what cream should i use if i have Epidermolysis Bullosa ?

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are der any creams i can n buy in the united states
There is no real treatment for this disease. You should speak with your physician about treatment.  (+ info)

epidermolysis bullosa Simplex?

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Is der any creams for EBS? what are some other things to help you with EBS?
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does anyone suffer from epidermolysis bullosa and have a cure?

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There is no cure from EB. There are ways to lessen pain and to heal faster depending on how bad you condition is. There are cremes with pain meds in them...I use Bacraban...it is my favorite. Check out Debra.org and the EB foundations site.

Also if you have a dermatologist that understands EB, they can help you also with pain managment and healing.  (+ info)

My sister is carrying a child with Dystrophic Epidermolysis Bullosa,and tay sachs,shes thinking about abortion?

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she is 11 weeks, they did a chorionic villus sampling, she got the results today, shes extremely upset
These diseases make it almost certain the child will die before age 4, and if the child does not die, it will live a very painful life, and definatly not a full one. They are both genetic inherited disorders,
bullosa will cause my nephews skin to fall off at the slightest touch, and could even cause the skin to fall off internally in the lungs, and throat and cause suffocation. massive blistering of the skin develops in response to minor trauma, varies in severity which could be a lethal form in which the constant massive blistering and scarring ultimately lead to death


tay sachs, is a fatal inherited disease of the central nervous system where affected babies lack the necessary protein for breaking down certain fatty substances in brain and nerve cells. These substances build up and gradually destroy brain and nerve cells, until the entire central nervous systems shuts down, causing the child to go blind, become paralyzed and die by age 4

she watched a documentary man who lived with epidermolysis bullosa, and he said that with the constant pain he has to endure everyday, he wished his mother had aborted him.
she is so lost and im not sure what to say to her, shes coming to me for advice, but i dont have any.
What would you do if this situation personally faced you?

supportive posts will be printed out and shown to her. please be kind.
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is epidermolysis bullosa externally, internally, biochemically, psychologically, etc...?

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what is it????
Its a genetic disorder but seen externally.

Hope that helps  (+ info)

can people with Epidermolysis Bullosa have children?

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After looking around, it doesn't seem like there is any reason why not. You can always ask your doctor if there is a reason, but unless you are on medications that would give you any reasons, I would say yes.  (+ info)

Does anyone out there have epidermolysis bullosa? If so do you have a good dentist...have dentures? I'm 54...

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not many teeth left, getting desperate
Why not try the EB support group, you may get more luck there;  (+ info)

I have a son ,4yrs old suffering from Epidermolysis Bullosa-Simplex.Can anybody tell me about.......?

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advanced treatment in alopathy,aayurveda,homeopathy or something else......please............
http://www.niams.nih.gov/Health_Info/Epidermolysis_Bullosa/default.asp

http://ghr.nlm.nih.gov/condition=epidermolysisbullosasimplex

http://en.wikipedia.org/wiki/Epidermolysis_bullosa

several sites, with good information and excellent links as well, time for you to educate yourself as best you can mom, start studying.  (+ info)

HAS ANYONE HEARD OF Epidermolysis Bullosa ?

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MY BEAUTIFUL NEPHEW HAS THIS HORRIBLE GENETIC SKIN DISORDER...click on the link to find out more information
www.ebinfoworld.com
Epidermolysis bullosa is just one in a group of blistering skin conditions. The skin is so fragile in people with epidermolysis bullosa that even minor rubbing may cause blistering. At times, the person may not be aware of rubbing or injuring the skin even though blisters develop. In severe epidermolysis bullosa, blisters are not confined to the outer skin. They may develop inside the body, in such places as the linings of the mouth, esophagus, stomach, intestines, upper airway, bladder, and the genitals. Most forms of epidermolysis bullosa are evident at birth. This disorder can be both disabling and disfiguring, and some forms may lead to early death. The disease results when skin layers separate after minor trauma. Defects of several proteins within the skin are at fault.

To pick up a baby with severe epidermolysis bullosa, place the child on a soft material and support the under the buttocks (bottom) and behind the neck. A baby with epidermolysis bullosa should never be picked up under the arms. To protect the skin from injury, avoid overheating by keeping rooms at an even temperature, apply lubricants to the skin to reduce friction and keep the skin moist, use simple, soft clothing that requires minimal handling when dressing a child, use sheepskin on car seats and other hard surfaces, and put mittens on at bedtime to help prevent scratching. When blisters appear, the objectives of care are to reduce pain or discomfort, prevent excessive loss of body fluid, promote healing, and prevent infection. If infection appears, it should be promptly treated.  (+ info)

do you have epidermolysis bullosa?

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i have simplex, i am a 12 year old girl. what kind do you have? how old are you? :]
when i say i have simplex [this is for those of you who do not know:] it means i only get blisters on my hands in feet therefore i do have EB. please answer yall:]
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