Lewy Body dementia - Does anyone know of any treatment or cure for this disease? my dad has it he is only 68?

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If any member of your family has Lewy Body I would be happy to hear you.
Hi Mr Gaskell,

I'm sorry to hear about your dad, he is still young. The general prognosis for Lewy Body Dementia is not good. I don't know the symptoms your father is now manifesting, whether or not he has parkinsonian symptoms yet but there isn't really much help from conventional medicine.
http://www.mayoclinic.com/health/lewy-body-dementia/DS00795

Have there been others in you family who have been diagnosed with similar symptoms even if the condition was called by another name? If so, you and your dad might benefit from a change of diet to begin with.

While I don't have first hand experience with LBD, I do have some experience with Parkinson's disease and what we hope is a transient form of dementia which we are trying to balance with supplements and medication adjustments. Before the sudden onset of new symptoms which have not yet been fully diagnosed - we're eliminating causes now - I switched my husband to a gluten-free diet. (Well, as low as possible because he has a limited sense of taste and almost no sense of smell and sometimes I have to pull out an older condiment.) That seemed to help with some sleep issues but now there has been a turnaround. We may discuss a return to Amantadine as a temporary measure.

Here is a link to several other links on Gluten sensitivity. I would mention that there are many adjustments you can make in supplements and diet but remember that if you do so, you might want to discuss each with your father's physicians and most important - keep a journal.
http://jccglutenfree.googlepages.com/

We made a change last night when I simply switched the Vitamin B complex to bedtime. I think that it did make a slight difference but I am thinking that I need to add separate B2, B5 and B12. Some say to try Vitamin E therapy. Other suggestions for LBD would be essential fatty acids, antioxidants which we already use for his PD.

What I did find was an inspiring blog which I suggest you read. The writer posts regularly in journal form and has made a change in her LBD mother's diet from processed foods to gluten-free and healthy, natural foods. You will find the information in the blog more hopeful and inspiring than any other site:
http://backdoorlogic.blogspot.com/2009/12/day-insurance-company-called.html
Just navigate through the site and make notes.

There are other journals online and I think there is information that you can use here as well:
http://www.lewybodyjournal.org/

Still, you need to read mainstream information for new developments:
http://www.lewybodydementia.org/
http://www.lbda.org/feature/1942/an-introduction-to-lewy-body-dementia.htm
http://www.dementiacarecentral.com/aboutdementia/lewy

I would suggest registering at some of these sites so that you can participate in the discussion forums. You may find answers to questions you hadn't even considered as questions.

Learn as much as you can about conventional and alternative treatments of LBD because someone is going to have to discuss treatments with the doctor and doctors can often learn from patients and their families. Take printouts with you when your dad next has a doctor's appointment. Be aware of the downsides to certain meds. Some might make things worse.

Symptom manifestation can change from day to day but it is best to have a routine and a safe residential site. If your dad has trouble with balance, make sure he has at least one cane. Try different styles. Make sure there is a shower seat and a safe grab bar in the tun/shower area. The last thing your dad needs is a fall.

Look into the caregivers available so that the primary caregiver gets relief. Look into the legal aspects and make sure that you are on the list of people who can discuss your dad's medical issues with his doctors.

Because I am simply at a loss both for you and for the dementia symptoms here, I will suggest an alternative site. We've already been trying some of these as separate supplements but it will give you an idea. Read all you can read before you buy anything. Check for interactions with medications or dosage times. Supplements may be milder but they act on the body in similar ways. More often the effective ones wil be the building blocks for the needs of the body. Just make sure they are building the right things:
http://alzheimers.emedtv.com/alzheimers-articles-a-to-z-page-10.html
http://www.raysahelian.com/dementia.html

Part of your dad's medical team may need to be a geriatric psychiatrist or neuropsychiatric specialist

Don't forget the value of notes around the house as reminders for your dad for day to day tasks. The more you can help him to be independent, the better he will feel about himself. I need to take a tip from the good advice about helping the loved one to feel better about him or herself because that may actually make a subtle difference.

I apologize for the rambling nature of this answer - As I answer you, I am also caring for my husband who is currently exhibiting several symptoms of dementia.

I just found a good link for carevigers of dementia patients:
http://www.caregiver.org/caregiver/jsp/content_node.jsp?nodeid=391
You will find some excellent information at this site and it should be read by everyone in the family of a dementia loved one.  (+ info)

Does anyone out there have a friend or family member suffering with Lewy Body Disease?

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My mother was diagnosed recently------ a type of dementia Has anyone heard that it can effect certain ethnic groups?
If it's information you are looking for, try these sites:

http://www.mayoclinic.com/health/lewy-body-dementia/AN00522

http://www.emedicine.com/neuro/topic91.htm  (+ info)

What is lewy body disease?

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My mother is dying from this disease.
http://www.helpguide.org/elder/lewy_body_disease.htm

Hope it helps my prayers are with you and your family.  (+ info)

lewy body disease. PLEASE ANSWER!!! ?

