A life in the shadow - Erythropoietic Protoporphyria ... ... isolation and a lack of understanding from peers has a long term impact on patients diagnosed ... youtube.com - Mon, 12 Jul 2010 19:38 05:47 | ||
Erythropoietic porphyria Top # 17 Facts - YouTube Erythropoietic porphyria Top # 17 Facts ... Haemophilia and Porphyria - Royal diseases from ... youtube.com - Mon, 16 Nov 2015 14:00 02:16 | ||
Australian man with an unbearable genetic disease ... Adrian was diagnosed with the genetic disease Erythropoietic Protoporphyria ... existence is ... youtube.com - Sun, 20 Dec 2009 15:56 07:53 | ||
Boy Survives with Vampire Disease, Porphyria - YouTube Boy Survives with Vampire Disease, Porphyria. Hot Coffee ... "Congenital Erythropoietic ... youtube.com - Mon, 02 Mar 2015 18:50 01:52 | ||
Living with Erythropoietic protoporphyria (EPP) - YouTube 5 international people living with EPP and members of the Porphyria community on ... youtube.com - Fri, 16 Aug 2013 02:15 26:42 | ||
Oliver's Medical Journey - YouTube This is our baby Oliver. He was born with a very rare metabolic disease called Congenital ... youtube.com - Mon, 29 Jul 2013 19:54 05:35 | ||
Part One - "Absolute intolerance to light ... ... Mikey, an Australian man with Erythropoietic Protoporphyria (EPP). ... Haemophilia and ... youtube.com - Tue, 07 Sep 2010 00:46 01:57 | ||
What is Porphyria?? (The Disease) - YouTube The porphyrias are inherited or acquired disorders of certain enzymes in ... Australian man ... youtube.com - Mon, 29 Dec 2008 03:20 05:15 |