tarlov cysts?

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i have had been diagnoised with tarlov cysts. i seen a nuerosurgeon today and he stated i have inflammation of my joints. i have severe lower back pain and have incontinence and also have had a urinary tract infection. i can only stand at the sink for 5-10 minutes and it feels like my back sweels up to the point that i have to sit down. i also have pain from my back to my feet. he denied me pain medication and i am really suffering. he stated that i got the tarlov cysts from birth. from what i have read this don't seem possible. i realize dr's are not to educated with this rare condition and they look at me like i am crazy. i really don't know what to do. has anyone experienced this or have any advice for me because i don't know the next step to take. he suggested i go and get steriod shots in my back but from what i read it with only be temporary relief...someone please help..
I'm so sorry you are having such problems! Most times, tarlov cysts cause no symptoms and you are one of the unlucky ones. Those who do have symptoms find that the problem occurs usually after experiencing a shock, trauma, or some sort of exertion.

Most treatments are temporary:
draining the cyst
corticosteroid injections
drugs for chronic pain and depression
injecting fibrin glue into the cyst

However, do not lose hope! A very experienced neurologist can do a resection...surgical removal of the cyst. The resection would give pain relief and prevent further neurological damage (since the cyst would no longer be there to press on the nerves). Some even better news is that once removed, the cyst will not come back! If your neurologist is not experienced enough to do this, please ask for a referral to one who can. You should not have to suffer like this! If he won't or can't refer you to someone, please call your family doctor or contact a hospital in your area and they might be able to give you the name of a neurologist who can help you! Good luck!  (+ info)

What is a tarlov cysts on spine?

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I have a spinal tarlov cyst..
They are a bulge in the covering of the spinal cord (in simple terms!!!). The technical description is below.


"Perineurial (Tarlov) cysts are meningeal dilations of the posterior spinal nerve root sheath that most often affect sacral roots"  (+ info)

has anyone ever been diagnosed with tarlov cysts..please help?

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i have had severe lower back pain and i had an mri and was dx with tarlov cysts on my s2 and i seen a nuerosugeon and he stated i was to young for an operation so he stated i had inflammation of the joints. i am waiting for an appointment to go for steriod shots in my back. the illness is not familiar to a lot of dr's and i was told i had this since birth. they won't vavidate what i am going through and i feel helpless. i can't even stand for more than 5-15 minutes while doing dishes....
What are Tarlov Cysts?
Tarlov cysts are fluid-filled sacs that most often affect nerve roots in the sacrum, the group of bones at the base of the spine. These cysts can compress nerve roots, causing lower back pain, sciatica (shock-like or burning pain in the lower back, buttocks, and down one leg to below the knee), urinary incontinence, sexual dysfunction, and some loss of feeling or control of movement in the leg and/or foot. Pressure on the nerves next to the cysts can also cause pain. Tarlov cysts may become symptomatic following shock, trauma, or exertion that causes the buildup of cerebrospinal fluid. Women are at much higher risk of developing these cysts than are men.  (+ info)

can you get SSI dissability for tarlov cysts on spine, herniated disk 2 narrowing of the spine and disk dege

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I have 2 herniated disk narrowing of the spine, and a tarlove cysts. and herniated disk degenative disease can you get SSI diability for thees condition's??? Thank's in advance for the info...
Fill out all the forms, and submit - you have nothing to loose, and if your application is Rejected! - see a good lawyer - you have tons of them in the US that specialize in just Your Question. Good Luck, there is nothing more debilitating then a bad back! you have my sympathy. (in the meantime, see a Acupuncturist, they work wonders, I know and I walk pain free to this day!  (+ info)

Has anyone out there heard of Tarlov Cysts. If so what all do you know about it>>?

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Tarlov cysts are fluid-filled sacs that most often affect nerve roots in the sacrum, the group of bones at the base of the spine. These cysts can compress nerve roots, causing lower back pain, sciatica (shock-like or burning pain in the lower back, buttocks, and down one leg to below the knee), urinary incontinence, sexual dysfunction, and some loss of feeling or control of movement in the leg and/or foot. Pressure on the nerves next to the cysts can also cause pain. Tarlov cysts may become symptomatic following shock, trauma, or exertion that causes the buildup of cerebrospinal fluid. Women are at much higher risk of developing these cysts than are men.  (+ info)

Can chemo (carboplatin/taxol) make Tarlov Cyst symptoms worsen?

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It was discovered about ten years ago that I have 3 Tarlov cysts. Last year I was diagnosed with lung cancer and had chemo with taxol and carboplatin. I had a reaction to the 1st Taxol infusion, extreme pain, especially in the area of my tc. I've still got daily leg pain and it's been over a year since I finished chemo. I'm wondering if the chemo damaged nerve endings in the tc.
I don't know what a TC is, but I do know that Taxol nerve side effects can take a few years to resolve, and there may be permanent neuropathy.  (+ info)

What causes some people to form cysts in their body while others do not?

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I get Baker's Cysts in my knees and Ovarian Cysts on my ovaries. What's the deal with all of the cysts?! Are the two connected? I mean, am I just more prone to developing cysts in different parts of my body or is this just a coincidence that I have cysts in two different parts of my body?
i've been having ovian cysts since i was 20. they don't know what causes them but i've heard it can be stressed induced. i don't think theyre connected though  (+ info)

What causes deep cysts on the chin close to the corners of your mouth?

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I get deep cysts that wont come to a head on my chin near where like the telefone receiver would go. What causes these? are they hormonal? how should I deal with them other then getting constand cortisone shots. Any suggestions! over the counter or prescription I cant live with these!
it could be from constant keeping the telephone receiver at that location for a long period of time. I would say start using a phone with a optional headset jack or use a speakerphone.  (+ info)

How common is it to have recurring ovarian cysts after you have had one removed? What is good prevention?

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I recently had surgery to have a cyst removed that grew out of my left ovary. It was huge, 20 cm that filled my adomen, making it huge and painful. I am wondering how often people have more problematic cysts after one is removed? Also what is a good way to prevent another one from growing?
  (+ info)

Can sebaceous cysts really be healed by applying a hot water bottle?

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Just wondered if anyone has had any success with getting rid of cysts in this way. Also, what can be done to prevent getting them? I've had 7 or 8 over the past 20 years on my back neck and face. I've never had a satisfactory answer from a GP on prevention methods and thought it might be time to put the question to the masses.
Other than deep cleansing in an attempt to keep the ducts free of debris, there is little you can do. A hot-water bottle won't help.  (+ info)

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