FAQ - Pain Insensitivity, Congenital
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Symptoms of Congenital Insensitivity to Pain?


I have a genetic disorder project due on the 17th and im having trouble finding info search engines. Please tell me the symptoms of Congenital Insensitivity to Pain and who is most likely to get it? Thanks!
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articles that have congenital insensitivity to pain with anhidrosis?


what causes children to have these genetic disorders. what do statestics say. what ethnicity gets it more. Is it increasing over the years.
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http://www.meducator.org/archive/20050406/06_cipa.html
http://www.ncbi.nlm.nih.gov/sites/entrez?cmd=Retrieve&db=OMIM&dopt=Variants&tmpl=dispomimTemplate&list_uids=191315
http://helium.vancouver.wsu.edu/~woodc/CIPA.html
http://www.cags.org.ae/pdf/256800.pdf

they might help u  (+ info)

Is Congenital Insensitivity to Pain with Anhidrosis (CIPA) a disease?


I know it is a disorder, but are disorders and diseases the same thing? Please answer with some valid facts.
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it is a congenital defect, not a disease... the primary difference is that disease is curable, genetic defects are not.  (+ info)

what is a visual aid for the disease CIPA (congenital insensitivity to pain with anhidrosis)?


It's for a speech...I need a simple visual aid that is very tangible.
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Since a person with this disorder in not able to feel pain, you may want to take an iron - pretend it is plugged in and hold it on your hand or better yet, put in on an arm of someone in your audience (just make sure it is not hot). You can then ask - what would happen if you couldn't feel heat? or pain?

Good luck with your speech.  (+ info)

Question about Congenital Insensitivity to Pain?


Can you only have this disease by being born with it, or can you acquire it over time?
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how might one with Congenital insensitivity to pain with anhidrosis (CIPA) react to feeling pain?


at an older age for the first time? i cant imagine not feeling pain and i know it would be scary but what might it be like to suddenly be able to. i know it's unlikely if not impossible even with treatment but i want to know for a story i'm writing.
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My husband has CIPA. he is 33. There is no way to revert to feeling actual physical pain because the neurological defect is from birth, however some with CIPA, including my husband, feel pressure. He went to see a chiropractor today and during his exam, the pressure was so extreme from what my husband is used too that it made him cry. The dr. equated it to what a normal person would feel as a level 8 or 9 pain. The pressure goes unnoticed most of the time but then builds up and is overwhelming cause they aren't used to feeling it. hope this helps you understand a little better.  (+ info)

Question about Congenital Insensitivity to pain with Anhidrosis (CIPA)?


If you have CIPA, you can't feel temperature. But can others feel if someone with CIPA has a fever? They would still feel hot to you, right?
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Yes, if you have a fever, someone who doesn't have CIPA can still feel your forehead and tell you're too warm.  (+ info)

is there anyone out there who has congenital insensitivity to pain like me?


i dont know what congenital means  (+ info)

Can someone have CIPA (Congenital Insensitivity to Pain with Anhidrosis) without the "Anhidrosis"?


I have always been highly "insensitive" to pain, and seem to have some of the symptoms of CIPA, but I do not have "anhidrosis" (lack of sweat). I generally do not feel as hot or cold as other people in the usual environments. For instance, in winter I seldom bundle up, and in summer I don't notice heat as much as others do. I have a sweat-related issue, hidradenitis, but not anhidrosis. What I'm wondering, is, what else is out there with pronounced lack of pain as a symptom, besides CIPA? I've googled and checked medical websites, but nothing I can find comes close.
When I say insensitivity to pain, I do feel it. But I tend to bump or cut myself without noticing, and I often end up burning my mouth on foods too hot for my mouth to take in. I've had my nose broken, and reset it myself. I tripped over a parking lot pylon once, and was bleeding all over, and didn't even feel that. Just to give an example of the degree of insensitivity.
Stephanie -
I already stated that I "can't" have CIPA itself, because I don't fit the criteria. I asked about disorders RELATED to CIPA. If you're going to take the time to answer a question, please read it, and try to lay off the name-calling, okay? I'm not going to become something I'm not, just to satisfy your self-absorbed needs.

Are there any medical professionals around? If I had to describe my situation, I'd say that I "sometimes" have the insensitivity to pain, and have some partial insensitivity to temperature. I do not have Anhidrosis, but since CIPA is classified as an already "rare" condition, I thought logically, that maybe something else could exist out there.
eye -

How did "I" already know the answer to my own question? I'm not a doctor. I've also never stated that I knew anything, only what I've felt or experienced personally.

What in the heck is it with all the name-calling?
rob -
The question is a fairly straightorward one. If you'll notice, I asked if it's possible to have congenital insensitivities to pain without the anhidrosis component, or if there are other conditions similar to it.

I don't understand why you are defending people who are only looking to start a fight. "That's a stupid question" isn't an answer. I never said I couldn't be treated by a doctor, or that I didn't like their answers.

Again, this is supposed to be a support community, not an attack community. If you can't answer, why comment? Keep it simple. Funny, only one person so far has offered anything besides abuse. Is this some sort of team effort?

Real answers, people?
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Im sure there is another name for what you have!! my daughter who is 3 has CIP and just to make it known IT DOESNT MEAN YOU CANT FEEL ANYTHING ON YOUR SKIN!!! The person who left that comment needs to get educated on it before saying anything! good luck in your search for your answer.  (+ info)

Can people with feel the pain when eating spicy food?


I found out that what you feel when you eat spicy food isn't because of your taste buds, it's actually pain in the nerves in your tongue. So does that mean people with Congenital Insensitivity to pain can't feel the effects of spicy food?
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I honestly do not have an answer. But from what you say I would assume that they would taste all the flavour of the spices but just not get the burning sensation that follows. Infact I would say that its even possible that they would get more flavour from the spicy food because of this.  (+ info)

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