FAQ - Sarcoidosis, Pulmonary
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Is it possible to get a Pulmonary Embolism while on Warfarin if you've already had one?


I sufford from a Pulmonary Embolism while is hospital about 3 months ago. I am now on Warfarin for 6 months but I am wondering is it possible to get another Pulmonary Embolism whilst on it. Every time i get shortness of breath or pain in my leg i panic! Sensible answers only please! Also, after Warfarin, will i be at a greater risk of getting one even if I'm active?
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It is possible, but not likely. When you're on warfarin, you should be having blood tests called a P.T. (Prothrombin Time) and a P.T.T. (Partial Prothrombin Time) which lets your Dr. know if you're blood is anti-coagulated enough. That way the Dr. can adjust your dose when needed. I had a blood clot in my leg that broke off and went into my lungs and my MD had me take these tests weekly for 10 years. I felt the same way you do for many years, but if you have these tests done, that should make you feel less panicked.

Also, there is a new injectable medication now called Lovenox, which acts immediately.

If you're not having these tests done, you should be.  (+ info)

I recently had a pulmonary embolism, currently on warfrin. What are the risks of getting pregnant?


I am concerned about what complications might arrise if I were to get pregnant after my warfrin treatment. Complications for the baby and for myself...Is it ok to have another child after a pulmonary embolism and being on warfrin or are there too many risks invloved?
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I have a genetic blood clotting disorder. The disorder predisposes me to having DVT's. I've had 4. Luckily, they were caught early and didn't end up going into a pulmonary embolism. Each time, I was placed on coumadin (warfrin) for at least 6 months.
The first time I got pregnant, I was on the blood thinner. I found out I was pregnant at 6 weeks. I miscarried 2 days later. I lost so much blood, I needed transfusions.
My doctor told me Warfrin causes miscarriages in a lot of women. He advised that if I wanted to become pregnant,
to stop the Warfrin and start Lovonox injections instead.
The injections have to be given in the stomach every day,
usually twice a day. They hurt a lot. There is intense burning
feeling afterwards for a couple of hours. Most injection sites bruise badly.
Having had a blood clot, that makes you high risk, so they will insist on the shots every day for the entire 9 months of pregnancy and after if you want to breastfeed.
The downside of Lovenox is that it is very expensive. Over $3000.00 for a month's supply retail. If you have Medicaid,
they'll pay for all of it. If you have private insurance with a prescription copay, you'll just have your copay, unless you hit the max for prescriptions in a year.
They will probably insist on a planned C-section, because your heart and lungs probably won't deal very well with the strain of labor. They won't let you have an epidural and be awake during it, though. You'll get general because of the risk of bleeding around your spine from the Lovenox, iif they gave you the epidural.
Bed rest for the last 6 months of the pregnancy is very probable, too. Been there, done that.
I've had 2 children that are both very heathy toddlers, now.
They are 17 months apart in age.
I had Lovenox shots with them both, bed rest for 6 months with my first, 4 with the second.
If you really want another child and are willing to deal with the risks, it is very very worth it.
As for getting pregnant on warfrin, highly risky....you'll miscarry 80 percent of the time....birth defects for the other 20. Lots of blood loss for you, could be very serious, if not fatal.
Stop the warfrin, go on Lovenox ...then get pregnant, is a better option.  (+ info)

How quick is the onset of pulmonary aspiration symptoms is it immediately after inhalation?


i inhaled a piece of sandwhich like a fairly small particle and i coughed a bit but didnt see it come flying out so just wondering whats going to happen associated with pulmonary aspiration i am 17
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The problems with aspiration are 1) choking and 2) infection. Since you dislodged the food, it either went down the right pipe (most likely) or ended up in a lung. The main concern with aspiration is pneumonia, which takes a few days to develop. More likely than not you are going to be fine :)  (+ info)

What is the life expectancy of a person with CRF, lupus, and pulmonary fibrosis?


My sister-in-law has all three diseases. She has had lupus since 1999, renal failure and pulmonary fibrosis since 2006. She now weighs a small 59 pounds at 36 years old. Everywhere I research and every doctor I ask can not give me an honest answer. All I am told is her "quality of life" speech. I need some answers. How much longer can she expect to live? Please no insulting remarks from anyone.
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The weight coupled with the diseases doesn't sound good at all. If her weight continues to drop her life expectancy is shortened dramatically. Prayers with your family.  (+ info)

Was pulmonary lymphoma one of the diseases caused by being a worker a ground zero after 9/11?


My aunt was just diagnosed with pulmonary lymphoma. I do not know if it is Hodgkin or Non-Hodgkin. Anyway, she worked at ground zero as part of the rescue effort. Basically, I just want to know if this was a disease caused by working at ground zero.
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Only a doctor could determine that, not somebody on Y/A.

There was just an article in one of the NYC papers the other day about a higher-than-normal incident of multiple myeloma in younger GZ workers but they don't know if it's just because they've been monitoring people who worked at GZ so much more closely. Your aunt is likely registered with the WTC Health Registry, so she should report this in. They send us questionnaires at least once a year and ask us to participate in outside studies that come up (I am a survivor, but workers, first responders, area residents, etc., are in the registry).

