FAQ - Fibrous Dysplasia Of Bone
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Fibrous Dysplasia?

Can Aloe Vera help treat Fibrous Dysplasia? Can you outgrow Fibrous Dysplasia?



Fibrous dysplasia - MayoClinic.com
Fibrous dysplasia is a disorder that destroys and replaces normal bone with scar-like tissue. ... Fibrous dysplasia. What is fibrous dysplasia? - No name / No ...www.mayoclinic.com/health/fibrous-dysplasia/AN00790

Fibrous Dysplasia
Detailed information on fibrous dysplasia, including cause, symptom, diagnosis, and treatment ... Fibrous Dysplasia. What is fibrous dysplasia? ...www.healthsystem.virginia.edu/UVAHealth/adult_bone/fibrdys.cfm

Ask the Experts - What Is Appropriate Therapy for Fibrous Dysplasia?
I have a patient with the radiologic diagnosis of fibrous dysplasia. ... What Is Appropriate Therapy for Fibrous Dysplasia? Question ...www.medscape.com/viewarticle/413588

Paget Foundation
What is fibrous dysplasia? Fibrous dysplasia is a chronic ... bones can be affected at once, fibrous dysplasia does not spread from one bone to another. ...www.paget.org/Information/fibrous_main_professionals.htm - 12k

Bone Disorders - Fibrous Dysplasia
Fibrous Dysplasia. What is fibrous dysplasia? Fibrous dysplasia is a chronic disorder in which bone expands due to abnormal ...healthcare.utah.edu/healthinfo/adult/bone/fibrdys.htm - 8k - Cached

Fibrous Dysplasia - My Child Has - Children's Hospital Boston
What is fibrous dysplasia? ... This form of fibrous dysplasia, the most complex, is ... What is the long-term outlook for a patient with fibrous dysplasia? ...www.childrenshospital.org/az/Site899/mainpageS899P0.html - 45k


Fibrous Dysplasia--benign bone tumors. Ever heard of this condition? Know of any support groups?

My daughter had a tumor removed from her left tibia three years ago (she was 13) and a titanium rod placed permanently in with two large nails. She always has a lot of pain still, and there is a remote danger of osteo sarcoma developing. Sometimes we feel very alone in this. If you have heard of this condition, or know of a support group, I would appreciate your input. Thanks.
I decided to do some research on the Web and found the following link:
It is very informative. I should have done more of this years ago. But we have felt in pretty good hands with her physician. Still do.

Thanks for your answer, Larry, though the thought of multiple myeloma in my daughter is, of course, horrifying. You have my sympathies for the loss of your father and the terrible suffering he endured. DHW

my father died of multiple myloma at the age of 38. Your daughters condition seems to be similar to that, i mean the beg. stages of it. it takes sometimes a few years for it to progress. tumors start in the bone marrow and then you can break bones very easily. it is an extremely painful cancer to die of as it hits the 4th stage, my suggestion to you is to always get a second opinion from a pathologist. fibrous dysplasia sounds real similar.  (+ info)

My Husband was diagnosed yesterday as having fibrous dysplasia but we don't know much about it?

he has it in his upper right leg bone and it was discovered through an x-ray.
He has had no pain in his leg but suffers from back pain.
One dr said it was not common and they don't know much about it and the dr at the hospital said it was very common. My husband was that taken aback that there was something wrong that he didn't ask any questions about it. So does any one have any info on it they could share please?

Here's a link for you: http://www.fibrousdysplasia.org/index.php?page=16  (+ info)

Any one have or know someone with Fibrous Dysplasia?

My daughter was diagnosed with fibrous dysplasia a rare bone disease...just curious if anyone else is faced with this disease on here! Thanks!

Fibrous dysplasia is a chronic condition of the skeleton where a portion of a bone develops abnormally. The condition begins before birth. It is caused by a gene mutation that affects the cells that produce bone. The mutation causes the cells to form an abnormal type of fibrous bone that gradually grows and expands over a period of years, causing a weakened area of the bone. The area of weak bone can cause pain. It can crack (fracture) the bone, and may lead to deformity. Although the abnormal bone forms before birth, its presence is often not discovered until childhood, adolescence, or even adulthood. Any bone may be affected-the most common bones involved are the thighbone, shinbone, ribs, skull, upper arm bone and pelvis. Usually only one bone is involved (monostotic fibrous dysplasia). Less often, multiple bones are involved (polyostotic fibrous dysplasia). The polyostotic form is generally more severe and is discovered earlier. This form can involve as few as two bones in the same limb or multiple bones throughout the skeleton.

