FAQ - multiple myeloma
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Can you take hydroxycut if you have multiple myeloma?


I have multiple myeloma wonder if I could take a fat blocker since I'm wo rking out losing weight.
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I can't answer your question about hydroxycut and cancer, but I've used it and you should save your money!  (+ info)

What should be done for vertebral collapse in case of multiple myeloma?


Pt.of myeloma having D5 vertebral collapse having no neurological signs,what should be done?
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surgery for stabilzation of the affected vertebrae, if emergent, radiation therapy can be done, in order to halt/slow down the bone disintegration until surgery  (+ info)

Has anyone had M Protein found in their bloodwork and not had Multiple Myeloma?


My gram had bloodwork last week and they found the M Protein in it which could indicate Multiple Myeloma. We've also heard it can indicate soft tissue tumors. She has an appointment with the hematologist in 2 weeks to find out more. I just was wondering if anyone else had this show up in their bloodwork and they didn't have Multiple Myeloma. Any encouraging stories would be great! My gram is only 63 and raised me, so I am very worried.
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M proteins refer to an elevation in a particular immunoglobulin (the antibodies that our white cells make to fight infections and what-not). Most of the time this elevation is termed polyclonal in that all of the immunoglobulins are elevated. The "M" refers to a monoclonal spike, or the immunoglobulins from just one clone of white blood cells.

It is far, far more common to see people with M proteins who do NOT have multiple myeloma. The most common condition is termed MGUS, or monoglonal gammopathy of uncertain significance. We know that, over time, patients might develop myeloma, but there is no evidence to suggest that any sort of treatment is indicated for that condition.

It is important that she undergo the appropriate tests to completely exclude myeloma and discuss her treatment options with her hematologist.  (+ info)

What is the current prognosis of African American women 68 yrs old with multiple myeloma with renal failure? ?


My mother was diagnosed with multiple myeloma last May. She was hospitalized due to renal failure and doctors found the reason was due to MM. She has since refused chemo treatment because the treatments did not improve her cancer and only made her sick. She suffers from confusion and often is very weak and has difficulty walking. How much longer do i have with my Mom? Doctors say weeks-months...does anyone else have any experiences so that I will know what to expect?
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I am sorry to hear your plight. You must know that every case is different. The one thing you could make sure of is that she is not in any pain. You can ask her that. The doctors will do their best if THEY KNOW she is not suffering. If they said weeks or months then at this point it is up to your mother's will to live. Some thrive and fight, others just simply give up. So in the end , there are no REAL time factors here , just the time you have left with her. I wish and hope that in these next couple of months you find the endurance to cope with the pain of losing someone so close you. God is the hearer of all prayers.  (+ info)

My husband is 65yrs, and has had a stem cell transplant because of Multiple Myeloma can he take Viagra?


Myeloma is a blood cancer and how does the blood to the penis affect the red blood cells after a stem cell transplant.
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  (+ info)

what do I need to know about multiple myeloma?


A relative was just told he has myeloma, what do I/he need to know about it?
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Hi,

#1 - it is NOT a terminal cancer for a lot of people; it is more like diabeties or kidney deseise; dangerous but treatable. I know LOT of people that have had it 10 + years.

#2 - Find a Specialist on MM for him - not just a oncologist, but someone that treats a lot of MM; way too much new information coming out and it is one of the most complicated cancers there is.

#3 - www.myeloma.org; GREAT org seems to be more focused on support groups, 800 number for questions, the patient and caregivers and unlocking the DNA for a cure

#4 - www.multiplemyeloma.org; Other great org, seems more focused on trials, new drugs and legislative changes

#5 - look at other questions on Y-A! (99 of them) to see if there are any other things.

6# - fight fight fight

Good luck,

Jewells
36 months and still here
(YES - 3 years since Diag today !!!!!!!!!!!!!!!!!!!!!!!!!!!!!! )  (+ info)

Is there a chance Lisa ray who has Multiple Myeloma will survive?


