FAQ - Epilepsy
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Can you tell me what to expect after epilepsy surgery?


If you have undergone temporal lobe epilepsy surgery (right side) - or know someone who has - please tell me what happens right afterwards. How long is the recovering process and how is it?
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I'm sorry to hear about your problem. I'm presuming it's you having the surgery. Maybe not. I haven't had it but this site might help you. God bless. Hope it helps you.
http://www.epilepsy.com/epilepsy/surgery.html  (+ info)

Organizing a walk to raise awarness and $ for epilepsy- walk across the united states from san fran to dc?


My friend and I want to walk across the US to raise $ and awarness to find a cure for epilepsy.How do I go about organizing and finding sponsers for an event like this? We would also nedd a SAG wagon or a support vehicle- any ideas thoughts or suggestions would help us tremendously!
45 minutes ago - 3 days left to answer.
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Contact your local chapter of the Epilepsy Foundation. They will likely have all kinds of materials available to help you.


Good luck.  (+ info)

People dealing with epilepsy, where were you able to find employment when you couldn't drive?


I have been suffering with epilepsy for approximately 6 years. I am close to graduating college and have not given a lot of thought in to where I could get a job until now. I was wondering if anyone could give me some suggestions on where to find employment. I live in Arizona and a 3 month waiting period is needed after your last seizure to be able to drive. I am usually good to have a seizure once or twice annually and my last one was a month ago. Sorry this is such a long description. Could someone give me some suggestions?
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I'm also in Arizona, but I can't really find a job either. My epilepsy is so profound that I have daily seizures though, so don't take my word as gospel. I would contact the Epilepsy Foundation of Arizona. They usually have advocates that can answer just about any question you have. As far as having a degree, your chances of finding employment should be just like anyone else's chances.  (+ info)

Do you have good advice about epilepsy depression?


My childhood friend has epilepsy. She and I have just gotten reaquainted after 15 years. She has told me a little about it. I have read that some drugs for epilepsy can cause depression and some epileptics commit suicide. She takes offense easily. She is skin and bone. She says her meds take her appetite away. She says I cheer her up. I want her to be healthy. I don't want her to be sad. I don't want to be overbearing by calling her all the time.
Long story short, I think my friend is depressed. I need advice.
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I've been epileptic for 11 years and before that I was depressed,so I know what you're friend might be going through.What your friend is saying is right,you do cheer her up,if anything,your presence is enough to make her happy.We all need friends like that in our lives,friends who for no reason at all call us or talk to us just to say Hello.Just be the best friend you can be to her,sometimes that's just enough for anyone!  (+ info)

Is there a good place I can go for epilepsy treatment in Michigan?


I currently go to the neurology center at U of M, but I want someone that specializes in epilepsy.
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You are not that far from the Cleveland Clinic... they have an incredible program for epilepsy evaluation and treatment... if you are looking for a second opinion.  (+ info)

What can set off photosensitive Epilepsy?


i was diagnosed with photosensitive epilepsy. i know the obvious triggers, like strobe lights and some video games, but what else could be a trigger?
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What beauty therapies are there for Epilepsy sufferers?


What beauty therapies (massage,facials,aromatherapy,etc) am i allowed to have as i'm an Epilepsy sufferer.I need a good pampering as i lead a very stressful life and could do with some TLC can anybody give me some useful tips and some much needed help. I can only do it on a daily basis as im not able to stay anywhere over night.

Thank you
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You can have a massage - but it's best to get a doctors clearance first, as well as it would be a good idea to have your DR refer you to a specific clinic or therapist. Good therapists know about the condition and will treat accordingly. I personally don't have any clients with epilepsy - but my instructors in school had several. Even a few therapists themselves were epileptic.

As for other sorts of pampering - again it would be wise to get a doctors clearance. But for most things, I think you should be OK.  (+ info)

Does anyone know the effects of altitude and lower air pressure on a person with Epilepsy?


