FAQ - spinocerebellar degenerations
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Can I interview someone who has spinocerebellar ataxia?


I need to interview someone who has spinocerebellar ataxia for English. If I may ask. :[ Please tell me what you did when you found out you had it. How has this affected your daily life? How do you deal with it? What are the symptoms you have? How do you feel about this? Anything else you want to tell me about? Sorry if I am asking rude questions... this is required for my english homework, so again sorry and thanks :]
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that's an interesting assignment! go to the yahoo group u_r_not_alone (may have put the underscores in the wrong places, but you'll find it!) and ask there. it's a support group for people with ataxia. the group leader is chris, and he's very willing to answer what he can. tell him missy gave you his name, and tell him i said to treat you right! i'd put you into contact with my father as he was diagnosed 15 years ago, but he doesn't have email access this week! best of luck on your assignment!  (+ info)

spinocerebellar degenaration, any doctor or profetional here?


I resently read a book about a girl who used to have Spinocerebellar Ataxia, and pased away at age 25. I was wondering if there is any profetions that could tell me if there is any inveromental cause of this disease. I have read tons of articles, and books and every page on the web about this disease, but nothing was really espesific about causes and symtoms. will you help, please?
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Try going to http://www.webmd.com and type it in the search bar,maybe you find out more info there regarding this,hope this helps you out.  (+ info)

If i am sufferred with Spinocerebellar ataxia can I donate bone marrow?


I wouldnt trust anyone on Yahoo!Answers with answering this question for you, get to the doctors or hospital, they will tell you exactly.
Sorry to hear of your suffering, also, its always nice to hear of people wanting to donate!  (+ info)

Are there any possible future treatments of Spinocerebellar Ataxia?


Please provide bibliography~
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Did you ever try searching Google Scholar?

Below is a list you can check out, I would look for the most current dates like 2007 & 2008.

http://www.google.com/search?hl=en&q=Spinocerebellar+Ataxia+%22future+treatments%22+research&btnG=Search






  (+ info)

best doctor for spinocerebellar degeneration?


what would you recommend? anywhere in the world is okay
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Why do some people get spinocerebellar ataxia? What is the cause?


It's an hereditary disease. It's genetic. It can be recessive or dominant. Download http://ataxia.org/pdf/AtaxiaFAQ.pdf
Hi,

My name is Michel Beaudet, I'm 47, have FA and live in Quebec, Canada.
I'm sending this message to invite people to join a list for those with ataxia. The list is called Internaf and
there's also a website full of info at http://internaf.org

International Network of Ataxia Friends is a mailing list for ataxia patients and family which serves as a support group and information exchange vehicle. There are currently over 680 subscribers from more than 40 countries worldwide.
Subscriptions to INTERNAF is free.
For info on how to subscribe, go see, http://internaf.org/network/services.html or
for email only access click here and send: [email protected] or
for full yahoogroups features access go to http://groups.yahoo.com/group/internaf/join

Bye
ps: Don't hesitate to email me if you have questions about internaf
--
Michel Beaudet
[email protected]
Internaf - INTERnational Network of Ataxia Friends
http://pages.infinit.net/macmike
http://groups.yahoo.com/group/internaf
http://www.internaf.org  (+ info)

What major is needed for a career in neurobiology with an emphasis in SCA (spinocerebellar ataxia) disease? ?


After watching the Japanese drama 1 Litre of Tears, it made me become more interested in this incurable disease.
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Biology, chemistry or neurobiology in undergrad - then a doctoral (PhD) program in neurobiology, neuroanatomy, or something similar.

Best of luck to you.  (+ info)

Has anyone been diagnosed with spinocerebellar ataxia which is yet unmarked?


I was just diagnosed and I don't know what to do next!!
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I am sorry to hear this. I am sure you were told that there is nothing much they can do. My cousin in Switzerland had this as well, and all she said is that to prepare yourself physically and mentally for how your life is going to change because you don't want to wish you could still go hike Mount Everest after you are in a wheelchair.  (+ info)

what causes the spinocerebellar degeneration?


some of that might be a genetic disease.It is usually a genetic problem that leads to degeneration.If you need more information go to google and search for "pubmed" then click on pubmed and the you will have a site that can search for you all the medical journals.  (+ info)

Childrens suffering from eyes heredo macular degenerations? please help?


My daughters are suffering from heredo macular degenerations of eyes. Please help /advise whether there is any treatment available in india and if yes at which places.
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If you have a computer you need to do some research..Here in australia trans fat is known to cause macular degeneration trans fat is vegtable oil that changes it's chemical profile when heated it then becomes a Poison it is in junk food and packaged products..it is suggested we use olive oil and coconut oil for cooking. I Don't know what your daughters diets are like but if you look on the web and research this will give you dietary tips, live off the land if you can, and eat food in it's natural state(unprocessed) .
Also look for hidden health problems i don't want to scare you but Diabetes can cause eye problems.. but i am not sure it is the same problem they have, again use the web to do your research, it really is a wonderfull tool.
Good luck i bet you are heartbroken.  (+ info)

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