FAQ - Endolymphatic Hydrops
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possible fetal hydrops?

i was 9 weeks and i went into the hospital for an ultrasound and in my report the women wrote POSSIBLE fetal hydrops. what is my chances that my baby really does have fetal hydrops? I am now 12 weeks.

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What is fetal hydrops?

Hydrops fetalis is a blood condition in the fetus characterized by an edema in the fetal subcutaneous tissue, sometimes leading to spontaneous abortion.

Hydrops fetalis can have either an immune or non-immune cause.

Rh disease is the major cause for immune mediated hydrops fetalis

for full details u can check this site out.  (+ info)

Does anyone know about Non Hymune Hydrops???

I was 7 months pregnant when they said my sonn had non hymune hydrops. I still am not to sure what it is and why or how is happens. All aI understand is that it is formation of water in the body!!! Help!!! plz

What is hydrops fetalis?
Hydrops fetalis is a severe, life-threatening problem of severe edema (swelling) in the fetus and newborn. It is also called hydrops. There are two types of hydrops:
Immune - results when the mother's immune system causes breakdown of red blood cells in the fetus. This is the most dangerous problem of blood group incompatibility between the mother and baby.
Non-immune - the most common type; can result when diseases or complications interfere with the baby's ability to manage fluid.

What causes hydrops fetalis?
Hydrops develops when too much fluid leaves the bloodstream and goes into the tissues. Many different diseases and complications can cause hydrops, including the following:
Immune hydrops may develop because of Rh disease in the mother. When an Rh negative mother has an Rh positive baby, the mother's immune system sees the baby's Rh positive red blood cells as "foreign." When the mother's antibodies attack the foreign red blood cells, they are broken down and destroyed, resulting in anemia. Hydrops can develop as the baby's organs are unable to compensate for the anemia. The heart begins to fail and large amounts of fluid build up in the baby's tissues and organs.

Non-immune hydrops includes all other diseases or complications that may interfere with the baby's ability to manage fluid. There is no one mechanism to explain non-immune hydrops. Some of the diseases or complications that are often associated with hydrops include the following:

Severe anemias.

Congenital infections (infections present at birth).

Heart or lung defects.

Chromosomal abnormalities and birth defects.

Liver disease.

Who is affected by hydrops fetalis?
Immune hydrops is not as common as it used to be since the widespread use of Rh immunoglobulin treatment for Rh negative women. Non-immune hydrops occurs in about one of every 1,000 births. Premature babies with hydrops are at increased risk. The incidence of hydrops can vary between populations.

Why is hydrops fetalis a concern?
The severe edema that occurs with hydrops can overtake the baby's organ systems. About half of unborn babies with hydrops do not survive. Risks are also high for babies born with hydrops, with survival often depending on the cause and treatment.

What are the symptoms of hydrops fetalis?
The following are the most common symptoms of hydrops fetalis. However, each baby may experience symptoms differently.

During pregnancy, symptoms may include:
Large amounts of amniotic fluid.
Thickened placenta.
Ultrasound of the fetus shows enlarged liver, spleen, or heart and fluid buildup in the fetus' abdomen.

After birth, symptoms may include:
Pale coloring.
Severe edema overall, especially in the baby's abdomen.
Enlarged liver and spleen.
Respiratory distress (difficulty breathing).

The symptoms of hydrops fetalis may resemble other conditions or medical problems. Always consult your baby's physician for a diagnosis.

How is hydrops fetalis diagnosed?
In addition to a complete medical history and physical examination, diagnostic procedures for hydrops fetalis may include:
Ultrasound - a diagnostic imaging technique which uses high-frequency sound waves and a computer to create images of blood vessels, tissues, and organs. Ultrasounds are used to view internal organs as they function, and to assess blood flow through various vessels.
Fetal blood sampling - done by placing a needle through the mother's uterus and into a blood vessel of the fetus or the umbilical cord.
Amniocentesis - withdrawing some of the amniotic fluid for testing.

Treatment for hydrops fetalis:
Specific treatment for hydrops fetalis will be determined by your baby's physician based on:
Your baby's gestational age, overall health and medical history.
Extent of the disease.
Your baby's tolerance for specific medications, procedures or therapies.
Expectations for the course of the disease.
Your opinion or preference.

Treatment of hydrops depends on the cause. During pregnancy, hydrops may be treatable only in certain situations. Management of hydrops in newborn babies may include:
Help for respiratory distress using supplemental oxygen or a mechanical breathing machine.
Removal of excessive fluid from spaces around the lungs and abdomen using a needle.
Medications to help the kidneys remove excess fluid.  (+ info)

does anyone know anyone who had a fetal hydrops baby that lived a half normal-life?

