FAQ - Encephalomyelitis
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What is myalgic encephalomyelitis? Does it cause fatigue?

It may be an immune deficiency. It may be listed as chronic.

Myalgic Encephalomyelitis is Chronic Fatigue Syndrome. Yes, It causes fatigue, yes, it is chronic and it may be immune deficiency-related. See the links below.  (+ info)

What is Acute demyelinating encephalomyelitis ?

Five year ago i was diagnosed with ms and then they didnt know if i really had it. The mri indicated plaques on my brain 10 of them. They did a spinal tap and it indicated that my protein level was high. most thing were presented negative except for mri
i was told it was silimlar in some ways to ms

Acute disseminated encephalomyelitis (ADEM) is characterized by a brief but intense attack of inflammation in the brain and spinal cord that damages myelin – the protective covering of nerve fibers. It often follows viral infection, or less often, vaccination for measles, mumps, or rubella.

Treatment for ADEM is targeted at suppressing inflammation in the brain using anti-inflammatory drugs. Most individuals respond to intravenous corticosteroids such as methylprednisolone. When corticosteroids fail to work, plasmapheresis or intravenous immunoglobulin therapy has been shown to produce improvement. Additional treatment is symptomatic and supportive  (+ info)

Myalgic Encephalomyelitis / Chronic Fatigue Syndrome and Swine Flu?

ME/CFS lowers your immune system. Would this put me at high risk if i contracted Swine Flu? Also, does anyone know when the flu jab will be available? I know there aren't going to be many vaccinations available, but surely the government are going to mass produce them?!?

The ME Association has just published a comprehensive question and answer guide to ME/CFS and Swine Flu:

It is available on the home page of our website: www.meassociation.org.uk

It will be updated regularly (probably weekly) to include the latest developments.

Dr Charles Shepherd
Hon Medical Adviser, MEA  (+ info)

What is Acute disseminated encephalomyelitis (ADEM)?

Acute disseminated encephalomyelitis (ADE) is a neurological disorder involving inflammation of the brain and spinal cord. A hallmark of the disorder is damage to the myelin sheath that surrounds the nerve fibers in the brain, which results in the inflammation.
Acute disseminating encephalomyelitis was first described in the mid-eighteenth century. The English physician who first described the disorder noted its association with people who had recently recovered from smallpox. Symptoms often develop without warning. As well, mental disorientation can occur. The disorder is also known as postinfectious encephalomyelitis and immune-mediated encephalomyelitis. The nerve demyelination that occurs in ADE also occurs in multiple sclerosis. However, the two maladies differ in that multiple sclerosis is long lasting and can recur over time, while ADE has a monophasic course, meaning that once it is over, further attacks rarely occur.
ADE can occur in both children and adults, although it occurs more commonly in children. ADE is not rare, accounting for approximately 30% of all cases of encephalitis (brain inflammation).
Causes and symptoms
Acute disseminating encephalomyelitis can occur as a consequence of a bacterial or viral infection (including HIV), following recovery from infection with the malarial protozoan, or as a side effect of vaccination or another inoculation. ADE is usually a consequence of a viral illness, and occurs most often after measles, followed by rubella, chicken pox, Epstein-Barr, mumps and pertussis (whooping cough). Typically, symptoms appear two to three weeks after the precipitating infection or immunization. Alternatively, ADE may develop with no known associations.

Despite the different causes, the symptoms that develop are similar. A number of non-specific symptoms, which vary from one person to another, include headache, stiff neck, fever, vomiting, and weight loss. These symptoms are quickly followed by lethargic behavior, seizures, hallucinations, sight difficulties, and even coma. Paralysis can occur in an arm or leg (monoparesis) or along an entire side of the body (hemiplegia).
Corticosteroid medication is often prescribed in order to lessen the nerve inflammation. Use of high doses of steroids can often produce a rapid diminishing of the symptoms. Other kinds of treatment depend on the nature of the symptoms that develop.
I hope this is of use to you best wishes and good luck  (+ info)

Recently been diagnosed with M.E (Myalgic Encephalomyelitis/ Encephalopathy)?

