are there drs. that treat reflex sympathetic dystrophy?

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My daughter has a severe case of rsd(reflex sympathetic dystrophy) of her right hand/arm. We were told no doctors down south here can help her. We are looking for a doctor that is a recognized expert of this condition. Is there any there?
I have it and yes I go to an orthopedic instute of Ohio mine is in the rt hand and arm and up to my neck the wanted to put pins in my neck to stop it from spreading and mine burns but I get striod shots and cortizone shots seem to help. I went to a nerve dr. first try that to see if he can reffer you to someone but any bone specialist can help you. I will pray for you all and that you find someone  (+ info)

anyone want to join a rsd-reflex sympathetic dystrophy support group?

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Ive had this group for a few yrs and just found this answers site. Its a great family of friends online who find info, talk to eachother and its just a great place for support.
let me kow

rsdcrpsfriends....on yahoogroups
Hello,
I suffer from RSD and fibromyalgia. I knew there of a support group at a hospital, but online would be so much easier and convenient for me. Noone understands chronic pain unless you have experienced it! Please let me know more info.
Thanks,
angie
[email protected]  (+ info)

Reflex Sympathetic Dystrophy?

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my mother was recently diagnosed with RSD,
or Reflex Sympathetic Dystrophy.

As much as I've tried, I really don't understand
much about it or the effect it can have on her.

Does anyone know anything about it
and could offer me some help.?
there is RSDHope.org, they explain everything you need to know about RSD?CRPS  (+ info)

what causes reflex sympathetic dystrophy ?

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reflex sympathetic dystrophy
CRPS/RSD can be caused by almost any injury. Something as mild as stubbing one's toe or having a blood test through to very serious traumatic injury. Surgery also seems to be quite a common cause.

Unfortunately nobody knows why. The sympathetic nervous system, while it undoubtedly plays a role, seems to be thought less important than it once was - hence the name change to Complex Regional Pain Syndrome or CRPS.

The current theory also includes central sensitization and 'wind up' in the pathophysiology, which is why ketamine is being used more and more often as a treatment for CRPS/RSD.

  (+ info)

Is Relfex Sympathetic Dystrophy curable and will I be able to play soccer again?

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I was just diagnosed with Reflex Sympathetic Dystrophy (RSD) I am very active, I play soccer, and run cross-country and track. I need to know whether I will ever be able to do these things again without chronic pain.
hi,
I got diagnosed with RSD a few months ago after a major surgery. If you are not in a lot of pain, I don't see why not. RSD is painful, but with medicine, improves a lot(for me anyway). If you got diagnosed with RSD before it was in the later stages, then there is a good chance it will go away, but it takes time. My neurologist said I am not going to wake up one morning and feel 100% better, and can be months,or even years before i am fully recovered. I would listen to your doctor, and take your medicine, and hoprfully your pain starts to fade away.
good luck=)  (+ info)

I have Reflex Sympathetic Dystrophy, I now have Scoliosis, I'm bent right over about 40 degrees. Any help?

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Please get a referral to a scoliosis specialist for an exam if you haven't already done so. The specialist will have the best chance of helping you. I don't think this forum has the experience to be of much help.  (+ info)

Helpp. Reflex Sympathetic Dystrophy, (RSD or CRPS)?

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Does anyone know of a For-Profit Reflex Sympathetic Dystrophy Foundation in the Massachusetts/Connecticut area?
please helpp =]
All I could find were RSD support groups, you could start by calling or emailing them. I am sure they could direct you to a Foundation.


Abington, Massachusetts

Support Group for Children in Pain
For children
6-18 years of age and their families

Meets 1st Wednesday
United Church of Christ
Abington
(on Route 18)

Judy
Tel: 781.871.8803
Between 9 am - 5 pm
[email protected]

_______________________

Mansfield, Massachusetts


Phone support
call between 11 am and 5 pm Lisa Shea
Tel: 508.339.6064
[email protected]

____________________

Weymouth, Massachusetts


Meets 4th Tuesday
5 to 7pm
South Shore Hospital
Center 2 Classroom

Carol Sansone
Tel: 781.340.8352
________________



Worcester, Massachusetts

Telephone support only
Mary La Bree
Tel: 508.595.0207

___________________

Here is the contact info for the International Research Foundation for RSD/CRPS:

Julie A. Stann
Executive Director
7612 Woodbridge Blvd
Tampa, Florida 33615 USA
Tel: 813 907-2312

Maureen Davis
Mary Davis
Business Office
911 SW 37th Terrace
Cape Coral, Florida 33914 USA
Tel: 813 217-5538

e-mail: [email protected]  (+ info)

Complex Regional Pain Syndrome/Reflex Sympathetic Dystrophy?

