FAQ - Epidermolysis Bullosa Acquisita
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Spectroderm Cream?????????????


Has ANybody use that For Epidermolysis Bullosa?.
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http://en.wikipedia.org/wiki/Epidermolysis_bullosa

http://www.drugs.com/international/spectroderm.html  (+ info)

Nursing Question?


Hi
Wondered if anyone could help me out with this but I would like to work as a nurse in a childrens unit when im older. I'd really like to work with people who have 'deformities' (I hate that word but im not sure how else to say it) and severe skin conditions like Epidermolysis Bullosa or that have suffered burns.
What area of nursing is this called?
Im also considering neonatal nursing, pediatric oncology and geriatrics. If anyone could give me any insight into what its like being a nurse I'd really appreciate that too
thanks x
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I will tell you this... Most nurses who work on a burn unit only stay there for a very brief time. They get 'burn-out' (no pun intended) really easily because it's a really difficult field to work in. Burns do not just affect the skin... they throw the entire body out of whack. There's a lot of responsibilty involved. Think about how painful it is when you just get a little second degree burn on your finger from touching the stove... think about people who have third degree burns over 46% of their body.... the patients are mostly sedated because they are in too much pain to be awake. And I heard horror stories about the agonizing screams that come from the rooms of the patients who are awake, not to mention the emotional turmoil they are going through when adjusting to their new appearance... and children... forget it! I personally could never do it... if you can handle that then god bless ya, because you're a much stronger person than me!! If you like skin disorders, maybe you could get in with a dermatologist, or find a hospital that has a special unit for skin disorders. Also, med-surg is really fun. You get everything from AIDS patients, to heart attack, to acute dementia, tuberculosis, pneumonia, hepatits, skin lesions with an unknown etiology (and the list goes on)... it's always something different! The good thing about nursing school is that they do a great job of exposing you to all the areas of nursing. I personally, am planning on getting into either wound care or holistic nursing... still undecided! Whatever you choose to do is fine because we need nurses in ALL fields! Good luck to you!  (+ info)

Need Medical Assitance for my friend...?


Epidermolysis Bullosa Simplex (Koebner's Disease). Celiac's Disease. Pancreatic Issues - Sphincter of Oddi Dysfunction.

These are the diagnoses' given to my friend after several years of sufffering. Now her doctors, upon giving the final two diganoses', don't want to treat her, instead sending her to the ER when she has problems. The ER admits her, pumps her full of narcotics, only to release her days later, addicted to pain meds and to detox alone at home.
This is getting stupid! Why won't a doctor spend some real time with her, get to know her as a person, get to know her medical history? She is not a file of paper!!
Does any one have any useful suggestions on how to go about getting respected by these doctors? She's back in the hospital again (4th time in the last 6 months!) and on narcotics. This is not the way she wants to live her life. She has 3 girls and a husband at home!!
Please help?!
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I don't know anything about your case, and it is entirely possible that your doctors are trying to do the best they can but do not believe that they can do any good in an acute situation.
That having been said, if your friend does not trust her doctors or their motives or feels they are not giving her good care, then just switch doctors, there are many out there.  (+ info)

red palms, didn't bother me until others pointed it out?


the palms of my hands and under my finger nails are always red they have been this way for a long time now. they are like it 24/7 even when i have dne nothing at all. overall healh is fine, i have no other symptoms to go with it. they are just re. i'm 28 and 7 months pregnant but they have been this way before pregnancy. i don't drink but do smoke usually when i'm not pregnant... i had bp checked 110/70 heart rate 88-92bpm... it's not something that bothers me but 3 people ha pointed it out today including the DR, i told her they are always like it and thats as far as it went, i do suffer from a skin disease called Epidermolysis Bullosa but so do most of my family and their hands are not this way
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do they feel warm. its nothing to worry about. do you want a totally abstract answer? ill edit if you say yes.  (+ info)

Nursing question?


