'Wegener Granulomatosis

Carol McCain

'Wegener Granulomatosis

Post by Carol McCain »

I have Dr. Michael Lucke at West Penn Hospital in Pittsburgh Pa. I was not diagnoised with Vasculitis until after I had my right middle lobe of my lung removed last July. It was after that my primary doctor, Dr. Seema Guglani had tissue sample sent to UMPC Presby to have tested after removal of my lobe. Currently I have had 2 Rutoxin treatments (SEPT. 2016) and high doses of Prednisone twice by IV. I went from 60 mg to 2.5 mg of prednisone daily and recently was put on Imuran. My doctor states I am in remission. I retired from my job in January 2017. I read all that I can about Wegener's Disease. It is an auto immune disease with no cure only remission. They do not know how you get it. Mine as affected my lungs and my sinius.

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