What long term issues should i expect?

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I had rheumatic fever when i was 6 years old and had a severe case with the sydenhams chorea too (the jerky movements of the body )
also have mitral valve prolapse and a heart murmur and i used to ask my grandma what to expect as she had it too
but now i do not know what to expect but the heart issues she told me to wait for are starting to occur

So if anyone has any more info on this subject please offer that info
MY Grandma died few years ago
and i dont have her to ask questions
anymore but thanks for your help
i was on bicilin once a mon th for 12 years and at age 18 they gave me option to stop taking the shot ---should i have continued taking the injections?
I was born with Rheumatic fever and on antibiotics for 3 yrs.- then the mitral valve prolapse which is gradually getting worse,palpitation's, attackacardia. Now you need to ask your Grandma if she has arthritis because of the rheumatic fever sometimes causes rheumatiod arthritis in our systoms. Make sure not to eat junk food like Mc Donalds, & stuff eat alot of oatmeal(I don't like it but it is good for you.
I also have a disease called Fibromyalgia so its very important to eat and drink alot of water. When you go to the Dr. ask for an RA Test and a ANA just to make sure. FYI i am 55 now.Always ask Grandma !!!
My Grandma raised me..
Wishing you The Best New Year Ever,
Cyndi  (+ info)

How do I know if I might have Huntington's before going to the doctor?

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I've noticed a LOT lately that I sometimes have uncontrollable jerks and I'm very clumsy and I can become agitated very easily, among other things. I did a little research and the thing that seems to fit me the most is Huntington's disease, or Huntington's chorea.It's a genetic disease, so in order to confirm it, one needs a genetic test. But before I go to the doctor and seem like a hypochondriac I'd like a little more information about the disease and if I might or might not have it.
You could not have Huntingdon's unless one of your parents has it. It is a dominant gene and is inherited. You didn't give your age, but symptoms also don't *usually* start manifesting until early 30's, at the earliest. If you are unaware of the disease's existence in yur family lineage, I'd visit a GP or neurologist to check out the jerking movements.

Best wishes.  (+ info)

Esophogus Cancer? 13?

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Hey so i am 13 and i have painful swallowing, I have lost about 10 pounds because i havent been eating because when i eat i have also been really tired and i have had blood when i spit like 50/50 blood and saliva, and it has been progressively worse to swallow and its been harder to , when i eat it feels like it is stuck in my throat, it hurts in between my breastbone, my grandma died of huntingtons chorea & Esophagus cancer and so did my grandpa and their parents died of leukemia and i used norco a little too much than prescribed if you know what i am saying.
13 year olds do not get esophageal cancer only 0.4% occurs in people under 35. Your grandparents having had this cancer has little to do with your risk for it.  (+ info)

Movement disorder specialists, please help me!?

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I have symptoms similar to chorea and dyskenesia and other movement disorders, where i have irregular movements, but there is one difference that I cannot find.

:My movements are not completely involuntary, as in, its not unexpected. It's more like an urge, a desire so i can either try to crack a bone(like cracking your knuckles), except more so than a whim. At first, it started in my eyes, where its like theres an itch i just cant reach in the back of my eyes. I'm still not sure if something is back there or not...

In any case, this urge, for lack of a better word, seemed to "spread" to other parts of my body. I periodically pop myelbows and they almost always pop. I move my neck around a lot, almost into contortions, to try to crack a bone i can hardly ever reach. it feels like its unreachable but there will almost always be at least a slight pop at the slightest movement. Even when i breathe out, sometimes the lowering of my body will crack a bone around my neck.

I also have to try to crack my back a lot.

The worst part though is my eyes. It seems like, that the severity of this urge and itch is increasing with each passing year. It wawsnt that bad in middle school, i could conceal it by making it look casual.

But now, in high school, as a senior, i have to strain my face and sometimes "clamp" my eyelid down and move my eye around to satisfy this urge.

If anyone out there can help me at all, please give me some advice! im desparate...and im also incredibly scared...because most of these disorders are incurable...
Dan-do you have any medical backgrounds?

lkl- no i am not on any medications. thank you. i will do my best to see one.
  (+ info)

Is this a means for disability?

