Post by jkpookie2 »

My husband was diagnosed in 2008. Has tried prednisone, IVIG, methotrexate. He has needed to stop methotrexate due to low platlet counts and unrelated infection. He is getting so weak and is falling frequently now. He is in constant pain in his legs mainly. We are going to need help soon. Are there any organizations that assist with this? Is there any course of action that can be done at this point?

Re: polymiositis

Post by Guest »

In Maryland, John's Hopkins Myositis Center. Have many other alternative. I'm there myself not as bad as it was in the beginning. May God be with you it's a tough fight don't give in.
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