I've been ill for quite a while and was recently diagnosed with M.E. I'm now unable to work at all for the time being and money is now a big worry. Does anyone know what benefits I I may be entitled to in England?

  (+ info)

Anyone with Myalgic Encephalomyelitis have this?

Anyone with Myalgic Encephalomyelitis have this?
I had a stomach virus 2 weeks ago and it left me with a relapse. I have found that once again I can do as much during the day than beforehand. Today I hardly did anything, just on the computer and I cleaned up my study a bit, by late afternoon I was feeling so sick and nauseas and sore in my muscles so I went to bed for 2 hours and slept, I've just about had enough of this, it feels like I've gone back a few years in only 2 weeks!

this is personal advice, not medical advice

chronic fatigue syndrome is a real pain in the butt, if i may say, and i'm sorry you have to endure it. post-exertion malaise (which, in your case, was caused by the virus) is the most common cause of relapse. the bad news is that with this damned disease this has to be expected.

the GOOD news is that some interesting studies (particularly a 2004 study) show that CFS can be overcome by a notable percentage of patients, to some degree. some even are able to go back to work

in the meantime, don't push yourself, and when you get a virus or similar, take it as easy as possible. try to find a cognitive behavioral psychologist who understands CFS, and you might find that surprisingly helpful. since your CFS is encephalomyelitis-related, it is possible that, in time, they will find a pharmaceutical to mitigate the symptoms. until then, i wish you the best of luck  (+ info)

how do you diagnose encephalomyelitis?

I can't find any information for diagnosis on the web. is there a test/s for encephalomyelitis? if so why don't people with post-viral fatigue syndrome get tested for this?
is it just symptom based? in which case why aren't all people with post-viral fatigue syndrome recognized as having this??

note: I am not referring to "chronic fatigue syndrome" as it is not necessarily post-viral.

please only answer if you have medical knowledge of this or personal experience :)
thats why "post-viral fatigue syndrome" and "chronic fatigue syndrome" are such inappropriate names. Most patients have alot of those symptoms you've described (ie headaches, fevers, cognitive problems, the list goes on and on)

  (+ info)

experimental autoimmune encephalomyelitis (EAE)?


i am recently reading a research paper about EAE ( animal model of multiple sclerosis)

your question is highly sophisticated for this forum, I would try to first locate labs that are doing MS research in animals, good luck  (+ info)

Have I got ME?Myalgic Encephalomyelitis?

Over the past couple of months I have been going back and forth to the doctors complaining of being run down, constantly tired, a constant head ache and really bad sore throat. They just keep telling me that i have a virus and telling me to take it easy. I've just gone 20 years old and my auntie suffers from Me and says it sounds as though i could also be.
I could sleep for 12 hours and still be shattered i gt tired doing the most simple things like making a brew. Should i ask my doctor to test me for it or would they already of done this if they thought i had it?
Thank you

I've had M.E. for 14 years. there is no blood test to diagnose it yet unfortunately- but by now after 2 months, the dr should be doing a series of blood tests to exclude other things that may be making you feel this way. don't be fobbed off with the 'it's a virus' thing, this has been going on too long! there are plenty of other things it could be, that can be treated. if all tests are negative, the gp may send you to a specialist, ie rheumatologist, immunologist.. the main thing is you get a firm diagnosis of M.E. in order to be able to claim benefits and get help. The M.E. Association is helpful.
good luck x  (+ info)

Could someone tell me what this is, it is really important?

I really need to know exactly what Myalgic Encephalomyelitis is, how to diagnose it, cure it or if there is no cure, how to deal with it. Thank you so much!
Yeah I looked it up, but I wanted someone to like explain to me because I don't really understand. Thanks

http://www.disapedia.com/index.php?title=Myalgic_Encephalomyelitis_(ME)  (+ info)

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