i have ichthyosis vulgaris (milder form), can anybody tell how to manage it on day-to-day basis..?

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Exterior areas of my arms and legs have more pronounced signs of scaliness...what products i can use to clear the scaliness and to maintain normal skin for at least 8 hours a day...pls provide any product names...
If you know what you have, chances are that you already know what these people are telling you. I myself have Icthyosis and I deal with it using a lotion called Lac-Hydrin. It's worked for me for a long time and accelerates the peeling while moisturizing and concealing the affected skin at the same time. Once the peeling is over, my skin can stay clear for up to two weeks at a time. I don't know if it's still a perscription formula but if it isn't I think you can order it online.

PS. The stuff I use is 12 percent lactic acid  (+ info)

What is Harlequin Ichthyosis??

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why arent people aware of this rare genetic diesease? how does it start and can you get this diesease anywhere?? help
SOMEONE PLZ HELLP
Its a disease that got born with, its really really rare for a baby to get it. they have like cracked skins and not many survive for long  (+ info)

Do I have Ichthyosis? If not, what do I have?

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Hi,

At the start of last year sometime, I developed dry skin around my groin area (just outside of my knicker/pany line). It then spread a little higher up around my hip bones (symmetrical on each side). It looks quite scaly and I thought it might have been a side effect from losing weight - I thought that it looked kind of like the skin had been stretched. But I only dropped 3 dress sizes - so it's not like I was obese and dropped down to skinny and was left with loads of saggy skin.

Anyway, it has got worse ever since and now covers my whole stomach, sides, under arms, bottom of breasts and has recently started on my arms. It has recently creeped up my back (only the bottom though). The skin is extremely flaky on the sides of my stomach - it doesn't seem as flaky down the centre of my stomach any more. It's not flaky on my chest. My legs above the knee are quite dry but don't flake that much.

I went to see a skin doctor and he said that I defiantly had a skin condition rather than just dry skin. He said he thinks it could be Ichthyosis. He said it is not Eczema.

At the moment I have had to try to exfoliate the skin away with a brush once a week, then have my shower as normal. I shower once a day and then lather myself in Oilatum shower stuff each time then rinse off and pat dry with a towel.

I have been using Eurcerin Dry Skin Intensive 10% w/w Urea Treatment Lotion on the affected area after my shower - it does help but I feel like it is just sticking my skin together rather than treating me. It's also very oily and makes my skin feel very clammy and uncomfortable. If I have a shower and don't use these lotions - my skin is very flaky - to the point that when I take off my t shirt in the morning my skin starts whooshing up like a whirlwind! Gross!

I am a 27 year old female and as far as I know no one in my family has any skin problems.

I am worried because I have read that Ichthyosis not caused by genetics, known as acquired ichthyosis, is very rare. This type is said to usually start in adulthood and is usually associated with other internal diseases, such as cancer, thyroid disease or chronic renal failure. Do you think that I have one of these problems? I have had quite a few none-related blood tests within the last year and they have come back normal, apart from the hormone blood test which showed I had low oestrogen levels. Could low oestrogen levels be related?

Is there a cure for my skin? I don't understand why it suddenly started last year when I have never had problems before? I have been to the doctor about it but as usual they just try to sell you a load of creams rather than try to find out what it is and if it can be cured.

Could diet be a factor? Could putting a filter on my shower water help? Any other ideas? Could colonic irrigation help? Could washing powder be a factor?

I hope somebody out there can help, as it's getting quite upsetting now.

Thanks for your time.
I've seen ichthyosis develop in an adult without underlying medical problems. We tried a few things, and am-lactin (ammonium lactate) cream seemed to help a bit, but definitely hard to treat. Thankfully, it never involved his face, just arms and legs.

This sounds pretty disturbing to you. Did the dermatologist take a skin biopsy? If not, I'd ask for one or seek a second opinion!!  (+ info)

i was researching a disease called harlequin ichthyosis?