She was diagnosed with Multiple Myeloma on 23 June 2009, a cancer of the white blood cells known as plasma cells, which produce antibodies. It is a rare and incurable disease.

Will she be okay like will she survive?? I hoep she does
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It is not possible to answer this question. In general with MM much depends on the stage of disease (smoldering, stage 1, stage 2, and stage 3), age of patient, patients overall health, and treatment decisions. MM is incurable, but patients who can bring the disease under control can survive . . they learn to live with their cancer. Just because a cancer is incurable does not necessarily mean it is 'terminal. She appears to have decided to undergo treatment so her cancer must be somewhat active. With MM patients often chose not to treat the cancer as long as there are no symptoms . . when or if the disease begins to show symptoms than the patient can undergo treatment.

But no one really knows what will happen in her case or anyone who has cancer. Hopefully she can get her disease under control and continue to work and live with her cancer.

Cancer.net: Multiple Myeloma
http://www.cancer.net/patient/Cancer+Types/Multiple+Myeloma  (+ info)

Is there anyone or institution working on amyloids associated with multiple myeloma?


A relative has multiple myeloma with the complication of amyloids. I want to know if there are any scientists researching this area and how to contact them. So far the amyloids, though generally dispersed, seem to be affecting the legs and possibly the heart muscle. Names of scientists, doctors, locations, and contact numbers would be highly appreciated.
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Hi,

Amyloids is a rare side effect "malady" of MM; I know that Mayo Clinic is doing some work on this.

For more specific information I would call the IMF hot line:

staffed by trained specialists—at (800) 452-CURE (800-452-2873) in the US and Canada between 9 am and 4 pm PST; elsewhere call (818) 487-7455

They can give you a list of researchers to contact, I have only met one other person with this; you may also want to contact NORD (national organization for rare diseases)

http://www.rarediseases.org/search/rdbdetail_abstract.html?disname=Amyloidosis

Sorry I don't have the specific info; but they keep very up-to-date list.

the web site is www.myeloma.org.

Good luck

Jewells
34 months and still here  (+ info)

How long the biphosphonates(zolindronic acid) are to be given in Multiple myeloma?


A 53yr old, male patient has received 3 doses of Inj.Zolindronic acid along with 3 months of Chemotherapy with Thall.+Dexa,planning for PBSC transplant in next month.Should he be given next dose of zolindronic acid?
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Hi,

There is a lot of new information on this because of the Mayo study and findings of a slight chance of a dangerouse side effect called Narcarosis of the Jaw.

You should check the findings out at:

www.multiplemyeloma.org
and
www.myeloma.org

for the specifics but a rule of thumb is that "most" people should get 24 months of treatment then got to onece every 3 or 4 motnhs or lower dose every other month.

But, as you know, every MM patient is different therfore check with the doc for specifics,

good luck

Jewells
34 months and still here  (+ info)

what is the condition/predisposition called that can turn into multiple myeloma or lymphoma?


someone in my family has this and they told me what it was that indicated they could develop either so i want to know for family medical history purposes. they dont like to talk about it so i really cant ask again.
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MGUs*can develop into myeloma, I am not sure about it developing into lymphoma.
*MGU stands for Monoclonal Gammopathy of Unknown origin.

MDS (myelodysplastic syndrome) can develop into leukemias.

Myeloproliferative disorder is a catch all term that includes several things: "chronic myeloproliferative disorders are polycythemia vera (PV), myelofibrosis (MF), essential thrombocythemia (ET), chronic myelogenous leukemia (CML), and chronic myelomonocytic leukemia (CMML).1 The World Health Organization has recently reclassified CMML from the group of myelodysplastic syndromes (MDS) into a subgroup of MDS/MPDs."

Of course, they can also just go on being very indolent and benign for many many years.

Hope this helps,
MM  (+ info)

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