Do i need to explain to everyone that i have Myasthenia gravis??
i am a 22 year female with myasthenia gravis 2 years ago. I'm getting sick and tired of myself for not being healthy enough and quite embarass to look at people straight in their eye for my left eye is cross which make me see double evey time i look up. i just want to be back to be normal, even with medicine, it not helpng at all! I'm still young and this illness is making me losing my social life. What kind of health insurace out there that approve me for this illness? are there any alternative medicines, herbal treatment beside western meds?
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I was diagnosed with MG at the age of 46 and I am now 57. No matter what the age, if still affects your life for I was in the prime of a career and life. It came on me with droopy eyes 3/4 shut, drunk walk upon taking a walk, and I looked like I had a stroke on right side of my face. I was diagnosed by a positive test on the AcHr test conducted by a neuroopthomoligist. I didn't have insurance at the time but the Muscular Dystrophy Association linked me up with an MDA clinic which my visits were no charge. I did have my thymectomy 7 months after the test and 4 months after the MDA doc did the final confirmation from a strenuous workout. I did improve after the thymectomy but went downhill real bad to the point I ended up on the ventilator 2 times in May 1997. I do contribute that to not enough aggressive treatment. I was first put on prednisone at high doses and then later my neuro near home took from June 1997 to March 1998 to put me on Imuran, an immunsuppressant. It took to October 1998 to kick in and I felt great. I came off prednisone and was doing well. I did allow another neuro to take me off Imuran and I crashed very severely in July 2002. Now I am working part time which is set by my neuro. I will never work full time again and I get my SSD. It was rough for I got to the point I was a ragdoll. My advice to you is to treat this disease very aggressively. Mestinon wasn't enough. As you find the right combination of meds, you can lead a near normal life. I did go through the emotional part for the love of my life of 6 years did leave once I was diagnosed but that was his own ignorance. My life has changed tremendously for now I take care of me and have set boundaries in my life. I do know different people get IVIG's and instead of Imuran take Cellcept. Also most mgers do take an antidepressant to allow you to stay emotionally stable through the ups and downs of this disease. I keep the philosophy that if it is broke, fix it so DO NOT give up. I have fired 5 docs in my MG life and I have a great team right now. Also I know of women that have given birth but with the supervision of their neurologist. I recommend you to join a support group online at yahoo which is bettesmyastheniagravissupport. You will learn alot and talk to people that do understand what you are experiencing. Anytime you want to talk, email me:
[email protected] and I will help you as much as I can. Go out and reach for that wellness that is there and don't settle for less!!
Good luck and God Bless (
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What yoga poses are good for myasthenia gravis?
Yoga as any other kind of exercise is not helpful for MG. It is in no way a treatment and the only benefit could be mental relaxation as long as the body does not get tired. (
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What is Dyemilinating disease & myasthenia gravis and its cause?
Demyelinating diseases are conditions in which a covering over the long processes of neurons deteriorate. It's usually an auto-immune process, which means that the person's immune system attacks part of their own body causing the nerve cells to not work properly. The most well known demyelinating disease is multiple sclerosis.
Myasthenia gravis is also an auto-immune disorder, but in this case the immune system directs its mis-guided attack at the point where neurons join with muscle cells, causing weakness.
So, to wrap it up, demyelinating diseases (with some exceptions) and myasthenia gravis are both auto-immune disorders, caused by the immune system attacking the body rather than pathogens.
Extra info for Laurie M: Most people get some atrophy of the brain as they age, so that's not necessarily an abnormal finding on your mom's MRI. It's also pretty difficult to say definitively that any lesion on an MRI is a demyelinating lesion, because these lesions look a lot like other problems you can have in the brain, too. Some types of dementia have specific patterns that can be seen on MRIs, but others don't have any visible structural changes as all. Demyelination isn't usually associated with causing dementia to my knowledge. The rate at which dementia progresses depends a lot on what type of dementia it is. I know those are some pretty vague answers, but without being to see the scans and know more specific information it's difficult to provide better answers. (
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Can you get more information on people with Myasthenia Gravis it is a rare disease.?
I need to know more about this disease.
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My sister died of Myasthenia Gravis. It is a basterd
http://www.myasthenia.org/amg_whatismg.cfm (
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how do i overcome myasthenia gravis?
i was correctly diagnosed with myasthenia gravis 2 years ago and now i am 24. during my time of suffering, i quit my fulltime job and hope to work at home because the disease take everything from me that i use to be involved in. i cannot speak clearly, look people straight in the eyes, help myself up when i need because everyday i feel so weak and with medicines, it still not really helping. as days gone by, i pity myself with such a low life and low bank account. everything i want to do, i cannot do no more. i was the provider for the family, now i have to watch my dad work day and night trying to find enough money to support a family of 6. i feel so disapointed that i cannot help my family even with a college degree. i was lucky to find a legit work at home job where i can use my skills but it's no use since i feel weak everyday and so i can't really do my job. what should i do to be stronger and able to get rids of this unwanted disease? sorry to share my pity story.
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I was diagnosed with Myasthenia gravis in July of 1998 at age 22 so I understand exactly what your going through. What I can tell you is that you have to take care of yourself. My family does not understand at all the weakness I experience or how it feels to not be able to control your body. It can be disheartening but it could always be worse. Remember that it will get you through many a day. You can overcome this setback by thinking positive. You can't control anything but your thoughts so concentrate on seeing yourself healthy and you will be. Also find a neurologist that has some knowledge of Myasthenia gravis. It will get better. (
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I'm looking for someone who has or has dealt with myasthenia gravis?
I'm doing a report for my neurological conditions and I have to interview someone that either has MG or has cared for someone with it.
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I have cared for many patients with MS .... (
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Is Myasthenia Gravis a precursor to more serious neurological diseases?
It is not a "precursor" to more serious neurological diseases, but it can be a serious disease in itself. What it can indicate is that the person with MG may have a higher chance of having other autoimmune diseases, such as Lupus and Rheumatoid Arthritis. I have myasthenia gravis, and it's not a form of muscular dystrophy, but it is a neuromuscular disease, which is why the MDA supports research for and patients with MG. MG is serious and can be life-threatening. (
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How does myasthenia gravis affect muscle?
In myasthenia gravis, your body makes antibodies that target a receptor on your muscles. Normally, when your brain sends a signal to move your muscles, a chemical called acetylcholine (ACh) is released from your nerves, and stimulates the receptors on your muscles, telling them to contract. In myasthenia gravis, these receptors are blocked by the antibodies (ACh cannot bind to the receptor), so the chemical signal is not transmitted from your nerves to your muscles.
If you want a more comprehensive explanation, check this out:
http://en.wikipedia.org/wiki/Myasthenia_gravis#Pathophysiology (
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My husband is taking mestinon, methotrexate, and prednisone for Myasthenia Gravis?
I cannot find any info. as if this will hurt the baby in the long run or not. I am 5w 3d pregnant. Any insight will be greatly appreciated?
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What your husband does has no affect on your baby. If the sperm was motile and was able to fertilize an egg, then odds are it was perfectly fine and your baby will be too.
Talk to your doctor for reassurance.
Good luck, and congrats! (
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How is Myasthenia gravis diagnosed?
Would it be found by a checkup with the neurologist, CBC, and chest xray?
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Here is a simply great reference on myasthenia gravis. "How is m.g. diagnosed?" is about half-way down.
http://www.ninds.nih.gov/disorders/myasthenia_gravis/detail_myasthenia_gravis.htm (
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