Are there any famous people with Turner Syndrome?

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I'm doing a project for school and I haven't been able to find any famous or historical people with Turner Syndrome. If you known anybody famous/historical, I would really appreciate you telling me.
here is link to Turner Syndrome society
http://www.turner-syndrome-us.org/
http://www.turner-syndrome-us.org/about/
http://www.turnersyndrome.org/readweb.asp

(not sure why there are two Turner's syndrome society websites for U.S.)

according to the second link above their spokewoman, Missy Marlowe is a world champion gymnast.

here are some links to genetic disorders
Genetic Disorders
http://www.sbhsd.k12.ca.us/sbhslib/science/gendisorder.htm (link list and scroll down for specific disease links)
http://www.ncbi.nlm.nih.gov/books/bv.fcgi?call=bv.View..ShowTOC&rid=gnd.TOC&depth=2 (genes and disease)
http://learn.genetics.utah.edu/units/disorders/whataregd/ (genetic disorders library)
http://www.nlm.nih.gov/medlineplus/geneticsbirthdefects.html (medline plus)
http://www.noah-health.org/en/genetic/ (new york online access to health)
http://www.ygyh.org/ (your genes, your health)

NORD (National Organization for Rare Disorders)-
http://www.rarediseases.org/search/rdblist.html
http://www.rarediseases.org/search/rdbdetail_abstract.html?disname=Turner+Syndrome

European Organization for Rare Diseases
http://www.eurordis.org/secteur.php3?id_rubrique=1

Medical Website links for the General Public
http://www.eurordis.org/article.php3?id_article=648&var_recherche=peter%27s+anomaly

National Institutes of Health (Office of Rare Disorders)-
http://rarediseases.info.nih.gov/
Genetic and Rare Disorders Information Center (NIH)
http://rarediseases.info.nih.gov/html/resources/info_cntr.html  (+ info)

What is it actually like living with Turner Syndrome?

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We recently had a missed miscarriage and tests revealed that our baby had a missing X Chromosome (Turner Syndrome). Does anyone have a child with that condition, or live with the condition themselves? I'd like to know what life would have been like for out little girl.

Many thanks
i don't know but this link might help  (+ info)

Who can tell me more about Turner syndrome ?

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I learn yesterday that my grand daughter has Turner . How long they they live with this syndrome . What kind of obstacles would be more challenging in her life ;; Note ;; I had never heard about Turner before yesterday ]
Life expectancy is normal with the right medical care. If not already done she needs a heart scn and kidney scan to check for abnormalities. If her heart is fine then from the age of 18yrs she will need a scan every 3-5yrs to look for any changes in the valves.
she will be more prone to things like diabetes, ear infections which must be checked out as it can lead to hearing loss, kidney infections are common if the girl has abnormally shaped kidneys (horse shoe kidneys)
she will most certainly need growth hormone injections to help her grow, she'll probably need to be given female hormones (tablets and or patches) so she can develop breasts and womanly hips, and will need medication to give her a monthly bleed. She may have some mild learning problems, most are very mild, things like problems grasping mathematics and poor spacial awareness.
sadly most (not all) girls with turner syndrome are infertile but IVF with donor eggs or adoption can be done. In the main she's going to be just like any other little girl her age, she may find some things harder to do but that does not mean she can't do them, just she'll find her own way to do things.
MOST girls with TS go to mainstream school and do quite well. They get jobs, get boyfriends, get married and some have children.
My daughter is 13yr old and has turner syndrome, she's in mainstream high school working at expected levels and doing really well.  (+ info)

What pattern of inheritance would Turner syndrome have?

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I know it is a random occurrence, but would it fit into the sex-linked category? Out of these options, is it possible to place it in one of the categories: autosomal dominant, autosomal recessive, sex-linked, nondisjunction. Any help will be appreciated, this is for a project.
TS is a chromosomal abnormality, not a mutation, so it cannot be described as autosomal dominant or recessive or sex-linked. It is caused by nondisjunction.  (+ info)

Are there any turner syndrome adult women out there that have issues with hormone replacement and hair loss? ?

