FAQ - Ganglioglioma
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is grade 1 ganglioglioma located in the midbrain beside the pons will have a chance to become malignant?

it was not debulked due to its location.

According to the site I will reference in my source area, there is a possibility that it may become malignant. I would voice your concerns with your doctor. Worrying won't help much honey!

Hugs & Good Luck!  (+ info)

Is a grade 2 ganglioglioma brain tumor benign or malignant?

please answer

The short answer is yes, it depends. Brain tumors are like real estate. It depends on 3 things. Location, Location, Location.
Generally speaking, if a complete resection can be done, there is a pretty good chance of it being gone for good. If it can not be removed, it can become a higher grade pretty quickly.
Even a benign brain tumor is a dangerous thing. The brain has a very limited amount of space inside the skull. If a benign brain tumor continues to grow it pushes the brain out of the way and can cause pressure inside the skull. Not a good thing.

There are a couple of things about brain tumors. A primary brain tumor is most likely not going to metastasize. It does not travel outside of the brain. If you have the tumor, then get off the internet. You will read a bunch of scary stuff and get even more scared. The internet is a great resourse, but it has all sorts of stuff on it that can be misleading. If it is someone you love with the tumor, remind them that the statistics they read are just that, statistics. Your loved one is not a statistic. Each tumor is as individual as the person that has it. Most of the stats that you will see are several years old. Think about it, stats for five and ten year survival rates are at least 5 or 10 years old. Brain tumor treatments have advanced greatly over the last several years. Tumors types, like a GBM, that gave a prognosis of 6 months or less are now looking at 2 years or so.
Remember that the most important thing you can do is Never give up and never surrender.   (+ info)



im having a third one in my head now and scared actually im 34 a father of 3 little boys it makes me worry.

thank you

More than 95% of ganglioglioma do not recur after removal if they got it all with surgery.

Here's a good site about gliomas. Mine was a mixed glioma, oligoastrocytoma.


Which tumor type do you have? What treatments have you been through?  (+ info)

Help explaining ganglioglioma?

I need to explain ganglioglioma to a 12 year old. Things like what grades are, how you can get it, treatments, and how you can die from it would help.
articles from online will help but also in your own words please!!

A ganglioglioma is low-grade tumor of mixed cell type. This type of tumor contains properties of both glial cells (responsible for providing the structural support of the central nervous system) and neuronal cells (the functioning component of the central nervous system). These tumors are rare. They occur most commonly in the cerebrum (the largest and upper most section of the brain), but may occur in any part of the brain and spinal cord. These tumors may rarely undergo transformation into a higher grade, more malignant tumor.
As you read further below, you will find general information about gangliogliomas. If you would like to view summary information about brain tumors first, see the overview on brain tumors.

What causes a ganglioglioma?

Children with certain genetic syndromes, including neurofibromatosis type I and tuberous sclerosis, are at higher risk of developing tumors of glial origin, including gangliogliomas. The vast majority of children with gangliogliomas, however, develop these tumors spontaneously, meaning there is no identifiable cause.

What are the symptoms of a ganglioglioma?

Due to the relative slow growth rate of gangliogliomas, children with these tumors tend to present to the doctor with symptoms that have been occurring for many months. Some children, however, will have a more sudden onset of symptoms. The following are the most common symptoms of a ganglioglioma, however each child may experience symptoms differently. Common symptoms may include:

many present with symptoms of increased pressure within the brain. These symptoms include:
headache (generally upon awakening in the morning)
others may experience seizures and weakness on one side of the body

The symptoms of a brain tumor may resemble other conditions or medical problems. Always consult your child's physician for a diagnosis.

How is a ganglioglioma diagnosed?

Diagnostic procedures for a ganglioglioma may include:

physical examination - the child may demonstrate evidence of increased pressure in the brain
computerized tomography scan (also called a CT or CAT scan) - a diagnostic imaging procedure that uses a combination of x-rays and computer technology to produce cross-sectional images (often called slices), both horizontally and vertically, of the body. CT scans are more detailed than general x-rays. For ganglioglioma, a CT scan of the brain is usually done.
magnetic resonance imaging (MRI) - a diagnostic procedure that uses a combination of large magnets, radiofrequencies, and a computer to produce detailed images of organs and structures within the body. For ganglioglioma, an MRI of the brain and spine is usually done, however gangliogliomas of the brain rarely spread to the spine.
electroencephalogram (EEG) - for children experiencing seizures, this procedure records the brain's continuous, electrical activity by means of electrodes attached to the scalp, and helps identify and localize seizure activity to a particular section of the brain
electroencephalogram (EEG) - for children experiencing seizures, this procedure records the brain's continuous, electrical activity by means of electrodes attached to the scalp, and helps identify and localize seizure activity to a particular section of the brain
biopsy -a tissue sample from the tumor will be taken through a needle during a simple surgical procedure performed by a surgeon to confirm the diagnosis

What are the treatments for a ganglioglioma?

Specific treatment for a ganglioglioma will be determined by your child's physician based on:

your child's age, overall health, and medical history
type, location, and size of the tumor
extent of the disease
your child's tolerance for specific medications, procedures, or therapies
how your child's doctors expects the disease to progress
your opinion or preference

Treatment may include (alone or in combination):

surgery - the primary treatment is maximum surgical removal of the tumor. Tumors that are completely removed may not require further therapy other than serial MRIs to monitor for tumor re-growth.
radiation therapy - for tumors that are incompletely removed and then increase in size or for tumors that recur, the recommended treatment is radiation therapy to the site of the tumor. Radiation therapy uses high-energy rays (radiation) from a specialized machine to damage or kill cancer cells and shrink tumors.

