FAQ - chorea
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Where are some treatment centers for combined Tourette's Syndrome/OCD?


I already know about the ones at Duke and Harvard. I was wondering if there are any others. Many of the numerous doctors I've already been to still think that Tourette's is just another movement disorder, like Huntington's Chorea, and not an obsessive-compulsive-like disorder. In France, where it was "discovered," it has long been thought to be closely related to OCD, but many doctors still don't know this. I'm particularly interested in finding a doctor who is an expert in Habit Reversal Therapy (HRT).
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lfahn25 is correct. Great answer there!

Tourette Syndrome is often accompanied by other conditions. This may not be exactly what you are looking for, but it may help get you there. This web site it dedicated to the conditions that can accompany TS. Best wishes.
http://www.tourettesyndrome.net/index.htm  (+ info)

PLEASE HELP... My best friend was diagnosed with Huntington's Chorea?


He was diagnosed with this disease 7 years ago (he is 61 years old). If you get this disease due to heredity (everything I've read about it shows this), then why would his Doctor tell him that he has this disease due to being hit on the back of the head, by his mother (she was extremely abusive to him throughout his childhood), with a cast iron skillet when he was 8 years old?

For the last 5 days he has been experiencing nose bleeds and it's not a typical nose bleed. I am talking about bleeding profusely for hours at time. These nose bleeds are also accompanied with a swollen and extreme pain to the forehead.

I have tried to talk him in to calling his Doctor, but he refuses. 2 nights ago his roommate/caregiver called 911, but he refused to be treated or taken to the ER. I called his Doctor this morning and told him what had been going on for the past 5 days. Of course his Doctor wanted him to go to the ER. He refused by saying there is nothing the Doctors can do because there is no cure for Huntington's.

I am at my wits end because there isn't anything I can do or say that would get him to go to the ER. He is not only my best friend, but, he has asked me to marry him.
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Doctors must diagnose a person with a specific problem before they can prescribe medication as part of their "Standard of Care" established by the medical profession. Many diagnoses are not correct and for your best friend to believe in one diagnosis without getting many opinions is not wise. In fact, he may be suffering from being hit on the head as a child that is blocking energy flow to his brain or other parts of his body. This is very common and doctors have no clue how to resolve these issue other than prescribe medications, etc.

Your friend desperately needs to get to a QRA practitioner that can remediate the scars and traumas, including the mental ones, not just the physical ones. This will go a long way to improving his situation. You see we carry with us these traumas and scars to our grave unless they are remediated properly.

He can be tested for this and when they are remediated, the tests will show he has been cleared of the interference fields. So many people suffer as a result of the ignorance of western medicine doctors that have no clue about all this. Many people suffer chronic illnesses for life and on constant medications rather than solving the problem(s) be getting to the root causes.

good luck to you  (+ info)

will taking adderall effect my taking amantadine?


i have huntingtons chorea, and am taking amantadine.
i also am a binge eater...sometimes i purge.
i read that taking adderall can help with binging.
so im curious iff they wil mix well.
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Adderall may help curb your appetite while you are taking it, but you may well binge even more when you come off it. Adderall is a single salt amphetamine. It is addictive and it is dangerous and people have died from it.  (+ info)

can experimenting with medicine progress the disease?


my brother is not even 40 yrs old yet and he has hunington chorea, and he tries to experiement with his medicines instead of going by directions that the dr gave him,can that progress the disease. We had to take him to the hospital because he almost died he had took to much medicine, because he stopped eating and he didnt even know what was going on. my mom doesnt want to put him in a home so he can get medical help but i told her that eventually she will have too.but all i want to know is can the medicine taking make the disease get worse, and plus he smokes alot and drinks alot of caffeine can that hurt him.
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It is usually called Huntington Disease now. This disease affects the brain and that means he should not be in charge of taking his own medicine. I don’t think it will progress the disease but it will not help either and can drastically hurt him. Drinking caffeine may hurt him as it causes hyperactivity and his disease already can make him have body movements that are uncontrolled. As yet there is no cure or prevention for Huntington’s disease. It does not go into remission, but there are treatments to control some of the symptoms. Death comes not from HD itself but rather from complications that HD gives rise to such as aspiration pneumonia, heart failure or infection. I hope this helps...  (+ info)

Huntington's disease question?


The gene for huntington's chorea has been located on near another gene that can be used as genetic marker. The marker travels with the gene for huntington's chorea. When segments of DNA are chopped up with enzymes, scientists test for huntington's gene by locating the marker. If the marker is present, there is a 96% chance that the patient also carries the huntington's gene.

However, despite the success of the test, some people who are at risk have decided no to take the test. Why would some people be reluctant to take the test?
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I think they want to have lives. If I knew I was going to have something terribly wrong with me in my future, something no one can cure, I don't think I could enjoy life at all. Could you? While I see that a negative test could relieve all worry, a positive one is just a (painful) death sentence. I would rather just worry and hope.  (+ info)

Needs help!!!?