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My step grandfather has lewybody disease. He is 80 years old and i know NOTHING about lewybody. All i know is that when i see him he is shakey and you cant understand him. Can you give an estimate on when he will die because i really want him to be peacful he also has always had a bad heart. MEanwhile my nana is seeing dead people and telling us she is dying does that mean she is?
LBD,is an illness that may be present with Alzheimer's or Parkinson's disease.This is high among the elderly people. This is a neurodegenerative disorder associated with the brain, this may get alot worse as it goes on. Your Grandfather should be on meds for this and most likely is and some of his actions may stem from the meds he is taking.With such a disease a this its not possible for anyone to give a time frame for the disease to kill.The prognosis is different for each person and may be affected by his general health this progresses at varying rates for each individual.
Some have said this may last for 5-8 years (not for sure) this is after the disease has set in. Remember this is a disorder that progresses slowly over years not days or months.He may be getting Physical therapy, or Speech therapy or Occupational therapy may be having Psychotherapy to help with emotional behaviors,.
For your Grand Mother she may be seeing dead people but this doesn't mean she or your Grandfather are dying any time soon.  (+ info)

Is lewy body's disease hereditary?

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my grandfather on my mother's side had it i was just wondering if i was at risk.
  (+ info)

Are these likely signs of Lewy Body Dementia?

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My Grandpa is 77 years old and he is showing symptoms such as shuffling gait, low volume speech, frequent falls, ataxia, as well as slow but progressive cognitive function, most likely dementia. He remembers who his family is when we visit him, but has trouble concentrating and tries to leave conversations without any major explaination until my father asks him what he wants. It usually takes about 4 times asking "where are you going" until he tells us. My grandpa is in a wheelchair now. Are these signs and symptoms of a likely diagnosis of Lewy Body Dementia?
here is a great link to LBD;
http://www.lbda.org/category/3438/symptoms.htm

My mom has vascular dementia--she is the same age as your grandpa.
there are various types of dementia (including Alzheimer's disease)  (+ info)

What disease causes the body to quit producing vitamin B resulting in blood clots on the lungs?

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Blood clots on lungs and the body is not producing vitamin B. I can't recall the disease but heard of it. Any ideas?
A lack or a deficiency of Vit B 6 may be related to seizures, chronic pain, depression, headaches and, Parkinsons's Disease.
Basically, a deficiency of Vitamin B6, folic acid or, Vitamin B 12 may increase your level of homocysteine, an amino acid normally found in your blood.
An increase in homocysteine is an independent risk factor for heart disease & stroke. High levels may damage coronary ( heart) arteries or make it easier for ** blood clotting cells( platelets) to clump together & form a clot.
Here are two websites that are quite informative:
http://www.cure4cancer.com/products/b6.html
http://healthlink.mcw.edu/article/985640580.html
I hope that this info is helpful.
As far as any specific disorder ( or a disease name) that causes blood clots on the lungs due to a lack of " vitamin B ", I'm uncertain as to such a known, specific disorder.  (+ info)

What disease are related to the skeletal or muscular system of the body?

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Use an internet source to provide some information about a disease related to the skeletal or muscular system of the body.
Answer the following questions:
1. What is the disease and what effects does it have on a patient.
2. What is the prognosis?
3. What can be done to cure or treat symptoms of the disease? (example: medications, therapy, amputation--yikes!)
Check out DMD
1. Problem: defective gene resulting in abnormality of the muscle cell membrane scaffolding protein dystrophin. Result progressive muscle wasting and weakness...to the point of wheel chair confinement and eventually to the point where your respiratory muscles aren't strong enough to breath
2. There's no cure. Death by their 20's
3. No meds. rehab therapy, light exercise to promote strength and stamina. Will need a wheel chair. May need surgeries to prevent permanent contraction of the tendons (contractures). May need ventilatory support

http://www.nlm.nih.gov/medlineplus/ency/article/000705.htm  (+ info)

What disease has body contortions as a symptom?

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Im looking back at the demonic possessions in Europe during the 1600s. There were so many of them, and many of those possessed were said to have cursed excessively, violent, shout blashpemies, but across the board, obscene body contortions were common. What disorder/disease would such be?
Multiple sclerosis
Paraplegia
stroke
nerve injury
brain injury
late stage alzheimers
any disease that would cause demylention of the nerves
cerebral palsey
Muscular dystrophy
Thats all that I can think of off the top of my head. Very tired ;)  (+ info)

What congenital disease causes organs not to be attached to the body?

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This baby was born (alive) with its internal organs not attached/anchored inside its body. These organs had in utero migrated up into the chest cavity, leaving the baby with underdeveloped lungs and heart and requiring extensive surgeries immediately after delivery to attach the organs in their proper places. Subsequently the organs detached themselves again and more surgeries were required. This child has finally died at six months of age after the organs again detached. Can someone please let me know the name of this disease, which causes such a tragic outcome? Thank you for your time!
Diaphragmatic hernia A failure of the diaphragm to form completely, leaving a hole. Abdominal organs can protrude through the hole into the chest cavity and interfere with development of the heart and lungs. Usually life-threatening and requires emergent surgery.

http://www.dshs.state.tx.us/birthdefects/risk/risk2-diaphragmhernia.shtm
http://www.healthsystem.virginia.edu/uvahealth/peds_hrnewborn/dph.cfm  (+ info)

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