Gangliogliomas are associated with a high rate of cure. Data suggest a 20-year survival rate of approximately 80 percent. Greater degree of surgical removal is associated with a higher rate of cure.  (+ info)

Ganglioglioma tumors/cancer?

i would like more information on Ganglioglioma tumors. Or Ganglioglioma cancer. Please help, the information is important for me to know, i know it's rare to have one though, so please help me with some information.

Ganglioneuromas are tumors of the sympathetic nervous system. These tumors can grow wherever sympathetic nervous tissue is found, but they most frequently occur in the abdomen. Common locations include the adrenal gland, paraspinal retroperitoneum (sympathetic ganglia), posterior mediastinum, head, and neck. Locations such as the urinary bladder, bowel wall, abdominal wall, and gallbladder are considered unusual.
Ganglioneuromas are rare, benign, fully differentiated tumors that contain mature Schwann cells, ganglion cells, fibrous tissue, and nerve fibers. These tumors have no immature elements (such as neuroblasts), atypia, mitotic figures, intermediate cells, or necrosis.
Overall, patients with ganglioneuroma have a favorable prognosis.
Good luck.  (+ info)

Do I have brain cancer?

I have a ganglioglioma - Temporal lobe, non-malignant. Do I have brain cancer? or does it have to be malignant to be considered cancer?

Ask your doctor.

Not the various quacks that hang around here.  (+ info)

Will I Survive America?

You don't survive. You run up your bills, bankrupt then when you think you have paid off the bankruptcy your youngest son gets cancer. Not just any cancer but brain cancer. Ganglioglioma. Very rare. Wow, you did manage to get insurance though but wait. The insurance, Assurnet, tells you he's not covered because it's considered pre-existing condition.

Ok, now what......Childrens Hospital in New Orleans takes you and Ronald McDonald House puts you up. None of them want any money. Charity's come forward and help with phone cards and gas. Your son gets his operation then a freaking Hurricane Named Katrina comes to town. All your help and doctors leave. Fema rushes in. Help the helpless they say. Wait, isn't my kid helpless? No, he's white.

Well the waters subside and you get your son out of the hospital but where are all the doctors? They left. Where is the help? Gone too. Where is the city? Destroyed.

It's been almost a year and as you type this you are glad that somehow your son managed to recover. Now everyone is back in New Orleans. Do you know what they want from you? MONEY? Guess what? You don't have any. You can't bankrupt again and you can't get a job because you are now yourself an emotional wreck and your job was destroyed.

You love America but it's hopless. Everyday you get closer to eating that bullet.

You don't survive America.

I don't think I will.

Come to Canada - we have universal healthcare  (+ info)

Why Am I Still Having Seizures?

I had my first grand mal in May of 1998. At the time it was attributed to drug use, despite my denials. ( I had been in trouble before) I continued to have minor seizures, mostly in my sleep for the next few years. Finally in Nov of 2003 I was diagnosed with a brain tumor and in Jan of 2004, I had a 3.4cm ganglioglioma removed from my right temporal lobe. I was fine for awhile, but then in March of 2007 I had another grand mal. Went to the doctor, had a mri, came back clear. I was fine until yesterday morning when I had another minor one in my sleep. Again, the MRI came back clear....so what in the world could still be causing my seizures?!?! I cannot live on meds for the rest of my life so I have to figure this out!!! Any doctors out there???

I work for the Epilepsy Foundation of Florida.

I am sorry to be the one who tells you this (if in fact I am) but you have epilepsy. By definition epilepsy means that a person has a pattern of repeating seizures that occurs more than once. This is exactly what you describe.

Epilepsy can be caused by brain tumors, surgery & drug use. I am sorry kiddo but you perfectly fit the bill. I have epilepsy. I understand trying to avoid the label, but reality is what it is. I wish this was not the case.

Contact your local Epilepsy Foundation, they will help you adjust to this unpleasent reality.

Good luck & God Bless  (+ info)

Brain Tumor found during coincidental MRI, should I read between the lines?

Had an MRI to establish a baseline done for something unrelated and this is what was provided to me:
Technique: T1, T2, and FLAIR isotropic sagittal slices were aquired without contrast and examined using multi-plane reformatting in axial, sagittal, and coronal planes.
Findings: A 2cm mass demonstrating mixed signal intensity on T1, T2, and FLAIR sequences is seen with respect to the left anterior insular grey matter. The lesion appears cortically based and demonstrates several marked hypointense regions that may represent calcifications. Further evaluation is limited by lack of available intravenous contrast as dictated by the employed research study imaging protocols. Differential for these findings include both benign and malignant neoplasms, such as oligodendroglioma, PXA, DNET, or ganglioglioma. Given that the sequences included in the current MRI examination were optimized for detection of tramatic brain injury, refferal to a Neurosurgeon and/ or Neurologist,along with aquisition of a follow-up contrast-enhanced clinical MRI for further evaluation is recommended. No evidence of hydrocephalus. No evidence of midline shift. Intracranial flow voids appear normal.

So Should I be reading between the lines even though I have not yet had the contrast test done yet?

  (+ info)

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