The frequency of fibrous dysplasia is not known but it accounts for approximately seven percent of all benign bone tumors. The cause of the gene mutation is not known. It is not inherited or passed on to the children of affected patients. No dietary or environmental cause is known. It occurs equally among males and females of all races.

The same abnormality that occurs in the bone cells of fibrous dysplasia may also occur in the cells of some of the body's glands that can lead to hormonal abnormalities. This is rare and is generally only happens with severe forms of polyostotic fibrous dysplasia. McCune-Albright syndrome is a condition where polyostotic fibrous dysplasia occurs with pigmented skin lesions ("cafe au lait" spots) and hormonal abnormalities.

A doctor can usually diagnose fibrous dysplasia based in part on X-rays. X-rays show an abnormal area of bone that typically has an appearance similar to that of "ground glass." There frequently is expansion of the involved area of bone. There may be deformity of the bone that is usually seen as bowing. A bone scan will show a "hot spot" in the areas of involved bone; it is a good test to check the entire skeleton for areas of fibrous dysplasia. Magnetic resonance imaging (MRI) will show the involved area of bone and may be helpful to determine whether or not areas have become cancerous. If a fracture is present, it will generally be seen on X-ray and/or MRI. A computed tomography (CT) scan may help the doctor to see fractures and determine the weakness of the bone.  (+ info)

Fibrous dysplasia?

Anyone know anything about it??

Fibrous dysplasia is a rare condition that people are born with Though not much is known about it, it is believed to be a genetic disease that occurs in the womb. There are various forms of this disease including McCune-Albright Syndrome which causes discolorations on the face (known as cafe-au-lait spots). In a nut shell, it is a disease where bones grow hollow spots that are not filled with actual bone material. These hollow spots are often referred to as 'lesions'. If a person has monostotic non fibrous dysplasia, then only one bone is affected. If a person has polyostotic non fibrous dysplasia, it means that more than one bone is affected. The bones most commonly affected are the femur, hip, elbow, wrist, and facial bones as well. The only 'treatment' for this disease, unfortunately, is surgery. Some people who have the monostotic form might not even know that they have it because it will not bother them unless it is fractured. Because of these hollow spots in the bones, a cast will not repair the bone, and ultimately, surgery is the only way. In surgery, the lesion is cleaned out and filled with bone material called allograft. Sometimes screws or metal plates may be needed to support the allograft. On the positive side, it is believed that this condition can be outgrown. Hope I helped.  (+ info)

is fibrous dysplasia related in anyway to cardioid tumors.?

I have metastatic carcinoid tumors (4years) and have just had a fibrous dysplasia spot of 4.5cm found on my tibia. Are they related in anyway?

It appears not...
Carcinoid tumoirs originate in hormone-producing cells and are classified as neuroendocrine tumors. MEN syndromes which can predispose to carcinoid tumours) are usually (but not always) inherit

Fibrous dysplasia is a chronic condition of the skeleton where a portion of a bone develops abnormally.

The condition begins before birth. It is caused by a gene mutation that affects the cells that produce bone. Although the abnormal bone forms before birth, its presence is often not discovered until childhood, adolescence, or even adulthood.

You should question your medical advsors about this as both could be inherited disorders, one endocrine, the other genetic which sort of interlinks them.
I do not know enough to go further and hope someone with more knowledge picks this up.  (+ info)

Its suspected that i may have fibrous dysplasia of the skull?

Ive been doing some research on this while waiting to see a specialist to confirm the diagnosis, but all of the websites ive seen refer to a 'swell' in the skull as the sign of it - i have a 'dent' in mine - is this much of a muchness? Could it be something else? Thanks for any info, hard trying to find out things about such a rare disease

IT could be a congenital disorder,ie.. congenital hip dysplasia.  (+ info)

Is there anyone out there with Fibrous Dysplasia, or any one you know?

I have a science project o Fibrous dysplasia, and i need to do an interview, and because it is such a rare disease, i can;t find any one with it!! so, please, give me their email, so i can interview them! Thankyou So much!

Hi, Please visit me at www.laurenourbravelittlehero.blogspot.com then leave your email on the comment section of my latest blog post. I will contact you through email and will not publish publicly your email on my blog. My daughter has FD and I'll be happy to help answer any questions you might have. Thanks for helping to raise awareness of this terrible disease.

Tanya  (+ info)

What is the tough fibrous connective tissue covering of a bone?

I need your help. Mucho thanks. :)


Hope this helped..!  (+ info)

The fibrous cord that holds bone to muscle/organs is?

The fibrous cord that holds bone to muscle/organs is?

  (+ info)

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