Does anyone know of any support groups of vascualr tumors specifically epithelioid hemangioendothelioma?
I am looking for both online and traditional support groups dealing with this particular topic. I am looking to do my dissertation on this particular topic. Any help would be appreciated.
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There are some message boards and sites specific to the disease:
H.E.A.R.D Support
http://www.heardsupport.org/
Epithelioid Hemangioendothelioma
http://www.cancersociety.com/forum/viewtopics.cfm?Forum=36
Rare Cancer Hemangioendothelioma
http://adult.rare-cancer.org/hemangioendothelioma.html
Survivor Support Story: Epithelioid Hamangioendothelioma
http://survivor-support.rare-cancer.org/adult-stories/epithelioid-hemangioendothelioma.html
I've come across the disease while researching Epithelioid Sarcoma. the two share a similar name but are considered different diseases.
And, since you asked for other types of support. Epithelioid Hemangioenothelioma is considered to be a type of soft tissue sarcoma. You can check out the Sarcoma Alliance:
http://www.sarcomaalliance.com/
And, if you are seeking general support you can try Cancer Care:
http://www.cancercare.org/
Best to you. (
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is there any treatment for epitheloid hemangioendothelioma?
please give me the answer as soon as possible..
its in both lobes of my liver..
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You did not mention what type. Ask your doctor. (
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can anyone tell me about Epithelioid hemangioendothelioma (EHE) of liver..is there any cure for this..?
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