FAQ - Anemia, Hemolytic, Congenital
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How do I explain to my job that I have an inherited hemolytic anemia disease?

A lot of people do not know a lot about G6PD, but it's real. I sometimes go into crisis which inables me to be able to do things because my body gets really tired and it can be very painful sometimes. It's kind of like sickle cell anemia.

If you are just being hired, don't tell them yet.

If you're already on the job ask to speak to your immediate supervisor or manager in private. They will help you decide how to deal with it (IE: Whether entire staff need to know, you need certain accommodation in work area, etc.).

Just explain the symptoms that might be visible to others & might affect how others respond to you.

Best of luck  (+ info)

Has anyone experienced problems with the development of hemolytic anemia after taking sulfur based medicine?

If so, what treatment was initiated other than Predisone. I've gone that route and it worked but my body did not "kick in" and I had to have my spleen removed. Still unsure if this will keep my hgb within normal range. May have to go on some other kind of med. Just would like to know if there are others out there in this situation. Guess I just need some support here. It's been rather rough going but I am glad when I awake every AM and see the light of day since it's been a "touch and go" situation. Thanks for any input.

I don't recall being on any sulfur meds, but...

I also have AIHA, had my spleen removed two years ago and I have had no problems with recurrence. I have been told there is no guarantee this will be permanent, but from some of the postings I have read at the AIHA site some have gone as long as 15 years without a recurrence. You may want to visit the site on Yahoo and read the postings. If you have questions or comments there are many there who will be happy to answer your questions. I found it to be a very valuable source when I was diagnosed over 4 years ago. I have listed the site below, please visit it, I’m sure you will find a lot of your questions answered.

Good luck to you.

Faye  (+ info)

My dog has just been diagnosed with AUTOIMMUNE HEMOLYTIC ANEMIA - can anyone who prays pray for him to recover

He's undergoing a blood transfusion and drug therapy and the veterinarian isn't holding out much hope, but as I don't have kids, he's pretty much my son. If anyone reading this prays, can you pray for him to get well? I don't care who you pray to, God, Jesus, the saints, Mary, Gaea, Allah, it really doesn't matter. Please just pray for him. Thank you, and blessings.

I will pray to Saint Martin de Porres one of the saint patrons of animals.  (+ info)

Idiopathic autoimmune hemolytic anemia chances of dying?

my GF has it i need to know what the chance are...
ahh she is 13 turning 14 If she get meidcal Attection she will be alive right she going through surgery she gonna live right?

Idiopathic autoimmune hemolytic anemia is an acquired disease that occurs when antibodies form against a person's own red blood cells. In the idiopathic form of this disease, the cause is unknown.

There are other types of immune hemolytic anemias where the cause may result from an underlying disease or medication. Idiopathic autoimmune hemolytic anemia accounts for one-half of all immune hemolytic anemias. The onset of the disease may be quite rapid and very serious.

Risk factors are not known.

Adults may have chronic, relapsing disease, but in children the anemia is usually short-lived.  (+ info)

Hemolytic Anemia with no insurance! What can we do?

My girlfriend has Hemolytic Anemia and does not have any sort of medical insurance. What can we do about this, if anything? She has zero energy all the time! Is this caused by the anemia?

  (+ info)

Is anyone out there familiar with autoimmune hemolytic anemia?

My 4 yr old has it and I know that its fairly rare. I am especially interested in hearing from parents that have children with it.


I have an autoimmune disorder called "APECED"

Basically with all autoimmune disorders the bodies own immune system is a bit confused and starts attacking good healthy tissues just like it would with a common cold virus.

In the anemia it is attacking the places that produce the red blood cells so as more and more are discarded "naturally" there are less to replace them with.

Causing a shortage or "Anemia"

There are immuno suppresive drugs out there but it was recommended to me that that would be a bad choice, as stopping your immune system would essentually make you "like" having HIV. The less immune system you have may help the anemia but it will also allow you to get every sickness out there...

Hope this helps...

You can check into this more at this site,


also try

www.NORD.com  (+ info)

Why should teenagers care about Autoimmune Hemolytic Anemia?

Don't become neurotic, like you parents have become.
Stop picking at yourself.
Go backpacking.


smile  (+ info)

how do you explain the hemolytic anemia that results from the PK deficiency?

phenylalanine is a vital amino acid used in the synthesis of the hemoglobin proteins. The inability to metabolize phenylalanine effectively means there is less available to make hemoglobin.

Thats my guess anyway  (+ info)

Please! Need information on extra-vascular hemolytic anemia. What tests can be used to find the cause?

Hemoglobin 9.1. Low haptoglobin due to hemolysis. What would IgA show. Spleen related?

  (+ info)

Is severe hemolytic anemia inherited?

When I was 6 I was hospitalized because I had Severe Hemolytic Anemia. I don't know much about it and actually just learned last night that that is what I had. I hadn't really asked any questions about it after it happened, never knew the name of it or anything.
Anyways, I read somewhere that it can be inherited. Is that true?
Any other info you have on it would be nice. I read a little bit about it this morning, but didn't have much time.

According to the wiki article I found it can be both/either inherited or acquired.

This site also says the same thing, but it explains some of the differences, so you might be able to tell which one you had.

I'm sure either way Ava will be fine.  (+ info)

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