FAQ - Epilepsy, Generalized
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is primary generalized epilepsy the worst type of epilepsy?


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is generalized epilepsy a progressive, degenerative , and/or malignant disease?


is generalized epilepsy a progressive, degenerative , and/or malignant disease?
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It depends on the condition. Lennox-Gaustou is a all of those things. People with it progressively get worse because their brain degenerates. Eventually they die. Idiopathic Generalised Epilepsy is just a condition. People with it have no less of a life expectancy of anyone else and it may never get worse or cause any degeneration.  (+ info)

What sort of investigations do you need before you can confirm an epilepsy diagnosis?


I would appreciate if someone could provide a full list of investigations necessary to determine whether a person suffers from generalized epilepsy or not (like head CT or EEG)
Thank you in advance.
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Here's a good website explaining diagnosis. http://www.epilepsy.com/epilepsy/diagnosis  (+ info)

Epilepsy v. Generalized Seizure Disorder?


What's the difference between epilepsy and a generalized seizure disorder? My 4 yr old nephew was diagnosed with febrile seizures at 10 mos, and then diagnosed with epilepsy around 2 yrs old. He visited a new neurologist yesterday who said he has a generalized seizure disorder, not epilepsy. What's the difference?

He has sinus problems which contribute to poor sleep patterns, which contribute to his seizures. He also has acid reflux and is deathly allergic to dairy products. They want to put him on depacoe (sp?). Any good/bad experiences with this med?
He was diagnosed with epilepsy, then the seizure disorder--he has absence seizures daily and tonic clonic seizures monthly...
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They are the same thing. "Seizure disorder" is the new politically correct way of referring to epilepsy.  (+ info)

My son has been diagnosed with primary generalized epilepsy Would he qualify for SSI?


My son has been on phenobarbatrol for about a year, he was then on Depakote for a year, Lamotragin, & now keppra, he is 6 now. We are having problems with the meds and his behavior in school & home. I know most of his behavior problems are from the drugs, but the school sends home notes everyday about his behavior. one day he will get under his desk & goto sleep other days he is letarally bouncing off the walls, he has trouble focusing, coordination, gets addgitated easy. recent blood work shows his white blood cells count is way down and his liver functions are really high. What does this mean for my son? I have also been told we would qualify for SSI, how do I do that? How often do kids with epilepsy get treated by the schools as a disabled child? my sons school has pulled him out of his regular classes, safty pined notes on his shirt, and since day one of them finding out my son is epileptic, they have treated him differently. Should I have my so tested for ADHD, ADD or Dyslexia?
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I don't know how often he's having a seizure but he should see both a pediatric neurologist and a psychiatrist. It doesn't hurt to get a second opinion if you are in doubt. If the doctor suggests too many medication, that's a problem but two isn't too bad.

It's a common problem with seizure medication. The side-effect can be quite horrible, especially to a child. If he is drowsy because of the medication, that's very normal and natural. It is very difficult to focus with those medication. Mood swings after seizures are not uncommon, either. Often, epilepsy patients experience depression.

A seizure is a very traumatic experience on a human body. A brain may go through a "shift" of sorts or major change. One neurologist described it as a "short-circuit" of electric signals. Once there is a "shortage," that path is no longer usable. However, the human body is designed so that the brain finds another path. The younger you are the quicker it is able to find a new path. So the tissue damage seems quite minimal with children and they seem functionally perfectly normal.

Depending on the seizure it affects the brain differently due to the body chemistry at the time. The result is the mood, or the other aspects of the brain like memory. Personally, I've seen it happen where some parts of memory increase and whereas some parts of memory ability decrease at least (long term vs. short term). It's an odd thing.

There is a lot of traditional stigma and there may be teachers who may not want to put in the effort. I don't think "labeling" him is a good thing for your child's psyche and I would discuss that with the doctors.

It seems perhaps some of the medication is too potent, too. Perhaps the doctors are over-medicating him so that he'd be seizure free? I would fight for his quality of life since he can't do that for himself right now. He needs to have a seizure free life, yes but at what cost?

So talk to your neurologist and ask to refer you to a child psychiatrist. It's a brain chemistry issue. Psychologists deal with "issues" and cannot prescribe medications but psychiatrists can and they won't ask you in detail about "issues."

It's not a shame for be epileptic but it's also your business. It's up to you to tell someone if you have it. Putting a label with a safety pin is not cool.

I'm sure your physicians will write a nice letter for the school telling them it's not politically correct. I'm surprised the district hasn't been sued.  (+ info)

How come epilim isn't working for my epilepsy?