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My daughter is 22 and is losing her hair. We think it has to do with turners and hormones. Her thyroid is fine, with medication. I would really like to chat with an adult turner syndrome women.
my daughter is 12yr old and has TS. she's got some hair loss. she has 1 patch about 5cms by 3cms and another 1cm round patch. She's been diagnosed with alopicia areata. She saw a dermatologist 3 weeks ago and has started on a steroid lotion to see if it helps.
Hair loss is a bit more common in women with TS although still it does not happen too often and is very rare in children with TS. With my daughter they are thinking it's her immune system attacking the hair follicles.
My daughters thyroid function is fine, it always has been she takes no medication for that. She started estrogen treatment about 8 months ago, oxandralone aged 8yrs and growth hormone aged 4 years. The alopicia started about 2 yrs ago but the hair grew back after 6 months, then about 1 yr ago came back in the same place but got bigger and showed no signs of coming back.
Luckily she has really thick hair so the patches are not seen, she can't have her hair in 2 pony tails or french braids though as it can be seen then. but down or 1 pony tail and it's not seen..She had a blood test done with her last yearly blood tests to see if there was any reason for the loss but all tests came back normal. I guess we will just have to wait and see if the hair comes back or not  (+ info)

Can someone who has turner syndrome and has gone for Growth Hormones treatment advise me?

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Is there any side effect during or after the treatment? Is the result satisfying?
my 11yr old has TS and started growth hormone aged4 yrs, she's had no side effects other than growing. she does her own injections now.. she's still short for her age but quite a bit taller than she would have been with no treatment..
she will hopefully reach about 4ft 11 at final height..  (+ info)

Aside from turner syndrome, did Esther have any other neurological disorders?

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Esther from the movie, Orphan had turner syndrome and was like...insane. Was she just crazy, or did she have some sort neurological disorder?
She did not have Turner syndrome, she had hypopituitarism.
Turner syndrome is different, hypopituitarism. is a problem with the pituitary gland, Turner syndrome is where girls have a missing x chromosome which leads to short stature and infertility. Both males and females can have hypopituitarism.
Only females can have turner syndrome.  (+ info)

Is there any chinese herb or medicine treat children with turner syndrome?

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To be able to help her increase height and stimulate her puberty. Preferably can be found in Singapore.
this is a genetic condition and it can't be changed, to help grow higher you must see a doc specializing in children endo-crinology.
the natural remedy you ask for is any herb or food containing high levels of iodine like kelp or see weeds or fish, they stimulate the thyroid gland that is in charge with growth.
the docs have today a drug they inject to stimulate growth is a hormone (GH)  (+ info)

What is the future outlook for Turner's Syndrome?

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I am doing a report for my science class and I can't find any information on future medications or projects that scientists are working on to cure or reduce the probability a female is born with the disorder. Does anyone have any answers? Please provide sources if possible.
nothing can cure turner syndrome but things can be done to help those with it. as for reducing the am out born with it, the only way is to terminate pregnancies if TS is diagnosed in-utero.....there is nothing a parent can do to stop a baby having TS it's nothing to do with mother or fathers age, alcohol, social background etc it just happens.... Also having 1 child with TS puts you at no higher risk of having another affected child.
Nature it self deals with most TS conceptions as between 95-99% will end with early loss of pregnancy or pre mature still birth......
there is a UK study going on now (results should be available n the next 2 or so yrs) this is to see how much difference delaying the use of growth hormone has as in how much it affects final adult height. also if adding oxandrlone (a steroid) does affect final height........upto now the thought are the oxandrolone does little or nothing to change the final adult height, but it does give the child who may want a quick height boost just that.......
also the support society (not doctors) are trying to educate the medical profession into diagnosing females at birth if possible, and making sure all TS females have a full heart scan as soon as they are diagnosed as changes to the aorta can kill in seconds. Also regular heart scans (every 3-5yrs)after the age of 18yrs are needed to look for changes in the aorta as if changes are seen surgery can be done and a life is saved...........  (+ info)

Children with turner syndrome if not treated with growth hormones jabs, can she still grow tall naturally?

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Anyone there with similar experience advise me on that? Is it true that after starting the hormones pills (to stimulate puberty and menstruation), the child will stop growing after 1 to 2 years later due to the maturity of bones caused by the pills? If so, can I choose to delay the puberty treatment? My girl is now 13 years old, standing at 131 cm. If I choose to start the puberty treatment 1 year later, will there be any harm to her?
my daughter has TS she's 11yr old and on growth hormone..
she's just started on hormones to stimulate puberty. she gets in patch form.........Latest reserch shows it's best to start before age 12 now, to give the uterous longer to "mature". leaving it till 14+ they are finding the uterous does not develop as well.............There is little if any affect to the final height and they do tend to grow still beyond 2 yrs of the onset of the pills (patches)................of course this is mainly based on the girl also having gh injections..........
you can delay starting the puberty treatment and it won't harm her as such but as i say her uterous and womb may not fully develop..........(important if she may want IVF treatment when older)

my daughter turned 11 last December and started the hormones for puberty in March..
she's 125.5cms  (+ info)

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