FAQ - Fibrosis
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How long does it take to get Cystic Fibrosis tests back?


I am pregnant and was tested for cystic fibrosis along with a million other things on the 30th of August. I was back at the doctor a week later on the 6th of August, and the doctor said my results all came back normal but the down syndrom and cystic fibrosis tests had not come back yet. On the 6th I had my pap smear and pelvic exam and yesterday on the 15th got a letter in the mail saying that my pap smear, urine, and blood tests, and quad screen all came back normal, but the box for cystic fibrosis was not checked, I'm wondering if that means I am a carrier of the disease or if it means they haven't gotten the results in yet. I'm going to call my doctor in the morning, but I'm really worried. Does anyone know how long it takes to get the results back from that test?
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I had this done back in August and it only took two weeks so it looks like someone's either asleep at the wheel and not paying attention to what info you're getting or there is some hold up. Next time you're in you should ask about it but if it came back that you were positive then I would imagine that they would have called you so your partner could be checked as well. Best of luck!  (+ info)

How old is or was the longest living cystic fibrosis patient?


How old is or was the longest living cystic fibrosis patient?
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  (+ info)

How long can you live if you have Cystic Fibrosis?


I have a friend, he is 32.

he seems to be doing ok, considering he has Cystic Fibrosis. He has the least horrible verision of this terrible disease.

I know this is really depressing, but how long can he possible live?

Are there people in their 50's with this?
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yes there are people in their 50's with it

I know one and he is a speaker at the meeting run by the trust

He has also become a father which they said he would not ever become  (+ info)

Can you develop cystic fibrosis as a teenager?


All the reading I've done on cystic fibrosis says it is a genetic disease. However, I have a lot of the symptoms of it and was wondering if it could become evident later in life? Thanks.
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It is a genetic disease, my daughter was almost nine years old at diagnosis and she had very little signs of the disease. I know several people that have been diagnosed in their 30s, 40s and recently met a nurse that was diagnosed at almost 50. It is not a one size fits all disease, it presents very different from patient to patient, even from siblings that have the same mutations. Unfortunately, the older the patient gets the more marked the disease, it is afterall a progressive illness. On the other hand those of us that are carriers may present many signs of the disease. I am a carrier and I have horrible gi(gastro-intestinal) issues, lung issues since a very early age, etc. There are other diseases that mimic CF one is Ciliac disease,

Good luck,
Anna mom of a patient with CF  (+ info)

Could my medical problems be related to my carring of Cystic Fibrosis?


I have respiratory problems asthma, pneumonia(1 time), Bronchitis (4 times) and Chronic sinusitis even after sinus surgery. I also have arthritis and joint problems. I know I am a carrier for Cystic Fibrosis but I didn't think that carriers are supposed to have any symptoms but I am only 25 and most people my age haven't had this many respiratory problems with out other causes. Any one know anything about this?
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Carrying the CF gene does not present any medical problems for yourself. It only present problems for your child if you have a baby with another CF carrier and even then, the baby only has a 1:4 chance of getting CF.

Your medical problems come from elsewhere. I'm sorry that I can't be of more assistance.  (+ info)

what is the direct biological effect of cystic fibrosis?


what is the direct biological effect of cystic fibrosis?
also, the major symptoms, and who is and/or how many are effected by the disease.
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I know some of what you're looking for, but not all of it. I know there are around 30,000 people afflicted with CF at this time. As far as the symptoms, it can vary but the disease itself Cystic fibrosis (CF), also called mucoviscidosis, is an autosomal recessive hereditary disease that affects the lungs, sweat glands and the digestive system.

What I would suggest for you since you probably do have more questions is to go to www.cysticfibrosis.com and check out the FAQ section. You can find out so much there. Good luck! I hope that helps!  (+ info)

In Regards to Cystic Fibrosis, does anyone know if Kefir can help the disease?