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Does anyone here suffer from this? What can you tell me about it. My husband has had it for 7 years now and is completely miserable and it's getting worse with no new answers. Anybody's input would be appreciated.
This syndrome is very hard to treat. I can tell you that they don't know a whole lot about it and every patient reacts differently with different treatments. Usually involves taking anti-inflammatory, antidepressants. sometimes its helpful to go to a pain clinic at a big hospital. they also incorporate physical therapy with psychotherapy to help with the treatment. It also is a long process.  (+ info)

Reflex Sympathetic Dystrophy help?

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Just found out that i have Reflex Sympathetic Dystrophy the pain specialist put me on something called lycrica and lydoderm patch i have know idea how to spell them but kept me on my hydrocodone 7.5 now i started taking the meds like i was told and they haven't done anything how do i go in to ask for stronger pain meds without sounding like a scumbag>???
I've read that in some cases stronger meds help while your doing all of this.. Im kinda feeling weird cause the doc told me she wants to give me a epadural before i got to PT and there is no way im doing that.... i don't do needels
First, remember that with RSD/CRPS, treatments may work for some people and not others. My suggestions to you are based on my own 12-year experience, as well as the experience of countless other people I've been in contact with over the years.

Give the Lyrica time to work. It may take a few weeks to feel an effect, if any. As for stronger pain meds, they help some people...but really, they're not usually particularly effective for this kind of pain (nerve pain). They may help some, though. And in my opinion, you shouldn't be shy about asking for them. You've been diagnosed with a very painful condition (the most painful, according to some sources)

There are other medications that have proven a bit more helpful. I personally responded well to blood pressure medications (Clonidine and nifedipine). There are many other types of medications out there that may be helpful, some of them kind of surprising. You and your doctor just have to look really hard.

As for the "epidural," it's actually fairly important. The general first step in treating RSD/CRPS is a series of sympathetic nerve blocks (lower limb: lumbar sympathetic blocks, upper limb: stellate ganglion blocks). They involve needles, and not little tiny ones either. I was 14 years old when I started getting blocks, and I had to get over my fear of needles really fast.

The truth is, the blocks aren't so bad. If the pain and disability from the RSD is incapacitating you enough, you'll do whatever you need to do to try to help. Unfortunately, invasive procedures are the norm with this condition. I eventually got used to it. I even looked forward to blocks, because they helped!

It's really hard to do the necessary physical without some serious pain relief, and I found therapy to be more effective, no matter how hard I tried, when the RSD was in check. I'm not talking about just pain, I'm talking about the side of RSD that few people acknowlege (doctors AND patients)---the vascular symptoms and movement disorder that are often a part of this disease.

I have one last piece of advice, and that is to do plenty of research. It not only gives you some more ideas of treatments that may be effective for you, it also gives you some power in a pretty difficult situation.  (+ info)

I have Reflex Sympathetic Dystrophy in my left arm, what can I do?

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Well, since you have the diagnosis, you must have seen a doctor. They should get you into physical therapy for the arm. There are protocols for RSD in physical therapy to decrease the pain and sensitivity of the area while keeping and increasing range of motion and muscular strength.

If therapy does not help, you could go on the medical track and get prescribed drugs for the neurologically mediated pain. Neurontin is a common drug used for this. Also, medical doctors would recommend a sympathetic ganglion block. This involves shooting the origin of the nerves (which is in the neck) with a numbing agent. Sometimes this stops the symptoms completely, sometimes for just a short period of time, and sometimes not at all.

On the natural-based medicine track, you could get evaluated to find any problems with organ functioning to include problems with producing or utilizing hormones and neurotransmitters. Then recommendations for supplementation to support the nerve tissue and the affected organs could be done.

In any event, consult with your medical doctor on the medical track and find a Chiropractor who practices natural-based medicine or a Naturopath to go about the natural track. Good luck.  (+ info)

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