FAQ - Granulomatosis, Orofacial
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Wegners Granulomatosis ?Anyone know someone with it?

My dad has been fighting this disease for 7 years now it caused him to go into kidney failure soon after he was diagnosed it has been a horrible disease for him and my family to deal with it seems to be a never ending battle and it seems the disease is slowing winning I hate to say I was just wondering how this disease has affected you or your loved one and what symptoms they have had and what treatments they are using Thank you so much for sharing your stories

please look at this site: www.vasculitisfoundation.org
i think there is a link for patients and their family members to be able to contact/support each other.
i think its spelled Wegener's granulomatosis.  (+ info)

Any professional Can herpes be transmitted to other parts of my body?

according to john hopkins
Can herpes be transmitted to other parts of my body?
If you have genital herpes or orofacial herpes, you cannot transmit the infection to another part of your body after the initial infection occurs. If you have genital HSV II, you will not get HSV II at another site in your body. The body produces antibodies that protect other parts of your body from infection.

so if thats the case y cant they transfer antibodies into uninfected people so they cant get the disease

  (+ info)

treatments for congenital granulomatosis disease?

we have many types of granulomatosis nad some of them can be congenital. the most well known one is Wegener's granulomatosis, a systemic vasculitides. for its management Daily cyclophosphamide and corticosteroids or Monthly intravenous cyclophosphamide or Methotrexate can be used.  (+ info)

doctor to treat orofacial pain in hartford, connecticut area.?

You are very unspecific in your presentation.. Where is the facial pain.. You realize you are talking about cranial nerves, I hope. This is suggestive of the origin being very high in the cervical spine. To confirm this, just press at the base of the skull and see if there is discomfort there. Again, suggesting an inflammatory process is in play. Involving the nerves. the facial as well as those of the mouth. For such a condition, it is recommended you obtain the services of a doctor of Chiropractic.  (+ info)

Wegener's Granulomatosis and sterility?

Here is the deal, I cheated yes look down on me and critize me it's fine i understand i'm scum and don't deserve any help...but the situation is my boyfriend and i were having problems i met a guy who i thought was great and wonderful and we talked and got close and he told me about this disease he was diagnosed with like 4 years ago but it was uncureable...also he said due to the treatment and disease he was unable to have kids, we ended up having sex a couple times, once the condom broke than 3 other times we didn't use one, i was not worried because he could not have children, while now i'm 8 months pregnant and wondering if HE COULD be the father...any advice or info would help...YA YA I KNOW I'M WRONG AND A BAD GIRLFRIEND AND DON'T DESERVE ANYONE...

Of course there's that possibility. I hope you have the decency to tell your boyfriend that he may not be the father of the child.  (+ info)

What do i need to do to become OROFACIAL MYOLOGIST. How Much they make. I am a registered Dental Hygienist.?

I am a dental hygienist and I need to know how I can become a certified oral facial myologist. I know there are no current laws regarding their certification. I know they work orthodontist to help treat different disorders like
* Improper oral habits such as thumb or finger sucking, cheek/nail biting, tooth clenching/grinding.
* Restricted nasal airway due to enlarged tonsils/adenoids and/or allergies.
* Structural or physiological abnormalities such as a short lingual frenum (tongue-tie) or abnormally large tongue.
* Neurological or developmental abnormalities.
* Hereditary predisposition to some of the above factors.

Yes but you do need a certificate in it or else you wont get employed, its very hard to find places that tech it, but try all the dental schools  (+ info)

What does it mean if the life cycle of the red blood cell is short?

Could it be Wegener's Granulomatosis?

Serious Responses only. I am studiying again.
Patient presents as an atypical cellulitis
and shortness of breath

Skin presents as systemis lupus but
ANA doesnot confirm.

thoughts or comments?
White count normal.
Sed rate not indicative of
R/O Hughes Syndrome

many conditions shorten the life span of a red blood cell (normally 120 days).

to name a few: increased fragility of the cell from metabolic abnormalities, an overactive spleen, certain drugs or infections, malignancy, or an autoimmune condition (WG is just one of the rare ones -- there are a lot more)...  (+ info)

Does Kava Kava Really Have Bad Side Effects?

I really want to take it, but i've heard reports of liver toxicity...I might, but not 100 percent positive, have mild dystoni or orofacial dyskinisia thanks to pseudo science psychatry...it says kava can make that worse so im hesitant to take it but have very bad anxiety...mainly social anxiety and insecurity...so what should I do?

I wish I could give you a definitive answer. Apparently, alleged problems with kava kava surfaced in 1999 and continued into the early years of the new millennium. Many countries banned the sale of kava kava. However, more recently most countries have reversed the ban and the herb is being sold again.

I got the quote below through google, but unfortunately lost the exact website that published the following info. You might want to look at http://www.google.com/search?sourceid=navclient&ie=UTF-8&rlz=1T4GGLL_enUS336US336&q=kava+banned. I wish you well.