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I suffered rhuematic fever at 5, then again at 12 with chorea. They told us I suffered a stroke like disorder to the right side of my body. I was also told it affected my nervous system. I have allways had tremors to my hands, yet now in my 40's it is quite noticeable and joint pains Arthritis has become apparent. My grip has become weekened and my gait at times is very unnormal. Does symptoms stay with you or worsen with age, and because that Dr. is in most cases dead now, what kind of Dr. do you see that knows about this disease and any later affects that adults that suffered this as a child can expect long into adulthood. I also have a murmur, but my nervous system was effected more than the heart in my case.
  (+ info)

What are my options for a hormone-free birth control?

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Recently I found out I have to take antibiotics for at least 3-5 years bc I ended up getting Rheumatic Fever along with Sydenham's Chorea from when I had strep throat. And birth control that works due to hormones is out of my list of options because the antibiotics.
I read about Paragard, but it says most health care providers won't allow this without having a kid.

I'm 19. I haven't had any kids or been pregnant. I'm in a monogamous relationship, and I have been for a very long time.
Getting pregnant is not an option.
IUD, Diaphragm and spermicide, condoms (use condoms anyway)

There also the Billings Method (not a fan)  (+ info)

I have a mentally disabled mother who is being put out of Emory Hospital and she is still a threat and harm to

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She can be a threat and harm to others. She has Huntington's Chorea and she is in her 4th Stage, She is on Medicaid because we don't have enough money to provide for her. About 6 months ago she entered into stage 4(which is the last) and has now completely lost her mind, and cannot be unattended at anytime. She see's people and talks to people and sometimes listens to what they tell her to do. Now Medicaid will not pay for her to stay in the hospital any longer, and they gave us the option of coming to get her, or paying the bill myself. Now I'm 20 and I'm doing this on my own, so I cannot pay for her hospital bill, and I do not have anywhere to put her. She is not eligible for hospice, and nursing homes are refusing to take her due to her age(40) condition, and the fact that she is on medicaid. She lives in GA, but I was just wondering, Can anyone please help me in anyway. or give me any kind of information that can help me even if it's just a Huntington's hotline number. Please Help
Here is a phone number where you might be able to get someone to help you.

Georgia Advocacy Office 404-885-1234

These people are in touch and regularly visit facilities in the State of Georgia, and come alongside patients and families to help solve problems.

As your mother has a mental based problem, also call NAMI in Georgia, 770-234-0855

Also, look up the NAMI Georgia webiste  (+ info)

Could I have epilepsy?

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Sometimes I feel like these jolts run down my spine and travel to different parts of my body. If it goes into my arm, it makes my hand writhe and twist and contort, then it will feel numb and tingly. I can't control these movements. I've never had a seizure before, I don't think, at least not a grand mal one, or something. Sometimes it just makes me shaky, or twitchy. It doesn't hurt, or anything. I don't know, is that some form of epilepsy? I'm 16... so, could I have juvenile Huntington's chorea?
Well, could you throw a couple of names out there for me? My parents wont take me to a doctor if I'm just twitchy, they would like to be assured that I have a life threatening disease before spending their money on something insignificant, you know?
  (+ info)

What are the signs and symptoms of Huningtons?

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On my dads side of the family tree is the genitic disorder Huntingtons Chorea (however you spell it) With his version of the disorder it usually strikes our family at around the early to mid 30s and has killed two of my uncles and my grandmother. It is supposed to skip a generation but I dont know if it has or not. I am 33 years old now and am worried that I might not be a carrier but that I might have the disorder and that my son who is 11 going on12 will be the carrier. I also nee to know what kinds of testing they do and how badly it will hurt as well as what kinds of treatments if any are available to someone like me who has no health insurance.
  (+ info)

This twicth is really bugging me now!?

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iv had a constant twitch in my right arm for 9months now it settles but then flares back up. doctors dont even know ehat it is they've ruled out tic's and sydenhams chorea, and are in the process of ruling out wilson's disease. its really getting to me as i have my gcse's coming up and im spending all this time in an out of hospitals but also i get severe pains in my arm and nothing takes the pain awaywish it would get sorted!
it also has nothing to do with caffiene,they've also looked at muscle damaged and its very very unlikely,and its not in my head either!
Hope your docter can help u oohhh...  (+ info)

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