FAQ - Neurofibroma
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how can neurofibroma patient be treated?, and wat r the effects?


is there any treatment for neurofibroma [tumour ,soft, fleshy growths on or under the skin] . wat will happen to a neurofibroma patient ? like wat sufferings he has to undergo
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Some people have only 1 or few neurofibromata. and, THEY MAY BE ONLY ON THE SKIN.
These can be surgically removed.
There is another condition called Multiple Neurofibromatosis.
In such people there may a very large number of small nodules on the skin and in the nerves inside the body.Sometimes even the optic nerve may be affected causing abnormalities of vision.In them necessary intervention has to be done depending on the signs and symptoms

There is no drug treatment for this condition.

In the latter group (multiple) the prognosis is unpredictable and depend, on what nerves are affected. When nerves in important organs like the brain are affected and if the tumours grow, some diseases can occur due to effects of pressures. They should get a medical assesment done by a specialist

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please help I have a rare cancer called neurofibroma sarcoma. What are the chances my kids can get it?


Soft tissue sarcomas have been linked within families, so it is hypothesized that neurofibrosarcoma may be genetic, although researchers still do not know the exact cause of the disease. Evidence supporting this hypothesis includes loss of heterozygosity on the 17p chromosome.so if researchers think it to be genetic there are chances your kid might acquire it.  (+ info)

can any one tell me that is there any treatment of neurofibroma.?


my uncle has Nero fibroma since childhood. if someone know any treatment of it by any line or method of treatment.
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Here is a good website with some information about this disease.

http://www.nlm.nih.gov/medlineplus/ency/article/000847.htm

http://www.google.com/search?q=neurofibroma&sourceid=navclient-ff&ie=UTF-8&rlz=1B3GGGL_enUS213US214

http://images.google.com/images?q=neurofibroma&sourceid=navclient-ff&rlz=1B3GGGL_enUS213US214&um=1&ie=UTF-8&sa=N&hl=en&tab=wi


Neurofibromatosis is a heridtary disorder, so if your uncle has it, you may want to to get your children checked for it. Sometimes the growths can be internal and cause kidney problems, learning disorders, or curvature of the spine.

There is really no treatment, unless the growth is affecting an organ or causing pain or disfigurement and then they may try to remove it sometimes. Here is a photo of a man with SEVERE neurofibromatosis growth of his face, which affected his ability to eat and function normally.
There are all variations and severity of this disease.
http://images.google.com/imgres?imgurl=http://www.orienttumor.com/czxnr/images/TumourFace3_468x347.jpg&imgrefurl=http://www.orienttumor.com/czxnr/07-7-18_eg.html&usg=__0T0PhruqjsxuLdgh3M0C6OlG1xc=&h=347&w=468&sz=21&hl=en&start=3&um=1&tbnid=CylOv_qV_dtD2M:&tbnh=95&tbnw=128&prev=/images%3Fq%3Dneurofibroma%26hl%3Den%26rlz%3D1B3GGGL_enUS213US214%26sa%3DN%26um%3D1  (+ info)

treatment for Neurofibroma in homeopathy?


please if any one can tell that is there any treatment for Neurofibroma in homeopathy plz tell me because i have that problem and as i have my kids also got the same problem i want to know if there any treatment in homeopathy i have suffered a lot with this problem mentally i dont want my kids should also face the same proble
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Sir, I sympathize with you but you would be better off following the advice of your doctors rather than of homeopaths. I highly doubt that a homeopath even knows what neurofibroma is let alone treat it. For your sake, please follow the advice of your doctors on this one rather than go to a homeopath.

I wish you luck and hope for the best.  (+ info)

where is the best treatment for neurofibroma ?( i.e the fat bodies on some parts of the body)?


where is the best treatment for neurofibroma ?( i.e the fat bodies on some parts of the body) iam having this for the last few years.. they are all becoming larger .. iam very afraid about all that and also tell me are there any laser treatments available for this... pls reply me.. '
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Need Treatment for Neurofibroma?


Hello,

I am 24 years old, suffering neurofibroma. I having small (< 2 cms) multiple tumors on both my hands. From last4 months, I am undergoing homeopathy treatment. But I could not find any change. Some doctors has prescribed me for surgery after the tumors stops growing. But I am looking for an alternate treatment for this. Can anyone suggest me.
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Not a doctor. Didn't know anything about this until now actually. Just thought this website might be helpful.

http://www.clinicaltrials.gov/ct/show/NCT00076102  (+ info)

plexiform neurofibroma?


is it dangerous to marry with a person having plexiform neurofibroma. is it hereditary is there any life risk? what is the symptoms and is it curable. can a person having this disease led a normal life??
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I have NF1. a plexiform neurofibroma is a symptom of Neurofibromotosis. I have the cafe-au-lait birthmarks and have had 1 neurofibroma which was removed. People who have NF2 can have much more serious condition with the tumors ect. It can be passed on to your children about a 50/50 chance. It is not curable but can me managed. I am otherwise very healthy person, never been sick from this. I have graduated college and lead a very normal life with my 4 children. 2 of my kids got this and right now all they have is the birthmarks. Here is a website about this genetic disease
http://www.nfinc.org/nf1.shtml  (+ info)

Can anyone share their views on having multiple neurofibroma??


check nf.org  (+ info)

Neurofibroma Question?


i have a single cafe-au-lait spot (inner thigh) and one [what i believe to be a] neurofibroma on my butt. :P
all the research i've done says that nf-1 has MULTIPLE cafe au lait spots and MULTIPLE neurofibromas.
i am 12, does NF-1 advance? or will i stay with just one bump??
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You probably DON'T have neurofibromatosis. By the age of 12 I would suspect that you would have 100+ Cafe au lait spots, as for the Neurofibroma, I suspect it is also something unrelated (like a cyst or maybe a skin-tag). However, you still may have a very rare type of NF1 called Segmental or mosaicism Neurofibromatosis (this is where the NF mutated gene is contained to one area of the body...In your case your upper leg and butt). You need to contact a doctor to refer you to a neurogeneticist to check you out. I hope all goes well for you, it probably isn't NF1  (+ info)

how does neurofibroma get cured?


Neurofibromatosis(NF) is an illness of the nervous system. It causes benign tumors to grow in our body all our lives. There is currently no known cure for NF.  (+ info)

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