I have been told i may have Retinitis Pigmentosa is there treatment\cure for this?Is laser surgery an option??
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Retinitis Pigmentosa recessive, dominant, or nondisjunction?
1. is it recessive, dominant, or nondisjunction
2. where the disorder occurs
3. is it sez-linked or autosomal and it is is autosomal which chromosome is it on(if known)
4. who the disorder affect- does it affect one particular race over others?
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With retinitis pigmentosa, an inherited retinal degenerative disease, it is the rods and cones of the tissue at the back of the eye that are affected. These cells form part of the retina and contain the light capturing cells necessary for sight. Light passes through the cornea to the pupil, which dilates according to the amount of light in the environment, to the lens, which thickens or thins to bring the object into focus, through the middle of the eye and onto the retina's rods and cones.
With retinitis pigmentosa, which already has more than 7 genes identified with it, scientists have determined four hereditary patterns: autosomal recessive, autosomal dominant, sex linked and digenic degenerative retinal disease.
affect men and women of all ages, races, cultures, and ethnic backgrounds (
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i have retinitis pigmentosa can i get help with paying for my glasses?
You can only get help with your glasses from the NHS if:
1) You are on any benefits (income support, jobseekers allowance, etc)
2) You are on a tax credit scheme (such as working families, disabled persons, etc.
3) You are under 16
4) You are under 19 and in full-time education
5) You are over 60 and are on Pension credit.
6) You have a complex prescription
7) You have a HC2 low-income certificate
The complex prescription category really relates to the lens power, and this will be determined by you ophthalmic optician. Generally though it does not cover contrast tints such as a UV527 tint (recommended by the Retinitis Pigmentosa Society) for advanced RP. (
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Can retinitis pigmentosa skip a generation?
Hello,
I have a question about retinitis pigmentosa.
My father has one brother and one sister. They both have retinitis pigmentosa and are nearly 100% blind. His father (my grandfather) also has retinitis pigmentosa and is blind. My father has never had any eye problems but I am worried that this could effect my brother or myself.
I have had eye tests which have not shown any sign of retinitis pigmentosa, but, reading up on the internet some sites suggest that some eye tests are unable to detect it.
So I suppose I have two questions, 1) Where can I get a test just for retinitis pigmentosa and 2) Is it possible it can skip a generation?
Thank You
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1) Where can I get a test just for retinitis pigmentosa
just about any eye doc. they know what to look for. you dont need any "special" testing or equipment
and 2) Is it possible it can skip a generation?
of course. happens all the time. its all genetics & statistical probabilities (
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Does any one else have an eye disease called Retinitis pigmentosa (RP) ?
I have (RP). I found out when i was about 7 years old. I was wondering if anyone else out there has it too. I wanted to see if they are going through what i am going through too.
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Here is part of my file on Retinitis Pigmentosa...I hope this helps...
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"High doses (75,000 IU daily) of vitamin A can slow the loss of remaining eyesight by about 20 percent per year, according to Dr. Eliot Berson, professor of opthamology at Harvard Medical School." p. 267 under Retinitis Pigmentosa in "Prescription for Nutritional Healing" by James F. Balch, M.D. & Phyllis A. Balch, C.N.C.
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http://www.usher-europe.org/usher/eng_web/RsofDHA.html
Studies have suggested that DHA levels are lower among patients with retinitis pigmentosa than other individuals in control groups. Differences in serum levels were posted lower in subjects with retinitis pigmentosa by 10-15%. A correlation is reached regarding the concentration of DHA and its ability to enhance the function of the cones and rods within the retina. Currently hypothesized, is a metabolic defect of synthesizing DHA from sources of ALA. Further studies using DHA supplementation as an intervention have reported improvements to neurological functions, as well as the retinal response of some RP patients. The necessity of DHA to support the normal neurological development response is further correlated through studies completed during early infancy.
http://www.usher-europe.org/usher/eng_web/RsofDHA.html
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Amazing Grace: Autobiography of a Survivor By Grace Halloran Grace Halloran was diagnosed with retinitis pigmentosa and macular degeneration. This is the story of her path of healing.
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http://www.visualhealing.com/
Integrated Visual Healing by Grace Halloran, Ph.D.
A Self-Help Therapy Program For Macular Degeneration, Retinitis Pigmentosa, Glaucoma and Other Eye Disorders
Grace Halloran, Ph.D., Director of the
Integrated Visual Healing Program
In the spring of 1971, I was told that I would go blind. The doctor that identified the genetic defect declared he hoped going blind would have a maturing affect. The news that I was legally blind at that time, aged me way beyond my twenty five years. The diagnosis of retinitis pigmentosa, complicated by macular degeneration, usually affecting older people, aged me even further. I was told that I had the eyes of someone in their 80's. Both conditions typically steals precious sight. Conventional medicine had nothing, not even hope to offer.
Since then and for over twenty-five years, I have been on a collision course with conventional medical beliefs. Repeatedly told that there was nothing to do for my own impending blindness, or for the predicted loss of my children's sight, I refused to give up. Since conventional medicine had nothing to offer, I turned to the alternative health community. My perceived curse turned to a gift. A new world of hope and help opened when I entered the alternative health care field. In 1979, I earned my Ph.D. in Holistic Health Science from Columbia Pacific University for my work in alternative eye health care.
Contrary to conventional medical beliefs, my sight improved. Because so many people are in need, and due to my own success, I've had the privilege to teach these methods all over the world.
