What is the cure for spinocerebellar degeneration disease from all over the world?

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I have watch One Litre of Tears drama,it is very sad.For me,if I have become Kitao Aya.I think I can't accept it and cried out loudly.But Aya is strong and great person.I want to know if there any cure for this disease and what cause it.
There is no cure yet. It's genetic, passed down from your parents (close or far in your family tree).
Hi,

My name is Michel Beaudet, I'm 47, have FA and live in Quebec, Canada.
I'm sending this message to invite people to join a list for those with ataxia. The list is called Internaf and
there's also a website full of info at http://internaf.org

International Network of Ataxia Friends is a mailing list for ataxia patients and family which serves as a support group and information exchange vehicle. There are currently over 730 subscribers from more than 40 countries worldwide.
Subscriptions to INTERNAF is free.
For info on how to subscribe, go see, http://internaf.org/network/services.html or
for email only access click here and send: [email protected] or
for full yahoogroups features access go to http://groups.yahoo.com/group/internaf/join

Bye
ps: Don't hesitate to email me if you have questions about internaf
--
Michel Beaudet
[email protected]
Internaf - INTERnational Network of Ataxia Friends
http://pages.infinit.net/macmike
http://groups.yahoo.com/group/internaf
http://www.internaf.org  (+ info)

What are the symptoms for Spinocerebellar Degeneration/ataxia?

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I read wiki,and they made it too complicated to understand for me.
(Please don't leave insults about me not understanding if you do.)
Can someone basic out what the symptoms are?
Affected individuals initially develop poor coordination of movement, which is the definition of ataxia. Developing poor movement coordination in patients is manifested clinically by difficulty in walking, abnormalities in hand or eye movements, and speech difficulties. Generally, the age of onset is usually after 18 years old, making it typically an adult-onset disorder. The severity of progressive degeneration depends primarily on the underlying defect


Visit http://www.answers.com/topic/spinocerebellar-ataxia  (+ info)

What's the difference between Multiple Sclerosis and Spinocerebellar Degeneration?

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are they the same ? what's the defference between them?
Spinocerebellar degeneration is a rare inherited neurological disorder of the central nervous system characterized by the slow degeneration of certain areas of the brain. Symptoms begin during adulthood. It is a form of Spinocerebellar ataxia (SCA), one of a group of genetic disorders characterized by slowly progressive incoordination of gait and often associated with poor coordination of hands, speech, and eye movements. Frequently, atrophy of the cerebellum occurs. The hereditary forms of the disease are genetic, meaning they are caused by a genetic defect which was present since a person's birth.

MS is an autoimmune disease in which the immune system attacks the central nervous system, specifically attacking the myelin sheaths surrounding the nerve fibers. The areas of demyelination are replaced by hard, plaque-like lesions called scleroses (thus "multiple sclerosis," or "many scars"). We don't yet know exactly what causes MS, but many factors, such as heredity, ethnicity, place of origin, place of childhood, etc. are involved.

Spinocerebellar ataxia can often be misdiagnosed as MS, but MRI can clear that up. In spinocerebellar degeneration, often the cerebellum has visibly shrunk. In MS, white lesions are visible throughout the gray and white matter of the brain, and usually there is little atrophy of the brain, although in latter stages of the disease, atrophy can occur.

hth  (+ info)

what is the medicine to cure the spinocerebellar degeneration disease?

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people say's that the people who has this kind of disease cannot be no longer know how to walk,talk,etc.
Because this kind of disease has a major role to our daily living and specially in our brain.
no cure still.. try watching "one liter of tears"
story of a teen who has the same disease..  (+ info)

what is the cure for spinocerebellar degeneration disease, if there is?

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and what may be the causes for this?
if there's no cure, is there a way to lengthen the lifetime or somehow help the patient get more life?
There is no known cure for spinocerebellar ataxia, which is a progressive disease (it gets worse with time), although not all types cause equally severe disability.

Treatments are generally limited to softening symptoms, not the disease itself. The condition can be irreversible. A person with this disease will usually end up needing to use a wheelchair, and eventually they may need assistance to perform daily tasks.

The treatment of incoordination or ataxia, then mostly involves the use of adaptive devices to allow the ataxic individual to maintain as much independence as possible. Such devices may include a cane, crutches, walker, or wheelchair for those with impaired gait; devices to assist with writing, feeding, and self care if hand and arm coordination are impaired; and communication devices for those with impaired speech.

Many patients with hereditary or idiopathic forms of ataxia have other symptoms in addition to ataxia. Medications or other therapies might be appropriate for some of these symptoms, which could include tremor, stiffness, depression, spasticity, and sleep disorders, among others.

Both onset of initial symptoms and duration of disease can be subject to variation. If the disease is caused by a polyglutamine trinucleotide repeat CAG expansion, a longer expansion may lead to an earlier onset and a more radical progression of clinical symptoms.

Cute and pasted from wiki.  (+ info)

What is the cause of spinocerebellar degeneration?

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Are there any organizations where i can donate for this disease???

