Anyone had a child with patent ductus arteriosus or bicuspid aortic valve?

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I am just wondering what happened with them. I just found out my four year old has these heart problems. She has to have a heart cath on the 18th of Sept.
My daughter has a heart defect, but it doesn't involve either of those problems. I have known of several children with one or the other or both of these and they are all doing quite well.

This site has collected stories of children with heart defects and they are organized by type: http://tchin.org/portraits/by_diagnosis.htm

My daughter has had one cath and we are scheduled for another Aug. 23. If you want to know what to expect I can describe our cath experience, just let me know.

Sorry I can't give you any more information specific to your daughter's problems but I hope this helps some!  (+ info)

common treatment for patent ductus arteriosus in a 2 yr old child?

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this crazy internet is getting me nowhere, i'd love if any doctors could give me some additional info, or at least some questions that i can ask the pediatric cardiologist...thanks for any advice
Well provided that the child does not have any other sort of congenital defects such as aortic coarctation or transposition of the great vessels, surgical ligation of the PDA would be the appropriate treatment.  (+ info)

patent ductus arteriosus?

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my 2yr old has just been diagnoised with patent ductus arteriosus.we r awaiting for a op.anyone know how serious it is and been through it.please help
Failure of a child's DA (ductus arteriosus) to close after birth results in a condition called patent ductus arteriosus and the generation of a left-to-right shunt. If left uncorrected, patency leads to pulmonary hypertension and possibly congestive heart failure and cardiac arrhythmias. I have not been through it personally, but I see lots of these a year and generally the surgeries go very well and recover to a normal life, with some exceptions.  (+ info)

PDA- Patent Ductus Arteriosus surgery for infant. Is that an easy going surgery?

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Hello, my son is 6 month old and has PDA. We've already scheduled the surgery in February. I just want to get advice and comments from parents whose infant had the same surgery PDA ligation and would like to get information about the recovery process, does it take long time? how does infant feel after the surgery?
Thank You
Patent ductus arteriosus (PDA) ligation
* Before birth, there is a natural blood vessel between the aorta (the main artery to the body) and the pulmonary artery (the main artery to the lungs) called the ductus arteriosus. This opening usually closes shortly after birth. A PDA occurs when this opening fails to close.
* Sometimes a simple surgery can be done. In this procedure, the surgeon inserts a few small tubes into an artery in the leg and passes them up to the heart. Then, a small metal coil or another device is put into the child’s arteriosus artery. The coil or other device blocks the blood flow, and this corrects the problem.
* Another method is to make a small cut, or incision, on the left side of the chest. The surgeon reaches in and ties off the ductus arteriosus, or divides and cuts it. Tying off the ductus arteriosus is called ligation.  (+ info)

any one who know kids with PDA (Patent Ductus Arteriosus).?

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my son has a smal patent ductus arteriousus. i am so worry even though doctor said its going to be ok.
A patent ductus arteriosus is a small vessel connecting the aorta to the pulmonary artery. Usually shortly after birth it closes but in a small percentage of kids it stays open. If it is very small the doctor is right, it is of no significance and your kid could become an olympic athlete someday. If it is big it is easy to close without surgery in the heart catheterization lab. When a PDA is big there is generally left sided heart enlargement and that is usually the primary indication that it should be closed. When it is closed the heart size returns to normal size rather quickly. If there is no heart enlargement the doctor may recommend follow up from time to time to check up on it and make sure things aren't changing as the child grows. A PDA is not one of those disorders that can cause sudden death, so relax. I have seen many kids with small PDAs and they are fine.  (+ info)

patent ductus arteriosus question.?

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I had patent ductus arteriosus (PDA) surgery when I was 7. Today, I'm a 20 yr. old female who has been experiencing a lot of breathing problems when walking up and down steps and also when running (which I can't do long and haven't been able to since the heart surgery). My heart starts jumping out of my chest, I can't catch my breath, and it's usually followed by sharp chest/heart pain on the left side.

Has anyone with PDA problems had this problem? Or does anyone know what to do about it?

I am supposed to get a stress test, but I've been putting it off because I am hesitant to hear the results.

Any suggestions or thoughts would be GREAT!
Thank you!
you shud go see your cardiologist if you think there is a problem when was the last time you saw the hart doc? my son was fixed at 9 month  (+ info)

Best treatment for patent ductus arteriosus and an ASD hole?

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My five month old son just got diagnosed with patent ductus arteriosus and he also has an ASD hole in his heart. The doctor believes that they both need to be corrected within the next 2 months. They are causing him a lot of breathing problems. I am going to talk to the cardiac surgeons next week, but I am wondering what is the best way to fix this problem. Or if any parent has already had this problem with their child, how was it fixed?
I know wha this is, but I was wondering if they make an actual incision or go up through the groin? And if it is an incision do they have to use that machine so they can stop your heart?
Repair of a patent ductus arteriosus (PDA) and atrial septal defect (ASD) can only be "cured" by surgery. The congenital, open connection between the aorta and pulmonary artery must be closed surgically and permanently. The opening between the two upper chambers of the heart (an atrial septal defect) may need to be closed by a patch, perhaps made of teflon and done surgically at the same time by a pediatric cardiac surgery during open heart surgery. The two defects are known to occur at birth and have been repaired many times by heart surgeons with good results.  (+ info)

5 month old with ASD hole in heart, and patent ductus arteriosus, any one going through the same thing?