I have to see a specialist this week and they are suspecting fetal hydrops and down's syndrome. Two problems.Ofcourse when I found out I was distraught. This often is a fatal disease(hydrops ). Working in a geri-psyche facilty that has some younger population with disabilities...I am so mixed about trying to save this baby. I am really concerned with the suffering. I do not believe in abortion but I believe life is not worth struggling/suffering. If the Dr. can almost proove to me that this is a fact that this baby will be born so ill....has anyone went through an abortion with little regret ? I am trying not to be selfish and realistic. There is no question that I love this baby..but when do I let go?

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Would you terminate your baby with hydrops?

Im 22 weeks pregnant and have just been told that my baby has fetal hydrops, has fluid in the heart making heart beat slow. Ive seen doctors, specialists and theyve told me chances are baby wont make it to full term and if that if i did baby probably wont survive. Because Ive already had 3 caesarians, ive been advised that its best to terminate baby now while it is small and would make procedure easier for me. Ive seen her/his little body on the ultrasound and i also feel baby moving (although not a lot) so i cant bear to terminate knowing babys heart is still beating. We have decided to continue with pregnancy til full term or until babys heart stops. Would you of done the same??
thanks to all who have replied so far, im crying while reading all the answers and i know in my heart im doing the right thing. Thanks for the thoughts and prayers guys!

If I were in the same situation I would have chose to continue on with the pregnancy as you did. Who knows? They can't tell you with 100% certainty that the baby won't make it, and even then nothing is set in stone! You might just end up making it to term and delivering and the baby surviving. Miracles happen :) Good luck!!!  (+ info)

My baby has hydrops fetalis, does anyone know anything else that they can tell me about it?

I am 4 months pregnant and my baby has turners syndrome which caused the hydrops fetalis.
I'm so scared and I can't understand why my baby had to get this.

The hydrops fetalis is fluid which my baby has it around the heart and the lungs also. The said the lump on the babies neck is 14 centimeters and I can't have the baby vaginally, I'm ok with that but my baby doesn't seem to have a chance to live. I'm only 19 and I have so many friends who have done the worse drugs and there babies are healthy, and I've always taken care of myself. I know about the chromosomes and whatever, but soe anyone know what the doctors can do for my baby possibly??
Or has anyone whose reading this been through what im going through?

A very good friend of mine had a baby with hydrops. The baby wasn't diagnosed until 32 weeks.

Here is the information I have read:

-The earlier the baby gets it in pregnancy, the worse it is.

-It very rarely goes away.

-It is very rarely treatable.

-If it is treatable the baby has a better chance.

-The mortality rate is very high.

I am so sorry you are going through this, but I will not sugar coat it for you. My friend's baby didn't make it. She lived for 2 days and then passed away.

My advice would be to listen to the doctors and do everything they tell you, ask lots of questions, do some research online, find on online support group and try to get support from family and friends.

This is nothing that you did, and its not something that could have been prevented. Turner's syndrome is chromosomal, so it isn't your fault.

I hope things turn out ok for you, good luck.  (+ info)

my baby has super ventricular tachycardia,what are the risks of the anaesthetic?

my son was born 11 weeks early,because of svt and fetal hydrops,he is now having a operation to remove a hernia what are the risks of having anestheitic if you have svt?

I don't know the risks, but infants and children with SVT are often treated for the SVT itself using concentrated radio waves emitted from a wire inserted into the heart. During this procedure they are sedated and sometimes given a general anesthetic.

There is always a risk from anesthetics, but based on the common usage of anesthetics for treating tachycardia, it seems that there isn't an unusually high risk from anesthetic. Its possible the doctors may also administer a medication to control the tachycardia during the procedure. The surgeons usually give you an opportunity to ask these questions before the surgery.  (+ info)

what are the chances that a 14 week unborn child will survive cystic hygroma or severe hydrops?

I went to the doctors for my second ultra sound with kaiser and my doctor told me my unborn child had cystic hygroma a severe case of hydrops in his abdominal area and around his head. the doctor told me in his 15 years of practice that he has never seen a baby survive this bad of a case that i have 2 options abort now or wait for the babys heart to give out. I chose to wait. I have had second opinions but emergency doesnt do all the procedures that kaiser did. I dnt want to give up hope but i dnt want to set myself up for disapointment.

Listen to the man, he told you it's not gonna make it. Abort now and get it over with.  (+ info)

is it medically possible for amniotic fluid to dry up in the womb during pregnancy?

I gave birth to a baby with Non immune Hydrops at 36wks 5 days. I was induced due to the baby having no amniotic fluid and they noticed his rare condition after birth. I just want to know if it's even medically possible for that to happen.
He still had to break my water when i went into labor. It never broke on its own. but there was no fluid around my baby

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Is anyone familiar w/fetal hydrops?