"Kava's troubles began in 1999, when reports of hepatotoxicity began to surface in Germany and Switzerland. The product was withdrawn voluntarily from the U.K. market in December 2001 so authorities could investigate the reports. Shortly thereafter the U.S. Food and Drug Administration sent a letter to clinicians urging them to report cases of possible hepatic toxicity related to the use of kava-containing supplements.

In the summer of 2002, Swiss researchers reported that the toxicity resulted from the acetone extraction process used by German manufacturer Schwabe Pharmaceuticals. This led some experts to suggest that the herb might be safe if another process were used. But subsequent cases were linked to the use of products made by ethanol extraction or composed of synthetic kavain.

Other countries, including Canada, Germany, Switzerland, France, and Australia, have restricted the sale of kava. The FDA continues to advise consumers, especially those with or at risk for liver disease, about potential hazards of kava-containing products."

EDIT: To Rihanna, I tried CBT for anxiety and depression. I found it utterly useless. However, stress relief forms drawn from alternative therapy (massage therapy, yoga, etc.) and standard psychotherapy might be of value.  (+ info)

vaginal herpes without sexual contact, possible?

I seem to have orofacial herpes (on my lips). Now I don't know if I have vaginal herpes or not. Is it possible that I get vaginal herpes since I have the orofacial one? I have never had any sexual activities, so what's the esplanation?

Herpes can be transmitted through saliva. If you've been kissing a person who has the herpes simplex virus, they may have given it to you without knowing it. Similarly, you can give it to others through kissing.

As for vaginal herpes, it is possible to get both types independently of one another. All that matters is if you have the Herpes simplex virus, not your sexual history.  (+ info)

Wegeners desease how many survive this illness?

My family member was diagnosed with Wegeners Granulomatosis end of December 2008, she might have had the desease since April 2008.
She has been hospitalized from 27 December and is now on a respirator under sedation. She is in a states hospital in South Africa and the dr seem to have no clue of treatment. Is there anyone who can give me information regarding survival etc on this illness

Bird D - Wegener's granulomatosis is an uncommon disorder that causes inflammation of the blood vessels, which in turn restricts blood flow to various organs. Most commonly Wegener's granulomatosis affects the kidneys, lungs, and upper respiratory tract. The restricted blood flow to these organs can damage them.

Besides inflamed blood vessels, Wegener's granulomatosis produces a type of inflammatory tissue known as granuloma, found around the blood vessels. Granulomas can destroy normal tissue. What causes Wegener's granulomatosis is uncertain, but it's not an infection nor is it a type of cancer.

Early diagnosis and treatment of Wegener's granulomatosis may lead to a full recovery. Without treatment, Wegener's granulomatosis can be fatal, most commonly from kidney failure.

Treatments and drugs:
With early diagnosis and appropriate treatment, a person may recover from Wegener's granulomatosis within a few months. In some cases, longer treatment may be necessary. Because the disease can recur, the doctor will continue monitoring the patient's condition after treatment.

The doctor may prescribe corticosteroids, such as prednisone, to treat the early signs and symptoms of Wegener's granulomatosis. For some people, a corticosteroid may be enough. However, most people require another immunosuppressive drug, such as cyclophosphamide (Cytoxan), azathioprine (Imuran) or methotrexate (Rheumatrex), to counteract the body's immune reaction.

When standard treatments aren't effective, some doctors who are experienced in treating Wegener's are using experimental drugs. One such drug is rituximab (Rituxan), which reduces the number of a type of cell in your body (B cell) that's involved with inflammation. But further studies are needed to see if this drug should be considered standard treatment for Wegener's. Rituxan was developed to treat a type of cancer known as non-Hodgkin's lymphoma and has since been approved for the treatment of rheumatoid arthritis.

Because of potential side effects of the drugs used to treat Wegener's, such as hampering your body's ability to fight off infection, the doctor will monitor the patient's condition while the patient takes them. Drugs the doctor may prescribe to help prevent drug-related side effects include:

Trimethoprim-sulfamethoxazole (Bactrim, Septra) to prevent lung infection
Medicine such as bisphosphonates (Fosamax) to prevent bone loss (osteoporosis) associated with prednisone use
Folic acid, a synthetic form of the B vitamin folate, to prevent sores and other signs and symptoms associated with the depletion of folate in the body from methotrexate use
If there has been kidney failure as a result of Wegener's granulomatosis, the patient may want to consider a kidney transplant to restore normal kidney function. A successful transplant depends on finding the organ that minimizes the chances the body will reject it and following a treatment regimen that will allow the body to accept the new organ.

The doctor may determine whether a kidney transplant might be an option. Eligibility to receive a donated kidney will depend on how other organs have been affected by the disease.  (+ info)

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