Am I The Only One With Blepharophimosis?
Does Anyone Else Have It..?
ibviously some has it, as seen on pictures (+ info
blepharophimosis,ptosis,epicanthus Inversus syndrome?
I need information about the syndrome, I have a 11 month grandchild that was diagnosed with this disease and I need information about it. I found that its' a rare disease and there are under 1000 cases. PLEASE HELP IF YOU CAN.
You can write:
BPEI Family Network
SE 820 Meadow Vale Dr.
Pullman, WA 99163
Phone: (509) 332 6628 USA
Or email: [email protected]
They supply information and support to families affected with such disease. (+ info
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