My Husband has epilepsy and we are flying to estes park in Colorado. Does anyone have epilepsy and is a traveler? Can you tell me anything about your situation as it might relate to my concern for my man's health? The dr's are afraid to say anything one way or the other about this issue, i guess because there is so little known about this. I dont want to risk his health or the chance that he could have an increase of seizures, but also want him to have as normal a life as possible.
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There is actually quite a lot known about flying and having epilepsy. People with epilepsy fly all the time. I was a flight nurse for years with the military, and we transported folks with known seizure disorders. Never had one have a seizure in flight, either. Commerical airliners maintain steady cabin pressure and air, the only big difference is that it tends to be drier than ground air. Of course, that also depends on where you are flying out of. If you live in Arizona where it is dry, then it won't be a big difference. All the airlines staff get training in basic first aid, and would know not to panic even if he did have a seizure. As long as he doesn't have frequent or uncontrolled seizures, there should be no risk at all for him to fly. I assume you are going with him, and could inform the flight attendants of the situation. His risk for a seizure shouldn't be any more in the air than on the ground, really. All you need to do is make sure he's got his medic alert tag on, and inform the staff when you board the plane. After that, you should both relax and enjoy the flight and vacation. While altitude and dehydration can stimulate a seizure in some people, it isn't usually a problem on the plane. Like I said, cabin pressure is maintained to match ground pressure so altitude on the plane isn't an issue. In Colorado, he might have a problem adapting to the higher altitude and lower air pressure if you are coming from sea level. It may just take him a few days longer to adapt to it than you, so I wouldn't plan a lot of activities those first few days. He'd want to make it a point to drink a bit more than usual to make sure he is well hydrated as well. But at that point he'd be on the ground where help would be more easily available if needed. Most folks with epilepsy do just fine, and there are epileptics living in the mountains too. I would say go, enjoy the trip. He will likely have no problems at all. Worry about what happens when and if it happens. Seizures can happen anywhere, any time, so you may as well go on with life and do what you like to do.  (+ info)

What does it feel like to have a seizure caused by epilepsy?


Just wondering more about epilepsy from the point of veiew from someone who has it and deals with it day to day.
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I have epilepsy. How a seizure feels depends on the type of seizure a person is having and there are variations from person to person, as well. I have a few different kinds of seizures.
The "big" seizures I have (what people used to refer to as "grand-mal" seizures but are now called "tonic-clonic" seizures) don't feel like anything while they are happening. It's as if I don't exist while I'm having a tonic-clonic seizure. When I come around after one of these seizures, I have had one or more of the following: terrible headache, extreme muscle soreness in my lower legs, painful tongue (I grind my teeth, and the sides of my tongue get chewed on - ouch!!), short-term memory loss, confusion, etc. I am always very tired and usually sleep most of the day after a tonic-clonic seizure.
I also have "smaller" seizures. Sometimes I'll see spots and get disoriented, sometimes I have terrors where I feel as if I'm going to die (these are my worst seizures from my point of view) and sometimes I'll smell things that aren't there - like oranges or carnations or peanut butter. Those "smell" seizures don't bother me.
Fortunately, my seizure medication works very well for me. I haven't had a tonic-clonic seizure in nearly 6 years. I'm also fortunate to live where and when I do - people with epilepsy used to be accused of being demon-possesed in less enlightened times.  (+ info)

Can seizures early in life due to a high fever but not epilepsy cause frequent fainting later in life?


My sister had a few seizures during her toddler years due to high fevers. They rules out epilepsy and everything else seemed fine but since she was 11 years old shes been passing out out of the blue. Today my 19 year old sister passed out at the dinner table sitting down. I wasn't there but my mom said she was shaking and her head just hit the table. What could this be?
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It is possible, but they aren't necessarily related. Febrile seizures (seizures in young children due to a high fever) sometimes cause brain injury, somewhere around 5% of the time. It is possible that there was something done that causes her to pass out, but I don't think it would go unnoticed for 10 years.

I know different types of anemia can cause fatigue and even fainting. Have they checked that?  (+ info)

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