This pathological condition which occurs rarely (about 1/3,000 pregnancies) is only the consequence of many heterogeneous disorders, some of them are well known such as cardiovascular malformations, chromosomal abnormalities and some congenital infections but most of them remain poorly understood or they are so rare that a physician do not even consider carrying out appropriate investigation. Multiple congenital anomalies can also be associated with hydrops, though the mechanism is obscure for everything except cardiac anomalies.

Until the advent of RhoGam vaccine, the most common cause of hydrops fetalis was blood group isoimmunization, usually involving the Rhesus blood group antigens. The success of isoimmunization prevention programs has been such that most cases of hydrops fetalis are now nonimmune or related to secondary blood-group antigens such as C, E & Kell Antigens.

Hydrops fetalis is caused by three main mechanisms : anemia, hypoproteinemia and cardiac failure. But in some complex cases, there may be more than one candidate as the cause of hydrops fetalis.

Most frequent causes of hydrops fetalis (60% of cases)

Cardiac causes :

* Malformation (40 % of cases) such as left ventricular hypoplasia, atrioventricular canal, right ventricular hypoplasia, restricted foramen ovale, endocardial fibroelastosis
* Arrhythmia (not always caused by identifiable anatomic lesions) such as tachyarrhythmias (25% of cases) and bradyarrhythmias (7 %) which may be caused by complete heart block or maternal connective tissue disease (lupus, polyarthritis)
* High output cardiac failure (15 %) may result in placental chorioangiomas or sacrococcygeal teratoma
* Cardiomyopathies and cardiac rhabdomyoma

Chromosomal causes :

* Turner syndrome - 45X (42 % of cases)
* Trisomies 21 (34 %) and 18 (9 %)
* Triploidy (5 %) - Trisomy 13, 15, 16
* Tetraploidy

Thoracic and pulmonary causes :

* Congenital cystic adenomatoid malformation of lung
* Pulmonary sequestration
* Right-sided diaphragmatic hernia
* Intrathoracic teratoma/neoplasm
* Enterogenous, bronchogenic cysts
* Dyschondroplasias
* Laryngeal atresia with congenital pulmonary hyperinflation
* Chylothorax / Hydrothorax (due to lymphatic obstruction) causes pulmonary hypoplasia and involve only isolated pleural effusions

Causes of fetal anemia :

* Homozygous Alpha-thalassemia (55% of cases)
* Hematologic diseases (hemoglobinopathies, dyserythropoiesis…)
* Red blood cell enzymopathy
* Glucose-6-phosphate dehydrogenase deficiency
* Parvovirus B19
* Fetomaternal transfusion
* Isoimmunization (rare nowadays)
* Intrafetal hemorrhage

Fetal infections :

Cytomegalovirus (30% of cases) & syphilis which cause ascites.

Monochorionic twinning or Twin transfusion syndrome (TTS) :

Often resulting in fetal death of one of the twins, the survivor develops right-sided pleural effusions and dies in the neonatal period.

Less common causes of hydrops fetalis

Maternal infections (difficult to interpret as the real cause of fetal hydrops) :

Toxoplasmosis, rubella, herpes, listeria, diabete

Genitourinary tract malformation / Hepatic or intestinal pathology :

* Multicystic or polycystic kidneys (recessive disease)
* Cloacal malformation (12 % of cases)
* Urethral obstruction (35%)
* Kaufman-McKusick syndrome

Fetal akinesia/hypomobility :

* Myotonic dystrophy
* Neu-Laxova syndrome
* Multiple pterygium syndrome
* Congenital muscular dystrophy

Component of hydrops fetalis

Causes of cystic hygroma/nuchal edema :

* Chromosomal disorders (Turner, for instance)
* Non chromosomal disorders such as Noonan syndrome, Multiple pterygium syndrome, Fryns syndrome, Achondrogenesis, Brachmann-de Lange syndrome, Fraser syndrome

Causes of ascites - effusion of fluid into the peritoneal cavity :

* Urinary tract obstruction which causes pulmonary hypoplasia secondary to oligohydramnios
* Hepatic disease
* Intestinal perforation
* Pancreatic disease
* Congenital heart disease
* Genetic metabolic disorders (with enzyme deficiency)

Although rare, the lysosomal storage diseases (1/5,000 live births) collectively are significant causes of nonimmune hydrops. Whenever the major causes of hydrops have been excluded, it is important to carry out the appropriate investigation in a problem-oriented manner. Diagnosis of these diseases is important for reproductive prognosis.

There are about 40 different diseases, each characterized by a specific lysosomial enzyme deficiency in a variety of tissues, i.e. carnitine deficiency, pyruvate kinase deficiency, etc… Enzymes are responsible for lysosomal degradation of intracellular waste but if one of them is defective, waste accumulate in the lysosomes which results in progressive destruction of the organs.  (+ info)

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