Is failure to diagnose sagittal synostosis grounds for a medical malpractice lawsuit?

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My 4 month old son's pediatrician failed to diagnose sagittal synostosis even when I pointed it out to him specifically and called and asked for referrals for 2 weeks. Finally, I switched primary care physicians to a different pediatrician. She recognized it right away and he is going to have surgery soon. How could a pediatrician fail to notice that a baby's soft spot is already fused and the head is misshapen?
I have never filed a lawsuit against someone, however I believe I will report this to my health insurance company.
Well,it is certainly an ommision. I understand the laws and issues surrounding the law here as you know, I am a qualified medical proffesional. I would certainly look for grounds of negligence as he did not seem to offer a full assessment of the health of the child. I suppose a successful claim would look into the possibler harm this negligence could have caused if you were not such a well informed parent. Thye man has what is called a duty of care to his patients and also is accountable to the General Medical Council for his license to practice. In my experience,most claims fail as the Hospitals 'loose' files and hire the best lawyers money can buy, it is a multi million pound industry after all.
I would say to take notes and copies of the new proffesionals assessment and see how serious or not it is and then file what is known as a grievance in England. See a Solicitor and argue your case. It is worth doing something to prevent future harm to other babies by this man.  (+ info)

How can I find a doctor that will treat my son's condition of Radial-Ulnar Synostosis?

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My 17-year old son was born with Radial-Ulnar Synostosis. It is present in his left arm and he has extremely minimal rotation of his hand and wrist. This has limited him in performing daily tasks without help and also with lifting heavy objects. He has been teased about it all his life. There was no pain present at a young age, but when he started maturing pain started increasing. I took him to see an orthopaedic surgeon when he was 15 years of age. The doctor told him lies and that my son would have to just deal with it for the rest of his life. After the incident of consulting this doctor, he was sent to physical therapy to gain strength in his left arm. He participated in this for several months until there was similar strength compared to the right arm.He would love to have the surgery done. For Christmas this year he has asked for treatment for his arm. I wish there was a doctor that would help make this happen. If anyone could help that would be a great thing.
I don't know what to suggest other than that you should call every doctor and ask them to look at his x-rays or whatever you afford, until you find a good doctor, with references, who can help you.

I don't know if this may help now that he is the age he is, but in India there are physical therapist type doctors who have use traction type therapies for amazing results. I don't know quite how you find one here, but you could try contacting Ayurvedic practitioners.
http://www.emedicine.com/orthoped/topic278.htm
The above article mentions many doctors who specialize in this problem. Why don't you try looking them up? Some of these doctors can be helpful in assuring you son one way or the other about his condition and its potential for treatment.

What about the Shriner's Hospitals? I think they do orthopedic work.  (+ info)

Are there any risks to waiting to have surgery for Sagittal synostosis craniosynostosis?

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My daughter is almost 7 months old and they surgeons we met with can not get her into their schedule until 9months of age. Is there any risks to waiting this long? What about increased ICP? What about brain damage? What about brain growth and development?
You are the only advocate your child has. Is it possible that you could call other facilities and ask other doctors? Don't be afraid you're being a "pest". It's a parents job to be a pest! If any of these surgeons were in your position, they would do the same. Did you ask you childs' doctor the same questions?

Have you checked out the Childrens Craniofacial Association? http://www.ccakids.com/

It appears that having the surgery done before the age of one year improves the outcome. So you've still got that bit of time on your side. But again, ask your doctor/surgeon about your daughters particular case and let them know you're concerned about waiting so long.

Hope everything goes great for her! All the best!  (+ info)

Where do I find a doctor that will perform surgery for Radial-Ulnar Synostosis for my 17-year old son?

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My 17-year old son was born with Radial-Ulnar Synostosis. It is present in his left arm and he has extremely minimal rotation of his hand and wrist. This has limited him in performing daily tasks without help and also with lifting heavy objects. He has been teased about it all his life. There was no pain present at a young age, but when he started maturing pain started increasing. I took him to see an orthopaedic surgeon when he was 15 years of age. The doctor told him lies and that my son would have to just deal with it for the rest of his life. After the incident of consulting this doctor, he was sent to physical therapy to gain strength in his left arm. He participated in this for several months until there was similar strength compared to the right arm.He would love to have the surgery done. For Christmas this year he has asked for treatment for his arm. I wish there was a doctor that would help make this happen. If anyone could help that would be a great thing.
I did some reading on this and it seems there a re different opinions about sugery .You definetly need to consult a different orthopedic surgeon. If you have medical insurance, check with your insurance company about finding an orthopedic surgeon who deals with this type of problem. You could also call the county medical society to see if they can recommend a specialist. If you live in or near a large city or large universty hospital, they may be able to tell you of a doc who handles these types of cases. You can also do a web search for "Shriners hospitals" and find the nearest one to you. They speciaize in orthopedic problems..you could call for info. You need to make a lot of calls, be persistent, get 2 or 3 more consults. Maybe someone with experience with this will answer you. If not, just get busy researching this for yourself. Not everyone with this condition has surgery for it, but you need to see if it is practical for your son. Good Luck.  (+ info)

My 61/2 month old daughter has just been diagnosed with synostosis, what are the chances of needing surgery?

