FAQ - hidradenitis suppurativa
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Hidradenitis Suppurativa?


I had one marble-sized boil on my right armpit that I really never completely got rid of the first time (maybe 2 months ago). It flared up after my period started; i'm also under stress right now. Do I have Hidradenitis Suppurativa? I'm eighteen years old. I just want to cry...i'm a bit of a hypochondriac...i looked it up and it's a lifelong disease. I just feel so depressed now. Is there any possible way, any at all, that it isn't Hidradenitis Suppurativa? Please help. I'm just utterly depressed that I may have it. Is it possible that it is just one stubborn boil?
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I have suffered from HS for 15 years now. I urge you to go to a dermatologist and have this checked out. It may be something else and chances are it is because HS is a very rare disease, but if it is HS you need to keep it under control. I know that others have told you it will be ok but that's not necessarily true. Most of us have it severely and have open draining wounds that never heal and are in constant pain.. Get it diagnosed ASAP! Antibiotics are a temporary treatment and eventually you get immune to them. Home remedies (believe it or not) and surgery are the most effective treatments. I am not trying to scare you but if u can get it under control now you may save yourself from lost of pain. If you are diagnosed with HS and need someone to talk to, please consider joining a support group to talk about HS. You would not believe how much it helps just to be able to vent and find answers to questions and it is also therapeutic to help others or talk to them. Here's the link for the support group I belong too, but there are many more online so look around and join as many as you like. Hope all goes well! http://www.dailystrength.org/c/Hidradenitis-Suppurativa/support-group

-Kris  (+ info)

hidradenitis suppurativa?


I would like to know if anyone knows much of a cure or anything that helps with this illness..I have removed my apocrine glands in my groin area but it has not quit the illness from coming back at that same place..
Please give me all the kind of info you might know
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Hidradenitis suppurativa is a chronic, scarring inflammation of apocrine glands in the axillae or groin or around the nipples or anus. The acute lesion resembles an abscess with swollen, tender masses. Chronic cases are characterized by sinus tract formation. In chronic axillary cases, inflamed nodules coalesce to form palpable, cordlike, fibrotic bands.
Please see the web pages for more details and images on Hidradenitis suppurativa.  (+ info)

Hidradenitis suppurativa?


Hello everyone, I am a HS suffer and recently experienced a fatigue feeling as if a Virus is taking over my body when I have REALLY LARGE lesions under my Breast. Now this is only recently and Ive had HS for 7 years. And within hours of the puss being released I feel better. Does anyone else ever feel this way? And is this a Diseases or a Form of Cancer anyone? Thanks and Good luck in us finding a cure. :}
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Yes. I sometimes feel that way myself. I think it's the fact that your lesion is filled with pus that it's just draining to your energy. I've had one in my groin for 2 years. It's driving me bananas. Surgery was not helpful. I would doubt this disease is a form of cancer, but unfortunately it isn't widely known by doctors who are still trying to figure it out. Perhaps a Blood specialist can help. Maybe there is something in our blood that is causing this crazy disease. I hope we find a cure, too. Nice to "meet you".  (+ info)

Is there a way to heal scarring from hidradenitis suppurativa?


I've had in my hidradenitis suppurativa in my vaginal/buttocks for 5 years now which has caused severe darkening and scars also the worst part and what i need help with most that my labia are wrinkled- looking from this disease. Is there a way to improve my condition?
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I would love to tell you, "yes", but unfortunately i can't. There really is no good way to help out with the scarring. The main thing with HS is to suppress any further disease. If it's still active, you might ask your doctor about the possibility of using either Remicaide or Enbrel for it.  (+ info)

Is there any over the counter antibiotics i can use for Hidradenitis suppurativa ?


Ive been having Hidradenitis suppurativa for a while, and wanting to know. Is there any anitbiotics i can get a any pharmacy store to control breakouts ?
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Hi there

Am afraid not. I unfortunately have the same horrible condition. You can only get antibiotics through your doctor. Its sounds as though you havent had this condition confirmed by the doc? They will refer you to a dermatoligist as its a skin condition which has no cure only managed to stop the break outs.  (+ info)

Have you ever heard of Hidradenitis Suppurativa?


I went to the dermatologist because I had an abscess on my leg and it wasn't the first time I had one. I asked her what could be causing it and she said, "You have Hidradenitis Suppurativa" I had never heard of it before and I did a little research on it and I don't think she's right. If I do have it, it's a mild case. How can she even glance and me and know what it is? Is there a test you can take or just something they look at and diagnose?
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H.S. is usually hard to diagnose and many doctors misdiagnose it. I went through three doctors and a surgery before I was diagnosed. It's classified as a rare disease because of the lack of reported cases and doctors misdiagnosing it. Basically, to put it in simpler terms, it's a condition that affects your endocrine glands, i.e. anywhere you sweat. Your skin produces small holes (if you do have H.S., these holes should be visible which may have been how the doctor diagnosed it just by looking), the holes can look like little dents. The holes act like a wound allowing bacteria to enter into your body. The bacteria then causes an infection which leads to the abscess that you speak of. It can be very painful.

