FAQ - Heart Septal Defects
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Where can I get information on Fetal Heart Defects?


My sister is 21 weeks pregnant and she found out at her ultrasound today that the baby has an enlarged muscle NEXT to her heart. Nobody really explained this to her beyond 'you may have a stillbirth" and "when baby is born she may be rushed to CHEO' Im trying to get some background info but don't even know what this 'defect' is called in medical speak. If anyone can help me find answers I would greatly appreciate it!
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Theres not much information you can get unless you know what the heart problem is, the doctors should have explained what was going on. Maybe you should get a second oppinion. Also, if you would like to know about heart defects, look up Congenital heart defects, thats what its called when your born with a heart problem. Good luck, i hope yor sisters child is ok! Oh, defintley ask what the defect is called, that way you what your looking for. feel free to email me (through my profile) if you have questions.  (+ info)

Anyone with a child that was born with Heart defects that is going to Preschool or already has? Pleas answer?


My now 3 year old son was born with transposition of the great vessels and 3 other heart defects. He is doing great now and plays just like any other three year old with the exception he needs a few more breaks. My son will be starting preschool soon and I am worried about bullying and if he would get hit in his chest. I know there are very few bully's in preschool but I am still worried. What precautions did you take keep them safe?
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I personally played the concerned parent and told his teacher as well as the principal and school nurse about my sons heart defects that way they knew that he needed a few more breaks then the other kids and that way they knew that if anything were to happen then they knew exactly what could be the problem. Then with giving them all of the emergency contact information in case something did happen I felt safe sending my kid to school knowing that he would be okay.   (+ info)

Is there a bright future for children born with heart defects such as congenital heart disease?


Any graphs or statisics with sources would be helpful so that I can get a wider view to my research.
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My child has a heart called AV canal defect and has had 4 open heart surgeries (two of which has been mitral valve replacements) He also has severe pulmonary hypertension related to the heart defect. By looking at him you would think he is a healthy child (except he wears oxygen 24 7). He is very happy and does not let this get him down. Its been a long road because they are more prone getting sick so you cannot take them many places.
This is just my experience but my child has followed his own path.
They can have bright futures but sometimes it takes a while to get there .  (+ info)

What is the best way or treatment for congenital heart defects or "hole in heart"?


The hole size is 1.8cm. What are the success rate and risks of different types of operation or and different type of treatments? How long will a patient considered fully recovered from such procedures? Can a person lead a normal life after operation/treatment?
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This article will help you out:

SEPTAL DEFECT is an abnormality developed before birth. There are two types: ventricular septal defect (VSD) and atrial septal defect (ASD). In both cases oxygenated blood is forced from the left to the right side of the heart through a hole in the partition between the two sides. Too much blood passes into the lungs (via the pulmonary artery) and too little to the body tissues (via the aorta).

Ventricular septal defects are the most common, affecting about 150 babies in every 100,000. A small defect produces little or no effect but with a large ventricular hole, heart failure may develop six to eight weeks after birth. With large atrial defects, however, heart failure may not develop for many years or not at all.

The diagnosis is based on hearing a heart murmur (abnormal heart sounds made by turbulent blood flow) through a stethoscope. This is then followed by a chest x-ray and ECG.

Until recently, the only way to close a hole was though open-heart surgery. A revolutionary key-hole procedure is being trialled at the Royal Children's Hospital in Melbourne. A device called a septal occluder is inserted through a hole in the groin. It is sucked into a tube and fed through to the heart. When in place the device opens like an umbrella and instantly blocks the hole. In a few minutes a blood clot will form on the wire discs making a watertight skin. As the patient grows the heart will grow around the septal occluder.

Recovery is about 24 hours compared with two weeks for open heart surgery. Once the results of these trials have been evaluated it is hoped the procedure will b e available throughout Australia within six months.
In other procedures total recovery is in six month and the patient lead a Normal Span Of Life.
The risk is now very small,(much reduced) with advance technology.  (+ info)

i have a question about congenital heart defects?


my daughter was born with a hypoplastic aortic arch, a coarctation of the aorta and a small hole in her heart....i did not know of her condition until after birth. i had a very normal pregnancy. during ultrasounds i felt like the technician always looked at her heart more than everything else....one time i had to have a repeat ultrasound because they "couldnt get a good look at the heart" ??? doctors have assured me that this was not a problem they could have diagnosed or seen without having a fetal echocardiagram. i never had any special ultrasounds--just the regular one in the drs office. im just wondering if anyone else had this happen? or if there is an ultrasound tech out there that can give me some more info about if i could have known about this before my daughter born. her defects were so bad that when her "PDA" started to close she went into heart failure and shock and she almost didnt make it.
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First of all, a fetal echo is not a risky procedure. It's just an ultrasound done by a pediatric cardiologist looking only at the heart. It does expose the fetus to more radiation, which is not the best thing in the world, but I firmly believe that the benefits of prenatal diagnosis outweigh this.

