RSD (Reflex Sympathetic Dystrophy)? What has helped you the most in pain blocking?

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Ridiculuslycurious, will you resubmit your answer because it wasn't posted.
My spinal cord stimulator has helped me the most, but my biggest problem has been my scarring with it, and I have been unable to overcome this problem so currently I do not have much that helps my pain, but one other thing that helped me with my pain were- Sympathetic Blocks (which had 100% pain relief, but it was only temporary lasting 1-2 weeks), and I am currently waiting to see if I can get into Dr. Harbut in Arkansas for Ketamine treatment. Everybody is different and it can take people many things to find something that helps their pain. Good luck!  (+ info)

Reflex Sympathetic Dystrophy and Nightmares?

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Some of us are on Meds and some are not so we know it doesn't have to do w/ the Meds. But we all have horrible nightmares now since we got this horrible disease in the upper body. Anybody got a clue as to why????
I think it's probably more likely due to medication side effects than anything else. Either that, or it's due to random differences between individual people.  (+ info)

Is it possible to have both Thoracic Oulet Syndrome & Reflex Sympathetic Dystrophy?

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I have been in pain off and on for about 10 years, & most recently, everyday since 10/10/06. I came upon my medical records dtd 8/99 and a neuro dr said that I had both.This dr informed my internest, but not me. I was told I had Raynaud's & Fibromyalgia,Carpel Tunnel. I was seen recently by a Neuro doc in So Ca and he said RSD, not TOS. I'm aware there are different types of TOS. My symptoms are on my left side upper torso.Numbing,tingling,chest tightnesss(pain),muscle weakness,headache,neckache,face is tingling & numb,pressure behind left side of face,shoulder front&back discomfort,lef side reacts to all temp changes cold &hot.I can't sleep on my right side(left side hurts),left hand changes color to red ith the cold and heat as does my face does the same sensing temp change (hot & cold). I was told to take neuronton. I also have chronic asthma on top of it.The neuro doc in 99 said I had both & to get pt to help. Had pt for firbro & mde symptoms worse. Any input.Thanks, Marla
What did the therapist do for your fibro?? I'm a PT would have gotten you into a water program esp with the RSD. You really have to be careful with the modalities. Ther Ex is the best treatment for the fibro.  (+ info)

i have reflex sympathetic dystrophy and i suffer from extreme pain i have claimed dlabenefit will i get it?

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i have claimed both mobility and care components as i need help 24/7 and i am in great pain dss informed me they have all information and will let me kno asap please can ypu tell me if successful how much can i claim
It depends on how bad your RSD is, how you got your RSD, etc. I would suggest talking to your doctor about getting disability, and see what they have to say. Good luck!  (+ info)

Reflex sympathetic dystrophy cause from lobectomy right middle?

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My sister has been diagnosed with RSD caused from lobectomy right middle
I don't know what your question is, Your sisters RSD is probably a result of a minor stroke caused by the Brain surgery (It was the brain and not the lungs I am assuming) since RSD can be a complication of a heart attack, stroke, shingles. In most cases treatment with Physiotherapy, and corticosteroid drugs cures it. although it may take a couple of years.  (+ info)

who can help with reflex sympathetic dystrophy or complex regional pain syndrome?

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Living in MS now. Human bite 2 rt hand in KY. I was diagnosed 3 yrs ago. I am under a neurologist care w/observance from prim. doct. The neuro. recently referred me to a pain mana. Upon his physical review I did not have all the visible "positive" symptoms for CRPS/RSDS. Got the letter yesterday. I began to cry and had to stop otherwise it would have aggrevated the normal pain. Had a nerve conduct. test in Feb. have good circulation and that doctor looked @ my records and wondered why the prev. doct (in KY) did not complete the nerve conduct tests.
I have symptoms that come randomly- soreness, radiating pain up my arm, tingling/numbness in partial hand up arm & mirrors on lft., burning, cannot handle coolness nor cold temps. sends me into tail spin, swelling, nails are ridged and grow quickly(cut every 2wks work w/small children), weakness in arm esp. if over used,
This spec. doc. & his male nurse(in KY) made me feel as though I was crazy w/my sympts. & no physical proof.
Yes, unfortunately your story isn't all that uncommon. 12 years ago, when I was first injured, RSD wasn't even as well-known as it is now. As a result, it took three years to get a diagnosis, with a lot of insinuations about my mental health along the way. And 12-year-olds have enough to deal with as is.

