A life in the shadow - Erythropoietic Protoporphyria ...
... isolation and a lack of understanding from peers has a long term impact on patients diagnosed ...
youtube.com - Mon, 12 Jul 2010 19:38
05:47



Erythropoietic porphyria Top # 17 Facts - YouTube
Erythropoietic porphyria Top # 17 Facts ... Haemophilia and Porphyria - Royal diseases from ...
youtube.com - Mon, 16 Nov 2015 14:00
02:16



Australian man with an unbearable genetic disease ...
Adrian was diagnosed with the genetic disease Erythropoietic Protoporphyria ... existence is ...
youtube.com - Sun, 20 Dec 2009 15:56
07:53



Boy Survives with Vampire Disease, Porphyria - YouTube
Boy Survives with Vampire Disease, Porphyria. Hot Coffee ... "Congenital Erythropoietic ...
youtube.com - Mon, 02 Mar 2015 18:50
01:52



Living with Erythropoietic protoporphyria (EPP) - YouTube
5 international people living with EPP and members of the Porphyria community on ...
youtube.com - Fri, 16 Aug 2013 02:15
26:42



Oliver's Medical Journey - YouTube
This is our baby Oliver. He was born with a very rare metabolic disease called Congenital ...
youtube.com - Mon, 29 Jul 2013 19:54
05:35



Part One - "Absolute intolerance to light ...
... Mikey, an Australian man with Erythropoietic Protoporphyria (EPP). ... Haemophilia and ...
youtube.com - Tue, 07 Sep 2010 00:46
01:57



What is Porphyria?? (The Disease) - YouTube
The porphyrias are inherited or acquired disorders of certain enzymes in ... Australian man ...
youtube.com - Mon, 29 Dec 2008 03:20
05:15



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