I am a 26 year old male who has been diagnosed with Cystic Fibrosis (pulmonary disease) at infancy and have recently learned about Kefir and was wondering if anyone has any information about the relationship between the two? Thank You, also if anyone has any questions about CF please feel free to ask!
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Cotton Top,
The reason that kefir is advertised as being beneficial for cystic fibrosis is because in patients with cystic fibrosis, many of the pancreatic enzymes needed to break down and absorb fats in the intestine are absent, causing a condition known as “malabsorption.” This is the inadequate absorption of nutrients from the intestinal tract. It is the result of an underlying problem that causes the digestive process to stall. Partially digested particles pass through the gastrointestinal system without supplying important nutrients to the bloodstream. Kefir is a cultured, enzyme-rich food filled with friendly micro-organisms that help balance your "inner ecosystem." More nutritious and therapeutic than yogurt, it supplies complete protein, essential minerals, and valuable B vitamins. Kefir culture is unique among fermented milk starters in that it is composed from a mixture of friendly bacteria and yeasts that harmoniously co-exist. The microbes break down the lactose in milk and the other chemical components, contributing to the taste and transformation of milk to Kefir. Both kefir and yogurt are cultured milk products but they contain different types of beneficial bacteria. Yogurt contains transient beneficial bacteria that keep the digestive system clean and provide food for the friendly bacteria that reside there. But kefir can actually colonize the intestinal tract, a feat that yogurt cannot match. Kefir contains several major strains of friendly bacteria not commonly found in yogurt, Lactobacillus Caucasus, Leuconostoc, Acetobacter species, and Streptococcus species. It also contains beneficial yeasts, such as Saccharomyces kefir and Torula kefir, which dominate, control and eliminate destructive pathogenic yeasts in the body. They do so by penetrating the mucosal lining where unhealthy yeast and bacteria reside that cleans and strengthens the intestines. Hence, the body becomes more efficient in resisting such pathogens as E. coli and intestinal parasites. Kefir's active yeast and bacteria provide more nutritive value than yogurt by helping digest the foods that you eat and by keeping the colon environment clean and healthy. Because the curd size of kefir is smaller than yogurt, it is also easier to digest, which makes it a particularly excellent, nutritious food for babies, invalids and the elderly, as well as a remedy for digestive disorders. The information provided here should not be used during any medical emergency or for the diagnosis or treatment of any medical condition. A licensed physician should be consulted for diagnosis and treatment of any and all medical conditions.


Hope this helps
matador 89  (+ info)

what are the bumps on my husbands upper leg that the doctor said was neuro fibrosis or ruptered nerve endings?


there are bumps on my husbands leg above the knee and the doctor said it was neuro fibrosis ,ruptured nerve endings. they are small raised bumps.
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Do you mean neurofibromatosis?  (+ info)

Help me find out more about two girls in a Cystic Fibrosis video?


I watched a video in science about two little girls with Cystic Fibrosis. The video was made in 1996, and the girls, Lizzie and Ali, should now be 15 if still alive. I am very interested and want to know if they are still alive and I really just want to find out. It is killing me. I googled it and everything, please help me. I just want to know because the video made me really feel bad for the family. Thanks for the help.
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I don't know, I'm coming up empty as well. Have you looked for the video? Do research on sites like myspace.com and facebook.com to see what you can find.  (+ info)

Is it ok to have cats around someone who has Cystic Fibrosis?


My granddaughter has Cystic Fibrosis and is 15, she has very low lung function and had to be in the hospital recently because of a bad infection, she's often been in the hospital. She's going to be staying with me for a couple weeks, I will take care of her while my daughter goes on a trip she has to do. Is it ok to have cats around her? I got three cats recently. Is there anything else I should be particularly cautious/careful about while she's here?
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Well I would suggest having someone else take care of the cats for a little while.

The fur may irritate the lungs, and your granddaughter has enough trouble breathing as it is.

Maybe ask her mother, I'm sure she knows more about what the daughter can handle and be around. That's assuming that she's the one who accompanies her daughter to the doctors. Whoever regularly cares for her or a doctor is the best person to ask.  (+ info)

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