Some people (especially kids) have symptoms that come and go. Please go to http://www.rsds.org and contact them about finding a doctor in your area. I really think this is your best bet. A doctor who knows a lot about RSD/CRPS will be able to do the correct tests to confirm your diagnosis (or not) as well as be able to treat you.

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What specifically do you need to know? RSD/CRPS is a condition that is not yet particularly well understood. Most believe it is a neurological disorder, which usually (but not always) follows some kind of physical trauma (an injury, surgery or something like that).

RSD/CRPS usually (but again, not always) starts in an arm or leg. The condition effects the skin, nerves, muscles, blood vessels and bones. The most common, classical symptom is severe burning pain out of proportion to the injury. Along with that, RSD usually causes extreme sensitivity to touch, called allodynia. Even a breeze on the effected area can cause severe pain.

Commonly, there are color and temperature changes in the effected area. The effected area may go from red and warm to blue and cold (cyanotic) quickly and with no logical reason.

Muscle spasms are common, as well as weakness and eventual atrophy. Some patients develop severe dystonia, leaving the affected limb pretty much useless.

There are about a million different treatment options, and not all of them work for all people. Medications like Neurontin and Lyrica are often used as first-line drugs, because they are believed to work by calming the nerves that may be the problem in RSD.

Sympathetic nerve blocks are usually tried. For upper limb RSD/CRPS stellate ganglion blocks are done, and for lower-limb, lumbar sympathetic blocks are done. The blocks should be done in a series.

Spinal cord stimulators are pretty popular to treat RSD. The SCS is an implanted device that "interrupts" pain signals in the spine, causing a tingling sensation in the effected area.

Last but not least, physical therapy is an important part of RSD/CRPS treatment. It is important to maintain function in the effected area. In some cases, especially in children, aggressive physical therapy may result in remission of the condition.

As for who can help, most doctors who treat RSD are pain management physicians (anesthesiologists) or neurologists. If you're looking for a doctor to treat RSD/CRPS, I really recommend contacting the RSDSA---they were very helpful for me many years ago. http://www.rsds.org

Sorry for writing a book, but since your question wasn't really specific I decided just to tell you a whole bunch of stuff that you might find helpful.  (+ info)

reflex sympathetic dystrophy?

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I was just diagnosed with RSD. I have found in the past that narcotic opiod based medication works best for my condition. The emergency room attending physician told me to see my regular physician in the morning to discuss pain management. How do I go about discussing opoid pain relievers with my doctor?
BASICALLY ITS A LIFETIME ARGUEMENT ...GOODLUCK AND GOD BLESS YOU AND U FIND A DOCTOR WHO WILL LISTEN WITH HIS HEART AND NOT HIS DEGREE ON HIS WALL.  (+ info)

Will RSD( Reflex Sympathetic Dystrophy) cause the loss of control over the bladder and the bowel?

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I cannot find that listed as a symptom, some links below may help you...;  (+ info)

Anyone out there have Reflex Sympathetic Dystrophy?

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Stellate ganglion blocks have not worked and now I use a TENS unit almost daily.
How do you cope? What have you tried to help you out.
My case is not as severe as some and most people do not notice the physical appearence but, it can bring me down at times.
My wife has it, both feet.

They installed a spinal cord stimulator device which functions like an internal TENS unit. It "jams" the pain signals from her feet.

Depression is very much a part of chronic pain. I know it sounds silly, but a lot of depression management is being aware of what gets you down and changing your thinking strategies. Prescribed meds also are wonderful, and can help you with the above.

I can't tell you how awed I am by my wife pushing on with this. I'd be a wuss with that kind of pain. She keeps on going for the most part, and listens to her body when it gets too much.

Talk to your doc about depression, they can't help if they don't realize that's an issue.  (+ info)

Does reflex sympathetic dystrophy cause eye stigma?

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i don't no do you want sex?only joking i'm lauren how are you i think it does babes right bye.  (+ info)

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