Is there any possible cure?!?!
What are Ataxias and Cerebellar or Spinocerebellar Degeneration?
Ataxia often occurs when parts of the nervous system that control movement are damaged. People with ataxia experience a failure of muscle control in their arms and legs, resulting in a lack of balance and coordination or a disturbance of gait. While the term ataxia is primarily used to describe this set of symptoms, it is sometimes also used to refer to a family of disorders. It is not, however, a specific diagnosis.

Most disorders that result in ataxia cause cells in the part of the brain called the cerebellum to degenerate, or atrophy. Sometimes the spine is also affected. The phrases cerebellar degeneration and spinocerebellar degeneration are used to describe changes that have taken place in a person’s nervous system; neither term constitutes a specific diagnosis. Cerebellar and spinocerebellar degeneration have many different causes. The age of onset of the resulting ataxia varies depending on the underlying cause of the degeneration.

Many ataxias are hereditary and are classified by chromosomal location and pattern of inheritance: autosomal dominant, in which the affected person inherits a normal gene from one parent and a faulty gene from the other parent; and autosomal recessive, in which both parents pass on a copy of the faulty gene. Among the more common inherited ataxias are Friedreich’s ataxia and Machado-Joseph disease. Sporadic ataxias can also occur in families with no prior history.

Ataxia can also be acquired. Conditions that can cause acquired ataxia include stroke, multiple sclerosis, tumors, alcoholism, peripheral neuropathy, metabolic disorders, and vitamin deficiencies....




Organizations

National Ataxia Foundation (NAF)
2600 Fernbrook Lane North
Suite 119
Minneapolis, MN 55447-4752
[email protected]
http://www.ataxia.org
Tel: 763-553-0020
Fax: 763-553-0167

Friedreich's Ataxia Research Alliance (FARA)
P.O. Box 1537
Springfield, VA 22151
[email protected]
http://www.CureFA.org
Tel: (703) 426-1576
Fax: (703) 413-4467


International Joseph Disease Foundation, Inc.
P.O. Box 994268
Redding, CA 96099-4268
[email protected]
http://www.ijdf.net
Tel: 530-246-4722

WE MOVE (Worldwide Education & Awareness for Movement Disorders)
204 West 84th Street
New York, NY 10024
[email protected]
http://www.wemove.org
Tel: 212-875-8312 866-546-3136
Fax: 212-875-8389


National Organization for Rare Disorders (NORD)
P.O. Box 1968
(55 Kenosia Avenue)
Danbury, CT 06813-1968
[email protected]
http://www.rarediseases.org
Tel: 203-744-0100 Voice Mail 800-999-NORD (6673)
Fax: 203-798-2291





Prepared by:
Office of Communications and Public Liaison
National Institute of Neurological Disorders and Stroke
National Institutes of Health
Bethesda, MD 20892  (+ info)

How do people who suffer from spinocerebellar degeneration die?

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pneumonia or sepsis.  (+ info)

How many types of Spinocerebellar Ataxia are there?

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How many types of Spinocerebellar Ataxia are there and which one is the worst type which can never be cured? Because my friend's brother got in a car accident and he broke his spine and now his leg is paralyzed and the doctor said he got this disease and its the worst of its kind and can never be cured. Please also tell me what type that is please.
There are about 30 know SCA's plus a few still unknown. That's not counting the other types of dominant and recessive hereditary ataxia's. In all it comes to more or less 100 types.

My name is Michel Beaudet, I'm 46, have FA and live in Quebec, Canada.
I'm sending this message to invite people on this list to also join
another list for those with ataxia. The list is called Internaf and
there's also a website full of info at http://internaf.org

International Network of Ataxia Friends is a mailing list for ataxia
patients and family which serves as a support group and information
exchange vehicle. There are currently over 650 subscribers from more
than 40 countries worldwide.
Subscriptions to INTERNAF is free.
For info on how to subscribe, go see, http://internaf.org/network/services.html or
for email only access click here and send: [email protected] or
for full yahoogroups features access go to http://groups.yahoo.com/group/internaf/join

Bye
ps: Don't hesitate to email me if you have questions about internaf
--
Michel Beaudet
[email protected]
Internaf - INTERnational Network of Ataxia Friends
http://pages.infinit.net/macmike
http://groups.yahoo.com/group/internaf
http://www.internaf.org
  (+ info)

The first system of a crippling disease called Spinocerebellar Degeneration?

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Also called and better know as SCA Spino Cerebellar Ataxia
usually the first symptoms (manifestations) are related to gait (walking) but since there is more than one SCA the manifestations at the begining may be varied.
good luck with your journey
good information and too headdy
http://www.ninds.nih.gov/disorders/ataxia/ataxia.htm  (+ info)

Is there a support group for people with Spinocerebellar Ataxia?

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I used to belong to a support group for people with spinocerebellar Ataxia but I bought a new desktop and I lost all my contents in my folders; I'd like to get back in the group but I can't find it. It's been a year since I quit posting.
I don't know if these would be helpful for you, but I will provide some links.

http://www.ataxiasupport.org/
http://www.scars.org.au/
www.experienceproject.com/...Spinocerebellar-Ataxia.../91756  (+ info)

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