I was originally diagnosed with photosensitive epilepsy. But 3 years on it seems to be getting worse and there is no lights present that could set it off. It has seemed to "branched off" and became something else. My consultant thinks it may be myoclonic epilepsy because usually I don't have generalised seizures these may happen once or twice a year. I've had seizures all my life and it wasn't till then that I was diagnosed. Is there any medication anyone knows of that I should ask my doctor about?
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I have had epilepsy since I was 2. Mine is generalized(involves entire brain). I have seizures from flashing lights,stress,intense pain,and high fevers. Especially if I don't get enough sleep or eat properly. I have all types of seizures also. I have had many myoclonic (large ones where you drop and convulse) and petit mal (short ones where you kind of stop and phase out for a minute). As you get older(past puberty),it can be quite common for it to change to different types of seizures or different triggers. Or,as us epileptics put it,"get worse". As for medications,I have been on pretty well every one available for now. I take three medications now for it and it seems to be doing pretty well, but no medication works forever. Unfortunately, your body gets used to certain meds and the dose has to keep being raised or you have to go on a different medication altogether. Your doctor will probably start you on a dilantin or phenobarbitol regimen. Just tell your doctor that you feel you need some medication to keep it under control and he/she will either prescribe something or send you to a neurologist that can help you first. But,please work with your doctor and be totally honest. Otherwise,getting you on proper meds that work for YOU will be impossible. Also, take them EXACTLY as prescribed. Never take extra and try not to miss a dose. If you do, DO NOT double up on the next one. It can be very dangerous. Report any side effects. Believe me,I am now 47 years old and very experienced with epilepsy. I know,too how it can affect your life. Good luck and good health.  (+ info)

What is Epilepsy and what is the treatment for it?


What is epilepsy and what is the treatment for it I do take medication I do suffer from migraines as well. I have grand mal seizures. I also have petti Mal and partical seizures. What are all the treatmeats for my condition.
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Epilepsy (sometimes referred to as a seizure disorder) is a common chronic neurological condition that is characterized by recurrent unprovoked epileptic seizures. It affects approximately 50 million people worldwide.[1] It is usually controlled, but not cured, with medication – although surgery may be considered in difficult cases.

Treatment

Epilepsy is usually treated with medication prescribed by a physician; primary caregivers, neurologists, and neurosurgeons all frequently care for people with epilepsy. In some cases the implantation of a stimulator of the vagus nerve, or a special diet can be helpful. Neurosurgical operations for epilepsy can be palliative, reducing the frequency or severity of seizures; or, in some patients, an operation can be curative.
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Responding to a seizure

In most cases, the proper emergency response to a generalized tonic-clonic epileptic seizure is simply to prevent the patient from self-injury by moving him or her away from sharp edges, placing something soft beneath the head, and carefully rolling the person onto his or her side to avoid asphyxiation. Should the person regurgitate, the material should be allowed to drip out the side of the patient's mouth by itself. If the seizure lasts longer than 5 minutes, Emergency Medical Services should be contacted. Prolonged seizures may develop into status epilepticus, a dangerous condition requiring hospitalization and emergency treatment.

Objects should never be placed in a person's mouth during a seizure as this could result in injury to the person's mouth or obstruction of the airway. Despite common folklore, it is not possible for a person to swallow their own tongue during a seizure.

After a seizure, it is typical for a person to be confused, disoriented, and possibly agitated or sleepy. It is important to stay with the person until this passes; people should not eat or drink until they have returned to their normal level of awareness, and they should not be allowed to wander about unsupervised. Many patients will sleep deeply for a few hours after a seizure; this is not dangerous. In about 50% of people with epilepsy, headaches may occur after a seizure. These headaches share many features with migraines, and respond to the same medications.

If it seems to have been a first seizure, it is likely to be noticeably helpful to make a written or otherwise recorded note of the sequence and nature of events. The doctor deciding on further management will probably find this helpful.
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Pharmacologic treatment

Some medications can be taken daily in order to prevent seizures altogether or reduce the frequency of their occurrence. These are termed "anticonvulsant" or "antiepileptic" drugs (sometimes AEDs). All such drugs have side effects which are idiosyncratic and others which are dose-dependent; it is not possible to predict who will suffer from side effects or at what dose the side effects will appear.

Some people with epilepsy will experience a complete remission when treated with an anticonvulsant medication. If this does not occur, the dose of medication may be increased, or another medication may be added to the first. The general strategy is to increase the medication dose until either the seizures are controlled, or until dose-limiting side effects appear; at which point the medication dose is reduced to the highest amount that did not produce undesirable side effects.

Serum levels of AEDs can be checked to determine medication compliance and to assess the effects of drug-drug interactions; serum levels are generally not useful to predict anticonvulsant efficacy in an individual patient, though in some cases (such as a seizure flurry) it can be useful to know if the level is very high or very low.