I encourage everyone to ask your representatives to support the continuation of health care services for the WTC community. The bill is going through the process, I know, but I don't know exactly what stage it's in right now.

Best of health to your aunt as she struggles with this disease.  (+ info)

Does anyone else out there have Sarcoidosis and Bipolar Disorder?


I have Sarcoidosis in my lungs and skin. I've read that I can affect your nervous system. I'm wondering if I should seek a specialist to see if it's in my nervous system.
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Bless your heart! May the Lord heal you!
Pain many times leads to depression.
I know Bipolar illness sometimes goes from one extreme to the next. But I am sorry, I do not know anyone who has both.

There is good reason why you should see a specialist anyway.
Perhaps one will have the breakthrough you need.
God bless you and good luck!

http://www.health.am/psy/more/depression-common-in-sarcoidosis-patients/

  (+ info)

What are the chances of having another stroke and pulmonary embolism if you smoke weed?


I suffered a stroke and pulmonary embolism three months ago? I dont smoke cigarettes or drink alcohol but I did used to smoke weed?
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ScienceDaily (June 14, 2001) — BOSTON – Researchers at Beth Israel Deaconess Medical Center and their colleagues have found that people who smoke marijuana may increase their risk of a heart attack. In a study of nearly 4,000 people who had suffered a heart attack, the researchers observed that a person’s chance of having a heart attack, particularly those who are already at risk for heart disease, increased nearly five times during the first hour after smoking marijuana.
http://www.sciencedaily.com/releases/2001/06/010612065616.htm  (+ info)

What is the chinese herb that is an alternative treatment for pulmonary fibrosis?


It was used for pulmonary fibrosis and COPD type problems?
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Found this web page on the web: Experimental Study on Treatment of Pulmonary Fibrosis by Chinese Drugs and Integrative Chinese and Western Medicine ( It's in Chinese ... http://scholar.ilib.cn/Abstract.aspx?A=zxyjh200402010 ) - The last sentence reads: salvia miltiorrhiza treatment to Pulmonary Fibrosis has curative effect.

Doederlein's Spikemoss herb (Latin name: Herba Selaginellae Doederleinii) is use to cure lungs and nose cancer. You may try these two herbs combined. Consult your TCM practitioner before using them.  (+ info)

What is your experience with Sarcoidosis?


I was recently diagnosed with Sarcoidosis and am wondering what others experience has been after being diagnosed. I have found that I am getting sick quite easily, basically catching every little bug that is going around and then some!
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Hi, I do not have sarcardosis, but run an online support group for people with autoimmune diseases. From what I researched and already knew about this illness I know that it mainly attacks the lungs, and unlike most autoimmune diseases, usually does not last forever, with treatment it may last about 24-36 months. It seems that you are getting ill from the illness itself, but possibly the treatments that you are on for it. My guess is you may be on drugs such as prednison, methotrexate,Rheumatrex, Trexall , or a medrol pack or a combo of these drugs. all which supress the immune system. making a person much more suseptibale to infection. Including colds, flus, viruses, even allergies. which once finished with treatments after 5-6 months your body should return to a normal immune function, and not be so easily suseptiable to those viruses and bacterial infections. Many people on these drugs, do tend to get ill easier then those who are not ill and not on them. Also over time, your body may build a tolerance and not catch every little bug, and make you ill, even while in treatment. But to get rid of the Sarcardosis, you do need these medications, and any other treatments your Dr has percribed. So you can get rid of this illness. Right now your own body has produced anti-bodies that are attacking themselves causing the Sarcardosis. But it wont be forever. I know MTV ex VJ Duff had it, and was rather ill for awhile. She made a full recovery within 2-3 years. And was happy she went through with the treatment, even with the side effects and discomport, she said it saved her.

I do own a online message board/support group for those with autoimmune diseases, who need answers and support, if you feel like you need some help for now, we can help with research and support, and a lil craziness (a funny bunch). Also a smart bunch.
I am also going to include the link that I got some of the information for Sarcoidodis from.
I hope this helped you understand why you are catching everything, but also helps you realize that while difficult it will not last forever, like most chronic autoimmune diseases
Good Luck
Chris  (+ info)

Is there any connection between the deep vein thrombosis and pulmonary embolism?


What is the difference between a pulmonary embolus and pulmonary infarct?
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read this "so yes to your question"

http://blog.geekwithfibroids.com/2006/09/13/has-anyone-had-problems-with-deep-vein-thrombosis/

Deep Vein Thrombosis

Only about half of the people with deep vein thrombosis have symptoms. The symptoms may include:

* Swollen area of the leg.
* Pain or tenderness in the leg. The pain is usually in one leg and may be felt only when standing or walking.
* Increased warmth in the area of the leg that is swollen or in pain.
* Red or discolored skin.

Pulmonary Embolism

Some people find out that they have deep vein thrombosis only after the clot has moved from the leg and traveled to the lung (pulmonary embolism). The symptoms may include:

* Chest pain when you take a deep breath
* Shortness of breath  (+ info)

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