It's also known as a progressive disease which means that as you get older it supposedly gets worse. It shows up in three main areas on most people, the groin (it's pretty common), the chest (around or under the breast), and the underarm is another common area. You can get it in other areas even if you just have it in one at first. The good news, if you can call it that, is that you should expect it to reverse itself around menopause.

However, there are some things that you can do about it and some tings to look out for in the meantime. And its certainly not the end of the world. Many doctors reccommend losing weight if you have any to lose and I've had doctors prescribe me painkillers and antibiotics to take when I feel an occurence. I dont reccommend taking either one. I never took them simply because I don't want my body to build an immunity to the antibiotics and the painkillers can be addictive. I did lose some weight which helped. Also DO NOT LET ANYONE SURGICALLY REMOVE ANY OF THE AFFECTED AREA. It doesn't help because H.S. is a genetic condition (not even really a disease) and it will reoccur even after surgery. All that surgery does is leave you with scars and can create more of an infection problem for you. Make sure to be proactive. Avoid stress, that's probably the most important thing. I always got mine when I was stressed out, or under alot of pressure. The more stressed I was, the bigger and more painful my H.S. It usually felt like soemone had a hot needle and was slowly moving it through my chest with varying pressure. Not fun! But the condition can also be very mild and hardly bother you at all. I get alot of that now. Another thing to do is to keep potential areas clean and dry. When I go workout or when I know I'm going to be sweating, I have a little trick. I put antibacterial soap on the area to try to kill some of potentially harmful bacteria caused by my sweating. IT WORKS! Asprin is good to take as well because it's an anti-inflammatory and pain killer. Overall good health is essential as well, build up your immune system with the right foods and vitamins, help your body fight.

Hope this helps and just know that its a misunderstood condition and its hard to explain and there aren't very many people who will understand the extent of it but just be sure to take care of your own health and be proactive about avoiding occurences.  (+ info)

What is the best treatment that you've used for Hidradenitis Suppurativa?


Hidradenitis Suppurativa- a skin condition.

Hey guys I'm 18 years old and i have been living with this condition since i was 14. I want to know how all of you cope with it and what you use to make your skin better, remove scars, stop breakouts, and how you deal with wearing clothes. THANKS
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Unfortunately there is no cure for this.

You will find a list of treatments here:
http://www.hs-support.uni.cc/hidradenitis-suppurativa-faq/  (+ info)

How many people can find out what hidradenitis suppurativa is that has never heard of it and give sources?


Little to no research is being done on this disease because the public is not aware of it ( and that includes many doctors). Thousands of people have this disease and suffer with great pain every day and nothing is being done to get us help. I have I had this disease for 27 years. Please do the research and find out about it and then tell others about it. Speak out for us, because we have spoken for ourselves and nobody seems to care. Thanks.
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Amen tcm. If you need a place to talk, Yahoo has some great support groups for those who suffer from HS and family and friends of those who suffer from HS.

Hang in there!  (+ info)

My Sister is suffering from the disease Hidradenitis Suppurativa please tell where will get the treatement?


My Sister is suffering the dangerous skin disease Hidradenitis Suppurativa. Her age is 39 yrs. please suggest any treatment is available for this disease in India or abroad
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There is NO CURE for Hidradenitis Suppurativa! There is very little research. HS suffers try many things from sea salts to tea tree oil to help control there break-outs.

At this point, there is no cure or universal treatment for HS.

I suggest your sister find a doctor that has treated patients that has HS and find a good support group to help your sister come to terms with this disease.

Wish her the best!  (+ info)

Is there something I can use for odor due to Hidradenitis Suppurativa?


I have suffered from HS for a while now. I have outbreaks under both of my arms. Even though I put deodorant on it still seems to give off a foul odor. Is there anything I can use that will tone down the smell?
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I have HS too! I have stopped using "regular deodorant" altogether now for about a year. I found that it did nothing more than aggravate my HS. I have found that using the crystal deodorant works really well (it can be found at CVS).

The odor issue-- try using an antibacterial soap like Dial or Safeguard. It should help some but I also carry antibacterial wipes with me at all times (just in case). I have also been advised that tea tree oil works also but it has a smell (If you try it use it at night). Tea tree is a natural antiseptic.

I hope this helps. For more tips would suggest you join a support group. There are several on Yahoo Groups and everyone that I have encountered has been wonderful!  (+ info)

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