If a person's epilepsy cannot be brought under control after adequate trials of two different drugs, that person's epilepsy is generally said to be 'medically refractory.'

Various drugs may prevent seizures or reduce seizure frequency: these include carbamazepine (common brand name Tegretol), clobazam (Frisium), clonazepam (Klonopin), ethosuximide (Zarontin), felbamate (Felbatol), fosphenytoin (Cerebyx), flurazepam (Dalmane), gabapentin (Neurontin), lamotrigine (Lamictal), levetiracetam (Keppra), oxcarbazepine (Trileptal), mephenytoin (Mesantoin), phenobarbital (Luminal), phenytoin (Dilantin), pregabalin (Lyrica), primidone (Mysoline), sodium valproate (Epilim), tiagabine (Gabitril), topiramate (Topamax), valproate semisodium (Depakote), valproic acid (Depakene, Convulex), and vigabatrin (Sabril).

Other drugs are commonly used to abort an active seizure or interrupt a seizure flurry; these include diazepam (Valium) and lorazepam (Ativan). Drugs used only in the treatment of refractory status epilepticus include paraldehyde (Paral) and pentobarbital (Nembutal).

Bromides were the first of the effective anticonvulsant pure compounds, but are no longer used in humans[6] due to their toxicities and low efficacy.
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Surgical treatment

Surgical treatment can be an option for epilepsy when an underlying brain abnormality, such as a benign tumor or an area of scar tissue (e.g. hippocampal sclerosis) can be identified. The abnormality must be removable by a neurosurgeon.

Surgery is usually only offered to patients when their epilepsy has not been controlled by adequate attempts with multiple medications. Before surgery is offered, the medical team conducts many tests to assess whether removal of brain tissue will result in unacceptable problems with memory, vision, language or movement, which are controlled by different parts of the brain. These tests usually include a neuropsychological evaluation, which sometimes includes an intracarotid sodium amobarbital test (Wada test). Resective surgery, as opposed to palliative, successfully eliminates or significantly reduces seizures in about 50-90% of the patients who undergo it (the exact percentage depends on the particulars of the case in question.) Many patients decide not to undergo surgery owing to fear or the uncertainty of having a brain operation.

The most common form of resective surgical treatment for epilepsy is to remove the front part of either the right or left temporal lobe. A study of 48 patients who underwent this operation, anterior temporal lobectomy, between 1965 and 1974 determined the long-term success of the procedure. Of the 48 patients, 21 had had no seizures that caused loss of consciousness since the operation. Three others had been free of seizures for at least 19 years. The rest had either never been completely free of seizures or had died between the time of the surgery and commencement of the study.[7]

Palliative surgery for epilepsy is intended to reduce the frequency or severity of seizures. Examples are callosotomy or commissurotomy to prevent seizures from generalizing (spreading to involve the entire brain), which results in a loss of consciousness. This procedure can therefore prevent injury due to the person falling to the ground after losing consciousness. It is performed only when the seizures cannot be controlled by other means. Resective surgery can be considered palliative if it is undertaken with the expectation that it will reduce but not eliminate seizures.

Hemispherectomy is a drastic operation in which most or all of one half of the cerebral cortex is removed. It is reserved for people suffering from the most catastrophic epilepsies, such as those due to Rasmussen syndrome. If the surgery is performed on very young patients (2-5 years old), the remaining hemisphere may acquire some rudimentary motor control of the ipsilateral body; in older patients, paralysis results on the side of the body opposite to the part of the brain that was removed. Because of these and other side effects it is usually reserved for patients who have exhausted other treatment options.
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Other treatment

Ketogenic diets may occasionally be effective in controlling some types of epilepsy; although the mechanism behind the effect is not fully understood, shifting of pH towards a metabolic acidosis and alteration of brain metabolism may be involved. Ketogenic diets are high in fat and extremely low in carbohydrates, with intake of fluids often limited. This treatment, originated as early as the 1920s at Johns Hopkins Medical Center, was largely abandoned with the discovery of modern anti-epileptic drugs, but recently has returned to the anti-epileptic treatment arsenal. Ketogenic diets are sometimes prescribed in severe cases where drugs have proven ineffective.

There are several downsides to what initially seems a benign therapy, however. The ketogenic diet is not good for the heart or kidneys and medical problems resulting from the diet have been reported. In addition, the diet is extremely unpalatable and few patients are able to tolerate it for any length of time. Since a single potato chip is adequate to break the ketosis, staying on the diet requires either great willpower or perfect control of a person's dietary intake. People fed via gastrostomy or young children who receive all their food in the presence of a caregiver are better candidates.

