Transverse Myelitis,neuralgia ?

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My mom has multiple sclerosis and has been experiencing crazy painful neurological pain on her neck and upper body as well as tingling throughout her body, blurry vision, bladder problems, and numbness/partial paralysis on her right side, it has also been confirmed that it is not muscular, bone related or an attack ( even though i still kind of suspect one b/c she does not know if she has any lesions on her spine yet)

After conducting lots of research i'm thinking its either its transverse myelitis or neuralgia, (also because both as associated with MS).

Experiences, treatment...etc. Anything is appreciated.

Thanks!
She needs to see her doctor, there are meds for neuralgia aside from pain meds. Lyrica is one of the newest, gabapentin (neurontin) has been used for years but both are prescription of course. I tried both for my RSD and didn't get much relief from the pain but my husband now takes Lyrica for his diabetic neuropathy with great success.
It's great of you to do this research for your mother.
good luck  (+ info)

Transverse Myelitis recovery time?

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My sister in law has been diagnosed with transverse myelitis a few weeks ago and her dr hasn't given her that much information on symptoms or recovery time. If anyone with this disease can give us information it would be appreciated. She has had 3 or 4 days of IV steroid treatment but still has alot of pain and now her left leg drags when she walks. Its like the left side of her body is useless. Please let me know what you've experienced and how you recovered. I've browsed the internet but can't find anything at all on real patient issues.
TM symptoms develop rapidly over several hours to several weeks.

Almost all patients will develop leg weakness of varying degrees of severity. The arms are involved in a minority of cases and this is dependent upon the level of spinal cord involvement. Sensation is diminished below the level of spinal cord involvement in the majority of people. Some experience tingling or numbness in the legs. Pain and temperature sensation are diminished in the majority of patients. Bladder an bowel control may be affected.

RECOVERY may be absent, partial or complete and generally begins within 1-3months. If she has not recovered in three months, significant recovery is unlikely. Most people show fair recovery, lets hope your sister in law is one of them.

The cause is often a viral infection, it could have been cold sores or Epstein barr virus, which causes MS and Chronic Fatigue Syndrome, HIV or polio or coxsackie virus or leukemia or influenza or rabies.

It starts from some infection that affects the immune system.


nurse---below is a support group web page  (+ info)

Anybody know if it is safe to get polio vaccine booster after transverse myelitis?

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I am 21 years old now but when I was 5 I had transverse myelitis and my parents were told that there is a small to medium risk that I could become I'll again with TM or something worse if I ever recieved a live polio vaccine. This has been 16 years and I am completly recovered with no lingering affects known to be from TM.

Looking back on my vaccination records I have had 4 OPV's before I contracted TM and it was 10 months before I got sick with it.

Thing is that I will need to recieve a Polio vaccine to go to bootcamp (I passed MEPS.) I was wondering if it was safe to get a booster considering my good health and the time elapsed. Was the doctor using old information? (Back then TM was considered much rarer than current statistics.) If there was a problem wouldn't the military have kept me from enlisting?

Any information will be of great help.
Thanks for your answers.
Yes, live oral polio vaccine is no longer used in the United States. And yes, assuming you disclosed your medical history, the Army would have brought this up by now if it were a problem.  (+ info)

Anyone dealing with transverse myelitis?

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i need some support. :(
I have it too, since 2004...
Go to www.myelitis.org
on the right side, click on Message Boards, there are tons of people there to talk to, ask questions...  (+ info)

Does anyone know anything about Transverse Myelities?

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I have transverse myelitis and i am having problems ejaculating when me and my fiance have sex. Who is someone to see about this problem?
Yes, the TM can lead to the symptoms you state, and even others depending on the level and position of the lesion(s) in the spinal cord.

Since this condition is in the CNS, you should be seeing a neurologist.   (+ info)

whether patient(unmarried lady aged 45y)suffering from Devics syndrome-transverse myelitis can recover fully?

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Patient is at present living in Indiana,Pittsburgh USA.Where and what treatment is available for patients suffering from DEVICS(Rarest of the rare syndrome).Is their any Philinthropic organisation to bear the complete medical expences.
I don't know, "doctor" but I'm sure her marital status is incredibly relevant to the cure, whatever it may be!

Oh, and Indiana isn't kept in Pittsburgh. We keep that in a completely different state!