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This is what the Impression on the medical report says:
1. The patient has short segments of synostosis involving the inferior coronal sutures and anterior squamosal sutures bilaterally.
2. There are multiple accessory wormian bones and accessory sutures.
3. The exam is otherwise unremarkable.
I have spoken with her Doctor and a Radiologyst, I realize this is very important and was only asking because I thought that there might be someone out there who could explain things to me in a way I could understand! It's not like I put my daughter's name on the internet! Thanks
Sounds like craniosynstosis, which is when the bones in the skull fuse together (close) prematurely. This creates a problem as the child`s brain grows - there is no place for it to grow. Wormian bones are extra bones in the skull. Accessory sutures are like they sound - sutures that fuse the bones together.

The only way to correct is surgery. It isn`t as bad as it all sounds. My girlfriend had twins and they both had to have the surgery. And, wear the cranial helmet. Right now they are doing well, but there has been talk of subsequent surgeries as they grow.

Sometimes the syntosis is connected with another syndrome. Perhaps, the unremarkable is indicating that is not applicable at this time.

I am by no means a doctor, just trying to help from personal experience. And, I hope I have. Either way I think I`ve given you a starting point so that at your next doctor`s appointment you can be prepared with even more questions.

I know its shocking to hear something can be wrong or is wrong with your child. Through ultrasound with my first they thought he had some type of osteogensis deformaties or perhaps down syndrome because his legs were measuring almost two weeks behind the rest of him. I was SO shocked there was nothing I could think of at that moment...

No questions to ask. I was just trying to grapple with this news. I had no idea what it all meant. Much less form the necessary questions to educate myself. Thankfully, it was later revealed that doctor`s measurements were INACCURATE. I was headed to a perinatolgist and scared out of my mind for his mistake. So, to those who would tell the asker to seek the advice of her doctor she is, but is obviously in need of more than that. I know I came on here after getting my news and was armed with so much more information. At least I had a starting point.  (+ info)

The joint between the maxilla and the zygomatic bone in an adult is a synostosis?

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A) TRUE
B) FALSE
FALSE  (+ info)

i have congenital radioulnar synostosis.I would like to know someone else who has this condition.can u help me

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I have had this condition since birth and i have never heard of anyone else who has it.so i want to get in touch with someone who does.
I don't have it and I'm wondering if all you wanted to know is if someone else does because you want to contact them.

There are surgical options available. In general, treatment recommendations for congenital radioulnar synostosis are made based upon the degree of functional loss associated with loss of forearm rotation. Some patients with unilateral involvement in whom the forearm lies in a functional position never require surgical treatment. Others, however, with bilateral involvement and/or in whom the forearm is fixed in a position which compromises function may benefit from surgery. Surgery can be performed either to remove the abnormal soft tissue or bony connection or to position the forearm in a more functionally acceptable position. While it is rare that a "normal" joint between the radius and ulna can be reconstructed, some patients obtain significant improvement in function from osteotomy procedures, in which the forearm bones are surgically repositioned.

Below is a link to support stories & groups. I hope it helps you.

http://experienceproject.com/health/rare-disease-support-map.php?l=r&...  (+ info)

My son has been recently diagnosed radialulnar synostosis.?

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The doctor has said his ossicle bones in his ears may also be affected, causing hearing loss. Can anyone tell me the long term effects of this, and what syndrome it could be caused from. I know this is rare, having only 350 recorded cases in history. Finding out information has been very difficult. Any answers will be of help.
Maybe your found this but FYI:

http://www.emedicine.com/orthoped/topic278.htm

http://www.dynomed.com/encyclopedia/encyclopedia/pediatric_orthopedics/Congenital_Radial-Ulnar_Synostosis.html

http://gait.aidi.udel.edu/educate/conrad.htm

http://www.wheelessonline.com/ortho/radioulnar_synostosis

http://www.childrenshospital.org/az/Site1067/mainpageS1067P0.html  (+ info)

Foot specialist? SYNOSTOSIS?

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Earlier this week I visited a foot specialist after several months of pain in my pinky toe. He practice x-ray on my right foot. He diagnosis me with synostosis and a hammer toe. He explain to me that i was born with only 2 bones on my pinky toe instead of 3.Well i try searching this term out but cant find no information on it. Has anyone heard of synostosis? Whats the correct medical term for this? By the way he mention surgery has the only permanent solution!
Synostosis is the abnormal development of a joint. Synostosis can occur anywhere in the body there is a joint--the skull, the foot, the hand, the knee, etc., etc.

I recommend you seek a second opinion.  (+ info)

Has anyones baby had metopic synostosis? Please?

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My baby has it and he just got it fixed a few days ago is there anyone else?
are you sure it's called metopic synotosis and not myopic synopses? (or some other name?) when I set about trying to answer your question, the spell checker here did not recognize metopic synotosis as a correct dictionary word. So you may want to check with your doctor for the spelling.
it may be more helpful for you if you google "metopic synotosis discussion board" that way, you will find moms who are actually discussing metopic synotosis.

good luck .  (+ info)

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