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and i found out it's a genetic desease that happens every two hundred thousand years so i asked myself hey it could lead us to what killed the dinasours what i really want to know right now is where did it come from exactly how did it form?well u probably can't answear that so check out this video

http://www.youtube.com/watch?v=oLmhGb4ZdZo&mode=related&search=
http://ghr.nlm.nih.gov/condition=harlequinichthyosis
every two hundred thousand years from a certain family
I think you mean every 200K BIRTHS. It is actually around 1 in 300K births. It is rare, but not that rare. It is more common in families where there is psoriasis. Most of these children die within hours of birth. A few survive, but it is a horrible life, terribly disfiguring.  (+ info)

is there any lotion to fix ichthyosis (dry skin)?

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i cant find nething at all
One of the best treatments for ichthyosis is Vaseline (100% pure petroleum jelly) because it contains lecithin and any lotion/cream that contains lecithin can help make skin softer. To help your skin absorb the lotions better, scrub away excess dry skin with a lava/pumice stone in the shower and apply baby lotion immediately following (right as you get out of the shower). Also, creams tend to help moisturize skin better than lotions (as they are thicker), so using a cream in place of normal lotions might help. If you find that your skin is still exceptionally dry, try Epilyt
(Information can be found here: http://www.rxlist.com/drugs/drug-7597-Epilyt+Top.aspx?drugid=7597&drugname=Epilyt+Top and here: http://www.ichthyosis.com/Body_Cream_Hints.htm)  (+ info)

how is ichthyosis inherited?

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is it sex-linked recessive gene? autosomal recessive? autosomal dominant?
there are different kinds of ichthyosis; some are aut. dominant, others, recessive, others Xlinked. So, you'd have to specifiy which type you're talking about.  (+ info)

Any treatment for Ichthyosis, fish skin, dry and scaly skin?

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Hi All,

Please suggest some treatment for Ichthyosis, fish skin, dry and scaly skin.

It's a disease in which skin becomes very dry, looks like fish scales. It itches severely (especially in winter). Doctors say there is no cure. But we as a patients know what is it's pain?

I read somewhere, fish oil, cod liver oil may help. I need some more suggestion.

Please suggest.

Any help will be appreciated.
Thanks
I have the condition called Keratosis Pilaris, or KP. Some people call it chicken skin. It's like I have goosebumps all the time on my arms. I do take fish oil supplements, and I use one of those shower pouf things to scrub the skin gently. I then use a lotion with alpha hydroxy acids in it. The scrubber and lotion help the cells turn over faster, so that younger fresher skin takes its place.

Your condition is more complex than my chicken skin, so if you haven't seen a dermatologist, I'd put that at the top of the list. Prescription creams are going to work better than anything you get in the drugstore.

Keep your chin up, and good luck.  (+ info)

Is it possible to have a normal healthy child after I have had a child with harlequin ichthyosis?

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I became pregnant with my first child last year, I was so nervous to give birth and the most of my worries was hoping my baby had all his fingers and toes. When I went into labor I was in shock when I came to find out that my child was sufforing from one of the rarest diseases called harlequin ichthyosis. He passed within 3 days and I am completely devestated. I am hoping I will be able to have normal children, is it possible? We never seen this coming....
Harlequin ichthyosis only occurs when both parents carry the same defective gene, the chances of this are one in a million. However, the chance of these parents producing a harlequin child are 1 in 4. Despite these odds, the Betts chose to have a second child. Sadly they could not defy the odds and Hannah was born, also with harlequin ichthyosis but with the added complication that she also has cerebral palsy.

I got this from rhis web site hope it helps  (+ info)

what is ichthyosis? i have this i dont know what to do?

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  (+ info)

does anyone know what ichthyosis is? and how to cure it?

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Ichthyosis (ick-thee-o-ses) is the name of a rare genetic skin disease (there are actually several different types of ichthyosis). Since it's an inherited disease, it isn't contagious--you can't "catch" it. Ichthyosis causes the skin to build up and scale, causing it to be extremely dry, amongst other problems.

Most types of ichthyosis are present at birth, and are life-long. Currently, there is no cure, only treatments.

People with ichthyosis and their families know that finding each other, and finding good information about ichthyosis, isn't easy. This site strives to improve the ichthyosis community's resources, raise awareness and support, and provide an easy-access meeting place.  (+ info)

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