FAQ - Polyendocrinopathies, Autoimmune
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Links between autoimmune disease and mold, anyone with similar experiences?


Doctors think i have an auto immune disease. Just got off cyclosporine, i was doing better. A lot of flooding in our area and our basement leaked. Now i'm experiencing severe tongue swelling. I googled mold/autoimmune and there might be a link.

Anybody experienced anything like this? I would really just like to talk to somebody.

I've been in the hospital more than not this past year, i would like to avoid medical help. I would like to avoid telling my family symptoms are back. Any suggestions how to resolve this on my own?
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A close relative has severe allergies - including mold related - that cause her body to shut down also. I'm not sure they classified it as auto-immune, but she has severe burning and swelling. She hates telling people also because they look at her as if she is crazy. She's now started looking at alternative medicine for more help. She has been doing somewhat better. Depending on the issues you are having, be careful about the meds you take - many of them contain types of mold, etc., that could cause even more problems for you. Also be careful with the foods you are eating and make sure you are washing everything that you might eat raw - even if you are going to throw away the peel. Chemicals and such affect her greatly.

Email me thru my profile and I'll see if I can help.  (+ info)

What is the best treatment for hypothyroidism caused by an autoimmune decease?


I've been taking armour for about six weeks and I want to decrease my thyroid antibodies!
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Did you have to fight your doctor to get the Armour in the first place? Many won't prescribe it. They will only prescribe synthroid.

In any case, Armour increases antibodies, so if your goal is to reduce your antibodies, that's not the treatment for you. The standard Synthroid is for you. If you have a problem with your T3/T4 ratios or conversion, then add Cytomel to the Synthroid. This won't lower antibodies, but it won't raise them like Armour does.  (+ info)

Is shingles bad when you have an autoimmune disease?


Just curious if its bad when you are already being treated for autoimmune (Addison's Disease)? and the shingles are in your mouth?
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Any treatment for an autoimmune disease which suppresses the immune system can cause the chickenpox virus to reappear (as shingles). If the shingles is in your mouth I would seek immediate medical attention, especially if you also experience ear pain and facial paralysis. This is known as Ramsay-Hunt syndrome.  (+ info)

risk of autism with a family history and autoimmune disorder?


My sister has Asperger's and a nuromuscular disorder, my other sister has Graves Disease, my mom has IBS and my grandma had 2 autoimmune disorders. My husband and I want to start a family. What are the odds that my child would have autism?
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As noted previously with an autism diagnosis in the family, the risk increases 10% but that can change drastically if genetic conditions such as fragile X are not ruled out. Fragile X is currently the leading KNOWN genetic cause of autism. Keep in mind there is still a lot we need to learn about autism and genetics.

Screening for fragile X is a simple blood test, and is 99% accurate if the correct test is done (FMR1 DNA test aka Southern Blot with PCR analysis). If the correct test is done they should provide you with CGG repeat numbers, if no numbers are given they may have done a chromosome analysis test which is not reliable in diagnosing Fragile X (too many false negatives).

If you are truly concerned, be screened for Fragile X to determine if you are a carrier. If you are, you have a 50% chance of passing it on with EACH pregnancy. Your best bet would be to be screened by a genetic counselor.  (+ info)

What autoimmune disorder has celiacs, gastroparesis, cystitus, vulvadynia and sub clinical hypothyroidism?


I have been diagnosed with all of these disorders and the doctors have't figured out what the main autoiimune disorder is that contains the above. Yes, fibromyalgia has been thrown out there, can anyone think of anything else to be tested for? I also have pelvic pain, hip pain, elbow pain, leg pain and headaches.
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Autoimmunes as you list are all related to each other as they are HLA type conditions. If you have one, you are more likely to have others.

There does not need to be one primary autoimmune disorder.

Are you being strict with your gluten free diet (i.e. being wheat free as well) and have they started you on thyroxine yet?

Both those things will improve your gastroparesis and vulvadynia. Improving the vulvadynia will improve the cystitis.  (+ info)

what are autoimmune test kits? where can i find more info on how they work?