Hi
Wondered if anyone could help me out with this but I would like to work as a nurse in a childrens unit when im older. I'd really like to work with people who have 'deformities' (I hate that word but im not sure how else to say it) and severe skin conditions like Epidermolysis Bullosa so that have suffered burns. What area of nursing is this called?
Im also considering neonatal nursing, pediatric oncology and geriatrics. If anyone could give me any insight into what its like being a nurse I'd really appreciate that too
thanks x
----------

I've always worked in healthcare in a support role and currently in nursing school. I can say it will be probably the most rewarding career you can choose. Not only is the pay excellent but you can save peoples lives also. Not to mention Nursing is a HUGE field with endless opportunites, you don't even have to provide patient care if you work for other businesses. Also the nursing shortage is estimated to continue to reach record levels into 2010.  (+ info)

I had sinus ct scan last week ,I have recieved the written report . Can any one help with questions?


The Impression Mild bowing of nasel septum to the right .Left Concha Bullosa Air cell in superior medial aspect of right maxillary sinus causing narrowing of the ostiomeatal unit .Musosal thickening in several ethmoid air cells . Am I looking at surgery
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This is a little tricky to explain, but here goes...

Mild bowing of nasal septum to the right - this is known as a deviated septum. My impression is that most people have some mild deviation and this is almost normal. In a CT report, the radiologist could call it mild, moderate or severe, so you got the lowest.

Left concha bullosa air cell in superior medial aspect of maxillary sinus - The maxillary sinuses are the sinuses below your eyeballs and to the side of your nose. A concha bullosa is where the central portion of one of the conchae (also known as turbinates - they are little "shelves" of sinus tissue which give the sinuses a more complex arrangement) is hollow in the center and filled with air. This can lead to blockage of some of the holes (ostia) that the sinuses drain through.

Narrowing of ostiomeatal unit - This is due to the swollen concha mentioned above. Again, I would not worry as it is not completely obstructed.

Mucosal thickening in several ethmoid air cells - The ethmoids are another set of sinuses. The mucosa is the lining of the sinuses. Thickening means sinusitis.

So, in summary...You have sinusitis. Because of the sinusitis, there is some thickening of the sinus lining. One of your sinus shelves is swollen from air (a normal variant) and this has caused some narrowing of the opening of the sinus. Since there is no frank obstruction, I think this could be handled medically with a steroid nasal spray or decongestant rather than surgery.  (+ info)

Is septoplasty worth it?


I'm sooo iffy on following thru with my septoplasty. I also have enlarged turbinates and a concha bullosa (bubble) in my nose. There are times at night that I am very stuffed up. I hear that this surgery has only marginal results and is painful. Is it worth it?
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I had resectioning of the turbinates done and I can't believe what a HUGE difference it made! I ended up with allergies the following year, but that was well worth being able to breathe! If you are having that much trouble breathing, I would say GO FOR IT!


Oh, I also had a cyst in one side removed that day...  (+ info)

Can anyone explain these things? My ENT said he will do surgery for this when I have my tonsillectomy.?


He said there is an ethmoid obstruction, cyst in my maxillary sinus, something like concha bullosa, and large turbinates on both sides of the nose. Any help would be appreciated.
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So you have a stuffy nose. Caused by a growth and large turbinates. Turbinates are passages in your nose thru which you breathe, they serve to warm the air on the way to the lungs, obviously if they are large, they could partially obstruct the flow of air. Maxillary sinuses rest below your eyes, so a cyst in one could contribute to blocking the flow of air thru your nose. concha bullosa refers to a turbinate being inflated with air, it needs to be removed.  (+ info)

what is meaning of this CT Scan??


what is meaning of this CT Scan??

CT SCAN OF PNS COR--AXIAL:
Lt mid. turbinate concha bullosa , c Contralat . NSD . Bilat . inf . Turbinates & Septal mucosal hypertrophy .
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Sounds like someone had a CT scan of their head and something's showing up in the sinuses.

But I could be all wrong too.  (+ info)

Presentation...?


I have a presentation today at school on DNA mutations. I got the disease epidermolysis so i have to find out if it's a point mutation or a frameshift mutation, if it's a chromosomal mutation, if it's genetic, and any other info i can find. can someone please help me bcuz i can't find anything on it?
8 hours ago - 3 days left to answer.
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See if the link below provides any help.  (+ info)

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