Vagus nerve stimulation is a recently developed form of seizure control which uses an implanted electrical device, similar in size, shape and implant location to a heart pacemaker, which connects to the vagus nerve in the neck. Once in place the device can be set to emit electronic pulses, stimulating the vagus nerve at pre-set intervals and milliamp levels. Treatment studies have shown that approximately 50% of those treated in this fashion will show significant seizure reduction.

Some people with epilepsy receive a special dog which has the rare talent of sensing the onset of a seizure and is trained to alert the human so they can reach a safe location before their seizure puts them in danger. Other epilepsy care dogs do not sense seizures, but serve as companions and guardians during the loss of consciousness accompanying a seizure.

The Institutes for The Achievement of Human Potential promulgate a home program consisting of a healthy diet, clean air, and respiratory training. This alternative approach is regarded as dangerous and without value by most medical practitioners.

Magnesium and vitamin B6 exerted a positive non-specific influence on the mental states of patients with epilepsy, depression and anxiety during an experiment.[8]

A number of systematic reviews by the Cochrane Collaboration into treatments for epilepsy looked at acupuncture[9], psychological interventions[10], vitamins[11] and yoga[12] and found there is no reliable evidence to support the use of these as treatments for epilepsy.

More on http://en.wikipedia.org/wiki/Epilepsy#Treatment  (+ info)

Can Epilepsy affect what subjects at school your good at at?


I have epilepsy and I'm quite good at most subjects (my best being history,RE and English).But I am terrible at Pyschics and Math.
Has this got anything to do with my Epilepsy or am I just not good at the subjects?
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epilepsy does not have any affect on specific brain parts related to learning. some people are just "math" people and some people are more "verbal" people which it sounds like you are. i've read studies where it states that in general, men are better in math and science whereas girls are better at reading/writing. lately this is the subject of some debate because there are females good in math/science...it is just that traditionally women were never encouraged to be strong in these areas.
if you are getting poor grades in those areas, you might want to consider tutoring or getting help for those subjects. i know i am absolutely terrible at math and needed math tutoring my whole academic career.
congratulations to you for working hard in school! hope this helps. alicia  (+ info)

Can a man suffering from Epilepsy be able to release sperms which will help in reproduction?


There is a guy who is suffering from Epilepsy since the age of 11 .Now he is married to my friend and they are planning to have a baby.So I wanted to know if the guy will be able to reproduce?
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There should be no problem with his sperm.  (+ info)

What is the best treatment for epilepsy combined with diabetes?


Being my son has to give himself insulin injections,and now has been diagnosed with with epilepsy,what is the best treatment to stop his seizures,maintain insulin levels and stop his depression & sleepless nights?
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Follow this for the diabetes, and do extra anulom vilom(stimulates left and right brain) to help with the epilepsy.You will have better sleep in 9 days.
These pranayam exercises will help control the diabetes and the side effects.Build up the timing gradually.If you feel tired or dizzy, stop and resume later(after about a minute).The benefits will be noticed in weeks as the sugar level is checked daily.Over the long term the diabetes will be in full control.

Kapalbhati -(Do it before eating) Push air forcefully out through the nose about once per second. Stomach will itself go in(contract in). The breathing in(through the nose) will happen automatically. Establish a rhythm and do for 15 to 30 minutes twice a day.
Children under 15 years – do 5 to 10 minutes twice a day.
Not for pregnant women. Seriously ill people do it gently.

Anulom Vilom –
Close your right nostril with thumb and deep breath-in through left nostril
then – close left nostril with two fingers and breath-out through right nostril
then -keeping the left nostril closed deep breath-in through right nostril
then - close your right nostril with thumb and breath-out through left nostril.
This is one cycle of anulom vilom.
Repeat this cycle for 15 to 30 minutes twice a day.
Children under 15 years - do 5 to 10 minutes twice a day.
You can do this before breakfast/lunch/dinner or before bedtime or in bed.Remember to take deep long breaths into the lungs.You can do this while sitting on floor or chair or lying in bed.

Also everyday, press the centre point of the palm of both your hands 40 times with the thumb and press the tips of all fingers 40 times each.
To stimulate the pancreas to produce insulin: mandukasan - kneel down(with feet pointing inwards,and sit on the ankles/heels, Vajrasan position), breathe in and breathe out completely and hold your breath, pull the stomach in, press both your hands on stomach, bend forward as much as possible keeping the head straight, hold for 5 to 15 seconds and come back up while breathing in. Repeat this 3 times daily to stimulate the kidney and pancreas.Mandukasan2 - Repeat the whole process,but this time with with fists of both hands pressing against the stomach.Mandukasan can be done sitting on a chair, if you cannot bend the legs.
Continue the breathing exercises once a day, after the diabetes is in full control.  (+ info)

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