I have sydenham Chorea and i was wondering can it effect your mentrual ???
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Heya
As far as i know sydenham chorea cannot effect your menstrual cycle but other things can such as stress, upset, anxiety, medications ( maybe for your sydenham chorea), and pregnancy.
But as far as i know sydenham chorea does not effect your menstrual cycle.
Hope i helped
x  (+ info)

medical question!?


hi can anyone give a good site where can find information about the medical disorders, haemophilia, cri-du chat , turners syndrome, huntingtons chorea, and duchene muscular dystrophy? any help would be great...thanks! :)
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try web md  (+ info)

Canadian Medical Websites?


so i have a philosphy paper to write, and i was wondering if anybody new of any good Canadian Medical Websites that deal with the costs of having a diseae in canada. the prices of the doctor visits, medicine, chemo, ect. i know its not all free. for example, where would i find a price range in medical terms for raising a child with "huntingtons chorea" ??? my child would need medication, special doctorial treatments to larger centers (for arguments sake lest say Toronto), possibly wheelchairs/crutches/braces /surgeries...ect. where would i find a site to give me general numbers on how much a disease'd child would cost a parent.

i know it sounds kinda crude, but its the easiest way to explain it.

any help what so ever would be greatly appreciated.

thanks guys

:-)
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You may find some of that information by browsing the Health Canada website, including their alphabetical index. Also check different organizations such as the Canadian Paraplegic Association, etc.

Since health care in Canada is actually covered provincially, the costs for some of those items vary by province, and how much of it is covered also varies by province. Visits to a doctor, including to specialists, do not cost anything anywhere in Canada, and chemo is also free, as are radiation treatments, x-rays, MRIs, bone scans, CT scans, ultrasounds, surgeries, anesthetic, and many other treatments. Often physiotherapy and occupational therapy is also free for those with diagnosed disorders. Usually if anyone is referred to a larger center such as Toronto the travel is also usually paid for, and often for an accompanying family member as well. In many cases there is support for accommodations for family. Sometimes there is a hostel at the hospital where family can stay for a very reasonable rate, and sometimes for free. Sometimes there are programs to help families pay for assistive devices such as wheelchairs, crutches, etc. Crutches are often available on a "borrowing" basis. So in Canada the situation will vary from province to province, most things are covered by our medicare system, and there are some costs for things such as prescription medication, wheelchairs, etc.

I hope this is of some help.  (+ info)

Michael J. Fox + Huntington's Disease?


Dunno if this has been ask before or discussed, but Michael J Fox shows more symptoms of Huntington's disease (formerly chorea (aka "dance")). If anyone else knows some neurological diseases information, care to discuss? (i'm working towards being a neurosurgeon, so I do know my way around the brain). Some have suggested he's taking too much parkinson's meds. Not in my opinion! Tardive dykinesia can look liek parkinsons in people who take non a-typical antipsychotics.... however... i have never heard of too much dopamine drugs causes any different motor issues (though i have heard too much can cause schizophrenia-like symptoms!). Any ideas people?
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I could be thinking entirely wrong, but if I'm not mistaken wasn't it him who underwent some sort of treatment or surgery that decreased the effects of his disease (I'm thinking something experimental that didn't work for long)?

If it was him, maybe that caused more long term harm than good?

If not then I am surely thinking of someone who had MS or Parkinson's disease...

Clinically, I haven't seem anyone with Huntington's disease, so I don't really know what the medication consists of.

I have seem alot of people on Simnet for Parkinson's and they take it q2h round the clock which seems like quite a bit of medication to me, but I haven't noticed any other motor issues either, just those I would contribute to the Parkinson's itself..  (+ info)

After Brain surgery whats in place of the tumor???


My fiance had brain surgery to remove a type 2 astrocytoma tumor the size of a golf ball. We have been to Mass General and supposedly have the best doctor but he isnt real good about answering our questions. What is in the place of the tumor after its removed from her head?? I know they put a plate over the skull but what about underneath. She had a crainomy. She also has huntington's chorea but not symptomatic, shes 32. Should she seek radiation?? Thanks My e-mail address is [email protected] any and all information is very much appreciated
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The cavity will simply fill in with CSF (cerebrospinal fluid). I've never heard of a gel being used... Eventually the cavity should reduce in size, in my sons case tumor cells grew around the edges and it never got smaller but became a cyst. He also has a grade 2 astrocytoma.

I know for younger kids with this grade tumor they often remove as much as possible surgically and then wait to see what happens. However, with an adult they may decide to be more aggressive, I'm not sure because all my experience is with my son and he's 2.

I do know Mass General is a great hospital and it sounds like your fiance is in good hands. BUT, when in doubt get a second opinion... or more, lol. I don't know of all the 'best' places for adults, but I know Duke has a great brain tumor program for both adults and kids.

Best of luck,
Jessica  (+ info)

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