If you're such a great "doctor", why aren't you treating this person?  (+ info)

My dad has stopped eating. He has transverse myelitis, MS, and lung cancer. He is 79 years old.?

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While undergoing chemotherapy and radiation, his esophagus was burned. CT scans show that the tumor cells have diminished, but he developed an atonic mega colon as a result of the chemotherapy. He also has tranverse myelitis and Multiple Sclerosis. He won't eat and is being fed intraveneously in the hospital with nutrients, vitamins and minerals that provide him with 3000 calories per day. He cannot feed himself and when we feed him, he never takes more than 3 - 4 bites of food per day. He barely moves and we are lucky if he chooses to sit in a chair for fifteen minutes. His speech is often slurred. The only alternative that we have is to get him strong enough for surgery for the atonic mega colon but he often refuses the physical therapy as it is too much work for him and he is worn out afterwards. We fear that the MS is really kicking in from his lack of movement. He has been in the hospital for 3 weeks and nearly bedridden for 60 days. Is there any hope that he will recover?
I will pray for your father.

He is an older man and may not want to go through the rigors of all that will be required to (hopefully) get him better. Has anyone asked him this?

It's possible that he feels he has had a wonderful journey in life and is ready to complete it elsewhere. While this is not something his family would like to hear, it may be his wish.

mb  (+ info)

how is transverse myelitis treated?

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Acute transverse myelitis is acute inflammation of gray and white matter in one or more adjacent spinal cord segments, usually thoracic. Causes include multiple sclerosis, infections, autoimmune or postinfectious inflammation, vasculitis, and certain drugs. Symptoms include bilateral motor, sensory, and sphincter deficits below the level of the lesion. Diagnosis is usually by MRI, CSF analysis, and blood tests. IV corticosteroids and plasma exchange may be helpful early. Otherwise, treatment is supportive measures and correction of any causes.(Merck)
Steroids are often given in high dose at the onset, in hope that the degree of inflammation and swelling of the cord will be lessened, but whether this is truly effective is still debated. (Wikipedia)
Several therapies target the acute signs and symptoms of transverse myelitis:
* Intravenous steroids. After your diagnosis, you'll likely receive steroids through a vein in your arm over the course of several days. Steroids help reduce the inflammation in your spinal column.
* Plasma exchange therapy. People who don't respond to intravenous steroids may undergo plasma exchange therapy. This therapy involves removing the straw-colored fluid in which blood cells are suspended (plasma) and replacing the plasma loss with special fluids. It's not certain how this therapy helps people with transverse myelitis, but it may be that plasma exchange removes antibodies that are involved in inflammation.
* Pain medication. Chronic pain is a common complication of transverse myelitis. Nonsteroidal anti-inflammatory drugs — such as aspirin, ibuprofen (Advil, Motrin, others) and naproxen (Aleve, Naprosyn, others) — can help reduce inflammation and relieve pain.
Other therapies focus on long-term recovery and care:
* Physical therapy. Physical therapy helps you increase strength and improve coordination. Your physical therapist will likely teach you how to use assistive devices, such as a wheelchair, canes or braces, if needed.
* Occupational therapy. This type of therapy helps people with transverse myelitis learn new ways of performing day-to-day activities, such as bathing, preparing a meal and housecleaning.
* Other medications. Your doctor may make suggestions for long-term treatment depending on any complications that you may be experiencing. For example, if you're plagued by painful muscle spasms, your doctor may recommend anti-spasticity drugs. Or if you think you may be depressed, taking antidepressant medication may help. Treatment can be tailored to fit your needs.
(MayoClinic)  (+ info)

Transverse Myelitis?

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Looking for others who have this, I have had it since March 2004.
i have had it since 2002. how has it affected you?  (+ info)

My 17 year old brother was diagnosed with transverse myelitis in september of 08, please help!!! ?

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he is currently paralyzed from his neck down, he was given steroids and other medications to help his spinal cord heal , my question is even though he's out of the hospital and at home, still unable to move and with a trach in place, is it possible for him to get something called Plasmaphorasis , or what are the only reasons why a plasmaphorasis would be performed ? On top of that we also found out that he had a thyroid problem and diabetes, something his primary doctor had never tested or considered to do physical exams on him. would that be considered medical negligence? thanks in advance.
  (+ info)

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