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For so long my five month old son has had rapid breathing. The doctors have done everyting they could to figure out why he is doing that. All they could find was an ASD hole in his heart and they also said that he has a patent ductus arteriosus. I am totally freaked out because no parent wants to find out that their baby has something wrong with their heart. They are going to do surgery to correct the problem, but I'm also freaked out about him undergoing that. Is any parent going through the same thing?
I can understand what you're going through.
My baby daughter was born six weeks ago with severe heart conditions and had two operations by the time she was 8 days old.
One was surgery to close the ductus arteriosus, which was kept open at birth to allow her to breath (as her Pulmonary Valve was not functioning), but in turn didn't close on it's own so needed a little help.
The surgeons are amazing, and are performing these procedures all of the time. The surgery took less than an hour and we could notice the difference immediately in her breathing. She has a little scar that runs from under her left arm across toward the middle of her back. It's because of this surgery, that we were able to bring our little girl home. Even though it's totally scary and no parent wants to see their children have to undergo surgery, it's a means to an end.
They're amazing little things - I can't believe how strong and resiliant our daughter was through the whole thing. She's like a new baby now.
Good luck with it all - I hope I've instilled a little bit of faith for you.  (+ info)

I really need your help on this. My two year old boy have 1.8mm patent ductus arteriosus.?

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The echo comments were the echogenic line extends from near the ductal insertion towards the RPA. It does flow along the direction of the duct. This could be a shelf in the MPA.

I am thinking of making him go for the sugery even though the doc wants to wait for one year. but he said there is a risk of heart infection and the patent ductus arteriosus won't close up.

is it safe for him to go for surgery now or wait one year?
thanks alot. but the problem is that he has not been feeling well since the day he was born. he has gone through alots of infections in his tiny life. every single month, he has to go to hospital atleast more than5 times. and i am getting fed up with this. sorry.
thank you for your advice. everybody is telling me he is quite thin. He was born premature at 35 weeks. He is having two things in his heart. One is PDA and other is a heart shelf near the MPA. Recently, he was having fever for 3 weeks for unknown cause. So his doctor thought it might heart infection. to me it is way to risky to wait for one year, so i have decided to ask the doctor to go ahead with the surgery.
Hello,

I'm sorry about your son's patent ductus. It sounds as though you understand what is going on here.... what a patent ductus is.

The translation of the echo result is, so far as I can see, "the line I can see on the echo machine screen goes from near to where the duct joins the arch of the aorta, towards the right pulmonary artery. Blood does flow along the direction the ductus takes. This could (might be, "there could") be a raised line of scar tissue in the main pulmonary artery."

In other words, IF you have copied the wording exactly correctly, it would not sound to me as if the Radiologist is committing himself/herself here 100% to it being a patent ductus arteriosus, although I am sure that your doctor has extra clinical reasons for being absolutely certain. It doesn't sound as if your son has needed a 'cardiac catheterization' test.

I don't think anyone on Yahoo 'Answers' is going to advise going against your doctor's recommendation. We are not heart specialists, (I am a retired uk gp), and we do not have access to the clinical details of your son, nor to the details of his investigation results.

It is never going to be absolutely safe for your son to go to cardiac surgery.

My copy of 'Heart Disease in Paediatrics', Jordan and Scott, 2nd edition, gives the risk of operation in infancy as 1%, (which is about the same as the risk of having your acute appendix removed), - - but my copy is the 1981 edition, and almost certainly the risk is less than 1% in 2008, - - but it is not absent.

It's a question of weighing up the risk of (closed) cardiac surgery, against the risks of complications from the patent ductus, which include heart infection (bacterial endocarditis). Jordan and Scott gave the risk of bacterial endocarditis in 1981 as 0.45% per year of risk. Presumably your son is healthy and thriving and normally active, i.e. without any symptoms of significant diversion of blood from the main aorta to the lungs?

We just can't weigh up these risks for you. If you press for surgery and it takes place, but with a bad end result, the doctor is going to say, "I told you we should have waited another year."

I hope this is of some help. This is a very technical area, which moves forward all the time.

Best wishes,

Belliger (retired uk gp)

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PS. Thanks for additional details, there is no need to be sorry. I quite understand your position if your little boy has been so repeatedly poorly. These repeated infections should probably be taken into account in the overall decision-making process.

I think a good way to go about this, might be for you to find out or ask, where your little boy's weight and height are, on a 'Centile' (pronounced Sen'' - tile) chart. If at the moment, your son is on the third centile or less for weight and height, i.e significantly failing to thrive, - - that might be reason for doing something now rather than later.

If on the other hand, your little boy's weight is on the 10th centile or above, that is a lot more reassuring.

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PPS. After thinking some more about this, I wonder whether your little boy might have been born a little prematurely? If so, the weight graph would need adjusting. B.  (+ info)

patent ductus arteriosus and patch?

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Back in 1969, I had PDA surgery to close a large PDA (I have a big scar on the left side of my ribs)...I was a year old at the time. Years later, when I went to see a caridologist, the man who looked at my heart through a sonogram said he can see a white patch over where the PDA was.

What was this "white patch" called? Since I have this white patch, does this mean I have to still premed for dental work?
You should talk to your doctor about it  (+ info)

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