My boyfriend has Cystic Fibrosis. I have told him that in the future, if his lungs fail, I will donate to him one of mine. Can I keep this promise? Is it possible?
My boyfriend has Cystic Fibrosis. I have told him that in the future, if his lungs fail, I will donate to him one of mine. Can I keep this promise? Is it possible?

And for those who just answered, it is possible to live with one lung. What I want to know if there would be anything stopping me from doing this and if he would be able to live well with it.
Well firstly, to donate anything yould have to be a donor match for him, which includes blood type and tissue similarity. The odds of this are not that great, but, providing that they are, yes you can. You wouldnt actually give complete lung, instead you would give a lobe of one of your lungs (there are 2 on your left and 3 on your right). But living lung transplants are quite rare and risky procedures, and unless your with your bf for life, its not something to worry about. You have to be in the end stages of a disease to qualify. Living with one lobe missing has a small and barely appreatiable loss of quality of life. Its like smoking for 5 or ten years then quitting. You naturally have a large excess of lung capacity so unless you suffer from a lung condition itself you probably wouldnt notice after you recovered from the operation.  (+ info)

baby has lung problems any clue what it is?

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so a little baby i know hes 7 months old he has lung problems.The doctors don't know what it is.They ruled out cystic fibrosis but they also think that its too persistent to be asthma.

Is anyone familiar or have experience with this?
would the fact that mom had Group B streptococcus during pregnancy and had to get antibiotics have anything to do with it?
Have the doctors checked for RSV. My oldest daughter was exposed to this when 4 months old and had to use a nebulizer with asthma medications daily until the age of 3 and one half. This will cause breathing problems, wheezing, more likely to get chest infections, etc. She was also tested for cystic fibrosis and came back negative. Something to remember in the future and watch for. She did well for 8 years and now has been diagnosed with Reactive Airway Disease, basically asthma and has to carry a rescue inhaler. Once you have been exposed to these problems I think they are more likely to recur down the road.   (+ info)

Does anyone have Cystic Fibrosis and who is also diabetic that had a lung transplant??

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Hi. I have CF and will celebrate my '3rd birthday' since my transplant at the end of August. I was 37 at the time of transplant and have been diabetic, due to the CF, since around age 27.

You need to have good control of your diabetes prior to transplant - faithfully checking blood sugars and reporting the results to your doctors, in addition to all suggested bloodwork. If you don't have control of it there can be delays in being approved and listed as a transplant candidate.

Given the amount of calories we need to maintain (or gain) weight prior to transplant it shouldn't be surprising if your doctors put you on insulin. Doing the diet/exercise approach generally doesn't work because we have to eat constantly and a lot of the high calorie foods also pack in the carbs. Doing the insulin basically allows you to eat what you want, when you want and take the appropriate amount of insulin as you go. Personally I would recommend an insulin pump and have had one for just over three years. It's far preferable to the shots since you're only 'sticking' yourself for insulin every 3-5 days. Otherwise you'll have shots about every time you eat...

Post transplant most of the programs will have you on steroids at least temporarily with Prednisone being a frequent choice. Prednisone (and other steriods) can really wreak havoc on blood sugars (which you're probably already finding out during your tune-ups, etc.) and the pump allows you to easily adjust the basal as well as bolus rates of insulin.

A basal rate is a (generally) small dosage of insulin that you receive continuously throughout the day - and night - to help maintain blood sugars. A bolus is the additional 'batch' that you receive when eating something. Depending on the pump you can usually set up multiple basal schedules based on your normal schedules and just change it, as needed, to fit what you're doing. For example, I sleep late on the weekends - usually getting up around noon - so I have a basal schedule that gives me a much smaller dose through the morning. On work days I have breakfast around 8:00 or 8:30 in the morning so my basal is at a higher rate earlier in the day.

With any insulin related treatment you have the potential for low blood sugars and will always need to carry a quick source of carbs with you. Some people use hard candy, such as lifesavers, but glucose tablets are an even faster acting option and don't taste bad at all. You can get them in any drug store or the pharmacy area of a discount or grocery store and they are an over-the-counter item so you have your choice of flavors and brands.

Your question didn't really say what concerns you have with diabetes and lung transplant so hopefully I've addressed any concerns you might have. Those of us with CF that receive lung transplants generally do quite well. Although everything can be a bit intimidating at first because it's a new medical routine it's quite easy to adapt since CF'ers are already used taking a number of meds and spending time in various doctors offices or hospitals.

Best wishes. Breathing is a wondeful thing and the improvement is immediate! :)  (+ info)

A nurse researcher describes a study of the loved experience of adolescents who have a lung transplant?

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to treat cystic fibrosis. Which type of research design is this?

I think the answer is A

A. Phenomenology
B. Ethnography
C. Grounded theory
D. Correlational
you'd be wrong, suggest you do better research for your homework than you have.  (+ info)

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