FAQ - Leukodystrophy, Metachromatic
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can u give me advise?


My brother who is seventeen years old has a disease called Leukodostrophy from birth. In this disorder the victim's brain is not covered with a chemical but those who are normal has a chemical around their brain. The most common symptom of a leukodystrophy disease is a gradual decline in an infant or child who previously appeared well. Progressive loss may appear in body tone, movements, gait, speech, ability to eat, vision, hearing, and behavior. There is often a slowdown in mental and physical development. Symptoms vary according to the specific type of leukodystrophy, and may be difficult to recognize in the early stages of the disease.please people help me there's no cure to this disease .what can I do that my brother dont cry everyday because of his particular disease
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Google: "chat sites + forums + support groups; leukodystrophy" and check them out; refer him to the better ones. Groups, at Yahoo, Myspace, & Google may have some, and http://dailystrength.org Also try http://www.meetup.com/
The following aren't cures, but may slow the progress of the disease more than otherwise: (you, too, should consider using the Omega 3 & vitamin D3):

OMEGA 3:
Take at least 4 Omega 3 fish oil supplements, and preferably at least 1.5 grams of fish oil daily: (certified free of mercury) it is best if consumed with an antioxidant, such as an orange, or its FRESHLY SQUEEZED juice. If vitamin E is added, it should be certified as being 100% from natural sources, or it may be synthetic: avoid it!
Females may benefit by balancing the DHA, & EPA versions of Omega 3 in fish, or krill oil with ALA flaxseed oil Omega 3, or at least one heaped tablespoonful of ground flaxseed, daily. Vegetarians & vegans: Google: "Omega 3; algae; supplies" and use it with flaxseed. There is now a new version of krill oil and evening primrose oil especially formulated for females via mercola.com

View: http://articles.mercola.com/sites/articles/archive/2008/12/16/my-one-hour-vitamin-d-lecture-to-clear-up-all-your-confusion-on-this-vital-nutrient.aspx Go to a doctor and ask for a 25(OH)D, also called 25-hydroxyvitamin D, blood test. When you get the results, don’t follow the typical “normal” reference range, as these are too low. The OPTIMAL value that you’re looking for is 45-52 ng/ml (115-128 nmol/l)". The company which tests your levels has to be one of those using the correct form of test, and this topic is addressed via the searchbar at Mercola.com - "vitamin D3; testing". 59% of Americans are deficient in vitamin D3. Google: "vitamin D3; natural sources; supplies". Dr. J. Cannell, at http://vitaminDcouncil.org advises that the co-factors required for optimal absorption and utilisation are good levels of magnesium, zinc, boron, and vitamin K2.

The best dietary source of vitamin K2 is natto, a fermented soy product (ONLY fermented soy products are suitable for females!). I use http://www.xtend-life.com/product/Total_… as it contains all of them, but it needs additional vitamin D3. They have regular, and premium varieties for women (mercola have a good quality natural multivitamin + minerals, although it doesn't state whether it contains vitamin K2). The only American vitamin D3 product that I can recommend is from mercola.com but I prefer the high quality: http://www.healthpost.co.nz/Supplements/Vitamins/Vitamin_A,_D_&_K/NLD/Vitamin-D3-1000iu-Plus-Boron-And-Selenium.html or one of the others, if unavailable.

Vitamin A and vitamin D3 compete for absorption using the same metabolic pathway, so I no longer recommend cod liver oil as a source of either. Take the 2 separately, at least a few hours apart, if using both, but most people don't need vitamin A if eating a reasonably healthy, balanced diet. The Omega 3 and vitamin D3 will act as preventatives for a wide variety of disorders and diseases, both physical and psychological, as well as boosting your immune system, and are 2 that most people in Western countries are deficient in, so I suggest that you recommend them to others as well.

Lecithin (phosphatidyl choline). A phospholipid found mostly in high-fat foods. It is said to have the ability to improve memory and brain processes. Lecithin is necessary for normal brain development. Capsules are available, but many people prefer the soft lecithin granules. These are a nice addition to fruit juice smoothies, adding a thicker texture. Lecithin is oil-based, and it gets rancid easily. It should be refrigerated (from health food stores).

Practice a relaxation method, daily, and when needed, such as: (free) http://www.drcoxconsulting.com/managing-stress.html or http://altmedicine.about.com/cs/mindbody/a/Meditation.htm or http://www.wikihow.com/Meditate or Yoga Nidra, (no flexibility required) at http://your-mental-health.8m.com/blank_11.html They enable awareness, and a way of being, without emotional suffering, and help you through the more difficult times in life.  (+ info)

Possibility of treatment for Metachromatic Leucodystropy by Homeopathic medicines.?


My 3 daughers were born normal. At the age of 5 degenerative disease discovered and diagnosed as Metachromatic Leucodystrophy and now they are handicapped. Still I am trying to explore the possibility of treatment. If further details are needed I have complete summary and can be sent who wants to help us.
I will be greatful for any kind of help or guidance extended.
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Homeopathy needs the exact details of how the patient feels and reacts It treats the patient not the disease so if you care to post her complete details an appropriate Homeopathic remedy can be prescribed for her giving the name of the disease is just the tip of the iceberg. How the patient actually feels is how Homeopathy goes about treating and curing them not by the name of the disease :-)
Take Care and God Bless !  (+ info)

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