The techniques and methods I found helpful come from many different disciplines. Nutrition was my first introduction into alternative medicine, and that opened the doors to so many more. Oriental medicine, color therapy, vision exercises, stress management, and micro-current stimulation to increase healing were all tools incorporated within the Integrated Visual Healing program. Every individual, from four to ninety-four can learn to improve eye health. My program provides the training, education and tools, so that those affected with these chronic disorders are able to impact their own eye health on a long term, on-going basis.
My dream has always been to develop an effective therapy program that could be prescribed when someone is first diagnosed with serious eye disorders, no matter what the age. With the help of an open minded ophthalmologist, I put the IVH program to the test of objective medical evaluation. The results have been dramatic and rewarding. The initial results were published in the April 1998 Townsend Newsletter for Doctors and Patients.
My path may not have been consciously chosen, yet it is one that I treasure deeply. My vision is not perfect, and the therapy involved takes persistence. However, the reward is seeing my children's and grandchildren's beautiful faces. There is always hope. Note . . . For more information, read Amazing Grace - Autobiography of A Survivor, by Grace Halloran.
http://www.visualhealing.com/
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Signs of Retinitis Pigmentosa (blindess)?
im a 16 year old girl & my father has retinitis pigmentosa, & is blind in 1 eye. what are the chances of me having it, and what are the symptoms? no else in my family has it. im short sighted & wear glasses all of he time, & so does my mother & my only brother.
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Retinitis pigmentosa can be caused by a variety of genes - some are inherited in a dominant manner, some recessive, and some X-linked. All of these would change the chances that you would develop the disease. Any chance that your father knows which gene is disrupted in his case? That no one else in your family has it is a good sign, and makes it less likely that you will get the disease.
Nearsightedness is not a sign of RP. The symptoms of RP include loss of night vision, and tunnel vision the gets progressively worse. You should be visiting an eye doctor regularly to monitor your eyesight. (
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To whom it may concern, my wife is legally blind,they call it retinitis pigmentosa,I need help to help her.?
I don't know how to go about this but my wife has being lossing her sight progressily for over 30 years now ,and it gotten to where she can only see what's directly in front of her right now and it need help to try to do what i can to help her though all of this. So please help and tell me what to do to help her.Thanks.
Willie Grays
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You can contact the American Association for the blind for help. Below is a web site to a message board of other people who are going blind. You may ask questions and get answers there. Good luck. God Bless both of you. (
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retinitis pigmentosa Chinese Treatment? (Despair! )?
Hello,
My Eyes have recently been diagnosed with retinitis pigmentosa, Darkness ..
I read a few topis about chinese herbs and how they can improve if not treat this disease..
I'm helplessly looking for doctors to even try and treat this eye disease because my job depends on it ,if not my WHOLE LIFE!
I'm in despair and I'm in a profound need for a chinese doctor who can TRY to treat my eyes with Chinese Herbs..
I need doctots whom i can contact and set an oppoitment , even in China itself.
Thank You...
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Retinitis pigmentosa has not been shown to respond to herbal treatment.
What does your doctor say is the best treatment for you?
As yet, there is no known cure for Retinitis Pigmentosa. However, intensive research is currently under way to discover the cause, prevention, and treatment of RP. At this time, retinitis pigmentosa researchers have identified a first step in managing Retinitis Pigmentosa. While not a cure, certain doses of vitamin A have been found to slightly slow the progression of retinitis pigmentosa in some individuals.
It is important to remember that because Retinitis Pigmentosa is an inherited disorder, it commonly affects other members of a family. If someone in your family is diagnosed with a retinal degeneration, it is strongly advised that all members of the family contact an eye care professional.
Yes, you're right. This will affect your whole life. But you need to start finding out how you can change with this - How can you alter your career so that you can continue as your sight decreases - or what career can you train for that will allow you to continue to work as your sight decreases?
I would get on the net and find a support group. Find one in your area that you can go to, if possible. You'll find that once you are armed with information and support, you'll be able to cope.
I have faith in you. (
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Help Please..Retinitis Pigmentosa?
Ok, I have an uncle who is in his late 30's, a couple of years ago he was diagnosed with Retinitis Pigmentosa. I was wondering if anybody was familiar with this illness/disease, it looks like it is advancing fair quickly, I have done some research but always end up with it not being curable. If anybody knows anyone that has been through this please give me advice, I would hate for him to go blind being so young with 4 children that are all under 10 years old. I really hope somebody gives me good news or some type of hope saying that there is some type of surgery that will help out. Thank You so much in advance.
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Is this Retinitis Pigmentosa related?
So I have Retinitis Pigmentosa (I have pretty much no night vision at all now)...and recently I've noticed that I sometimes have difficulties shifting my focus to things of different colors (in good lighting). If I'm looking at a light colored object, I have a hard time switching my focus to a dark colored object. For example, if I'm looking at a white wall and then try to look at a dark colored piece of paper with light writing on it, it takes me a good 3 to 5 seconds to adjust to the color change.
Could this be related to Retinitis Pigmentosa? Does it maybe have something to do with my poor night vision?
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Both are signs of decreased dark adaptation. At night, your photoreceptors can't adapt to the darkness. When going from a light object to a dark one may have similar results and you notice a slowness to adapt. So, the answer is yes. It probably is related to the RP. (
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