I am applying for a job who does autoimmune diagnostic kits, and I am trying to learn more in how they work in diagnosing autoimmune diseases..anyone know?
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My ex g/f was found to have Lupus, an auto-immune disease and they found it through a blood test. Not exactly sure what they look for, but i do know it requires blood testing.  (+ info)

If I have an autoimmune disorder does it make my immune system weaker?


I have dermographism and I feel like I've had every flu and cold bug that has come around. Could there be a correlation?
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I have a blood disorder which is caused by my immune system fighting against itself, very similar to the autoimmune disorder Lupus. I too caught every bug around, so I would say that there is definitely a link between your dermographism and constant bugs. After 5 years, my consultant decided to start me on monthly infusions of immunoglobulin, a substance to boost my immune system. That was 9 months ago, and I've felt so much better since. It might be worth mentioning to your own doctor?  (+ info)

What sort of test do they do to find what autoimmune disease you have?


I go next Friday and I couldn’t be more nervous. I never like this and I think its because I will be going in there blind. Anyone out there been through this just so I can get an idea? So far all they know is that it is affecting outside and in.
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They start with the blood tests, looking for the auto antibodies, or red flags in the blood. If they locate them then depending on what they are, they might ask for x-ray or MRI. However look at this in a positive light, I assume you are not feeling well, they are thinking autoimmune, will do the tests. Now it might be positive, therefore they can treat!  (+ info)

How do you deal with the extreme fatigue that goes along with autoimmune diseases like lupus and RA?


It's getting kinda old. I just want some energy and caffiene isn't giving me its usual kick.
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In the long run, caffeine will only make the fatigue worse as you stress your body by putting it through a roller coaster of ups and downs.

Learn to conserve your energy. Instead of washing a whole sink full of dishes, wash dishes for 5 minutes and then rest for 5 or 10. Instead of cleaning a whole room, clean one corner then rest. Pushing yourself makes the fatigue worse in the long run. Break up tasks into smaller tasks and take frequent breaks.

Rest when you are tired. This is hard to do if you are working, but when you are not at work you can do it.

Lower your standards. You don't have to be super person. You have an autoimmune disease that causes profound fatigue. If someone you loved had this disease, would expect THEM to soldier on? Love yourself as much as you love that person.

Do not do for others what they are perfectly capable of doing for themselves.

Remember no one is indispensable. You or I could fall of the face of the earth today and the world will keep on turning.

Prioritize. What's more important, making sure there are no dust bunnies under your furniture or having enough energy to spend time with your family and friends?

Get some exercise everyday. I know, you have no energy and it hurts. Can you take a 5 minute walk each day? If you can't go out, can you walk in place indoord for 5 minutes? Exercise reduces pain and fatigue. You have nothing to lose by trying. Maybe tomorrow you can do 6 minutes. Set reasonable goals that you know you can achieve.

Avoid caffeine. In the long run it makes the fatigue worse and takes a toll on your heart, something people with inflammatory autoimmune disease don't need since we are more prone to cardiovascular events.

Eat a healthy and balanced diet, high in fresh or frozen fruits and veggies and low fat protein. Candy, cake, chips, pop tarts, honey buns, sugary cereal, etc. don't give your body the elements that turn into long and sustained energy. They cause a spike in blood sugar follwed by a crash where you feel even worse.

Laugh. Watch funny movies, read funny books. Laughter improves immune function.

Do hobbies that give you pleasure but don't require a huge output in energy.

And always be gentle with yourself. You may not be able to change what has happened to you but you can change your reaction to it.  (+ info)

What blood test must be do to find if alopecia is androgenic or autoimmune?


I am the only person in my family with this disease and the hormons tests are o.k but I have many simptoms for thyroid disease.
Have you any advice?
Thanks.
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As far as I am aware Alopecia is not autoimmune. I have known people who have had the condition for five years and then suddenly it has vanished. Some Docs say it is stress, others bacterial the list is endless but your hair will eventually grow back, when I cannot say.  (+ info)

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