My daughter was diagnosed prenatally with hypoplastic left heart syndrome. After several attempts to look at the heart and being unable to get good pictures of it (which the u/s tech attributed to the position she was lying in) the doctors in my OB practice just happened to pick my case to review and recommended a level II u/s for a second opinion. If they hadn't been going over it more closely I don't know if we would have known about her heart defect prenatally. I consider us lucky that the doctors caught that. That's why I tell everyone I know that if the u/s tech has a problem seeing your baby's heart well, request a level II if they don't suggest it. Heart defects are the most common birth defect, occuring in about 1% of newborns. Most are not as severe as my daughter or yours though.

A baby's heart is tiny, about the size of a walnut when they are born full term, and smaller than that in utero. It can be hard for even a trained u/s technician to see all of its parts. The only reason they caught my daughter's is because one of the ventricles was practically nonexistent, and that's one of the larger structures of the heart. I can't imagine it would be easy to detect a COA/HAA on a regular u/s - those structures are just so small.

My daughter is 20 months old, has had two open heart surgeries, and is doing absolutely fabulous. You would never know anything is wrong with her heart. Positive outcomes are very common.

Anyway, I hope this helps. You are not alone - there are a lot of parents dealing with CHD, many who did not find out about their child's defect until after birth. I know it is very devastating. I hope your daughter is doing well now.

(nurse_kiddy - I replied to the email you sent me but I'm not sure it went through - did you get it? [email protected])  (+ info)

What is the difference between cyanotic and acyanotic heart defects?__?


With a "cyanotic heart defect"- the patient has lack of oxygen going to the body usually because of an abnormal blockage or malformation of blood flowing from the right part of the heart into the lungs. Since not enough blood flow gets to the lungs, the pt may turn blue or "cyanotic".
WIth acyanotic heart defects - ususally involving the left part of the heart there is usually abnormal blood flow going from the left part of the heart to body. This doesn't cause the person to turn blue "acyanotic"- but may lead to congestive heart failure. good luck  (+ info)

How common are gained heart problems in 20-25 year old males? I mean excluding defects you're bo?


How common is it for men of my age to acquire heart problems such as heart disease, enlarged hearts, valve problems, aorta probs and other defects?

I know some probs are inherited and there from birth but what is the likelyhood of someone my age acquiring a heart defect of any kind?
title means to ask born with?
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Its not a high chance, but there is an incidence of around 10% (taking into account all possible heart problems);
Its higher than a lot of people realise!  (+ info)

Do most people with heart defects get tired easily?


How long can they usually walk before getting too tired? Also how could excessive running (over 2/3 kms) harm them?

Do the majority of these people sometimes need a disabled stroller or wheelchair? I used to know someone who had this type of problem and had to use a disabled stroller when walking long distances as they got tired quickly and easily.
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I have cardiomyopathy and lead a normal life, yes you can get more tired than a healthier person.

I don't run, walking is just as good for exercise  (+ info)

I'm writing a story and need to know some heart defects?


Basically anything that you can be born with that limits the amount of years you can live.
Or a disease that may lower your ability to fight off infections.
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I might chose something like cystic fibrosis. If you Google it you will find the symptoms. When I was first training most cystics died in childhood, now with maximal therapy is currently about 33 years, though of course many die before aged 20 years.  (+ info)

Anyone know about congenital heart defects?


I need one that people are (obviously) born with, that would need surgery by teenage years if not earlier. Also, what are those things called, the defibulator (sp?), that are like inside the chest, and will shock if the heart rate goes over a certain rate? It's for a story I'm writing and wikipedia-ing it was making me dizzy from the pics, so a starting point would be very much appreciated. Thanks!
I need the name of *A* heart defect, as a starting point.
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Ventricular Septal Defect is about one of the most common congenital heart defects in newborn babies. Most CHDs are caused by chromosomal abnormalities (a deleted chromosome, mutated, etc). There are some genetic predispositions such as babies with parents that have heart defects. Environmental factors such as smoking, infections, maternal infections (rubella), drugs, and maternal illnesses may also cause these defects while the fetus is developing.


Forgot to answer some of your questions. The apparatus that shocks the heart to reestablish a stable heart beat is called a Defribillator ( http://en.wikipedia.org/wiki/Defibrillator)  (+ info)

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