FAQ - Hypersomnolence, Idiopathic
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What are some treatments for severe Idiopathic craniofacial erythema?

I think i have severe Idiopathic craniofacial erythema because my face goes red whenever someone even says my name. School it is most common and im getting tired of being scared to go to school fearing by face will turn red and it gets worse when everyone notices. I feel like im on fire and then i can't concentrate on school work, or ask questions or comment so my face goes red so i dont get very good "participation" marks. Please help me.

According to experiencefestival.com, "A number of treatments are available. The most successful non-invasive procedure is cognitive behavioural therapy (CBT), which attempts to alleviate the anxiety felt by sufferers.

"In extreme cases a surgical procedure known as Endoscopic Transthoracic Sympathicotomy (ETS) is available. Pioneered by surgeons in Sweden, this procedure has recently become increasingly controversial due to its many potential adverse effects. Patients who have undergone the procedure frequently complain of compensatory sweating and fatigue. ETS is now normally only considered in extreme cases where other treatments have been ineffective."

I checked out Wikipedia.org for the definition of Endoscopic Transthoracic Sympathicotomy, and it says that, "Endoscopic thoracic sympathectomy (ETS) is a surgical procedure where certain portions of the sympathetic nerve trunk are destroyed. ETS is used to treat hyperhidrosis, facial blushing, Raynaud's disease and Reflex Sympathetic Dystrophy. By far the most common complaint treated with ETS is palmar hyperhidrosis, or "sweaty palms". In this disorder, the palms may constantly shed so much sweat that the affected person is unable to handle paper, sign documents, keep clothes dry, or shake hands. The result is often social phobia so severe as to be disabling.

Sympathectomy refers to the destruction of tissue anywhere in either of the two sympathetic trunks, long chains of nerve ganglia lying along either side of the spine. Each trunk is broadly divided into three regions: cervical (up by the neck), thoracic (in the chest) and lumbar (in the lower back). The most common area targeted in sympathectomy is the upper thoracic region, that part of the sympathetic chain lying between the first and fifth thoracic vertebrae."

I hope you find something that will bring you the relief I'm sure you're desperate for.  (+ info)

Are there any parents with children who have idiopathic anaphalyxis?

I have a 9 yr old with idiopathic anaphalyxis. This means she has anaphalactic shock with no known cause. I was hoping someone out there would be going through this and would have some suggestions or ways they deal with this.

Idiopathic Anaphylaxis (IA) is a well-described syndrome of anaphylaxis without any recognised external trigger. These patients present with the same symptoms as patients with other types of anaphylactic reaction. The attacks occur with variable frequency. Fatalities have been reported in patients who have been diagnosed with idiopathic anaphylaxis

Symptoms & signs do not differ from other forms of anaphylaxis and include:

• Hypotension & increased pulse rate
• Wheezing & stridor
• Hives, angioedema, flushing, & itching
• Nausea, vomiting, diarrhea, difficulty swallowing
• Light-headedness and loss of consciousness

In the series of Ditto et al [3] all of them experienced hives and angioedema, whereas 60% experienced symptoms of upper airway obstruction. Individual patients usually tend to have the same manifestations on repeated episodes. Progression from hives and itching to life-threatening symptoms of wheeze, loss of consciousness, and laryngeal edema may occur in 10 min to hours after onset.

Classification of Idiopathic Anaphylaxis (IA)
(Adopted from Roy Patterson, M.D. textbook on Idiopathic Anaphylaxis)

Disease Symptom
Generalized (G) Urticaria or angioedema with bronchospasm (asthma)
Hypotension (reduce blood pressure), syncope
Angioedema (A) Angioedema with upper airway compromise
(Laryngeal, pharyngeal, tongue)
Frequency of episodes More than 6 episodes per year: Frequent (F)
Less than 6 episodes per year: Infrequent

Treatment depends on the severity and frequency of the attacks. Steroids seem to be universally effective in IA. If symptoms are not controlled on 60 mg daily by the end of 6 weeks, the diagnosis of IA should be questioned.

Acute Treatment

Prednisone 60 mg
Hydroxyzine 25 mg
Go to the nearest emergency room
Programme for IA-F

Arrange acute treatment
Prednisone 40 — 60 mg daily for at least 1 week or until symptoms controlled, then decrease to alternate day and the wean by 5 — 10 mg each month.
If it is proving difficult to wean off steroids ketotifen should be added [4]
Cetirizine 10 mg daily or Hydroxyzine 25 mg tds
Follow-up based on response to treatment
Programme for IA-I

Arrange acute treatment
No chronic medicTreatment recommendations for idiopathic anaphylaxis patients depend on the frequency and severity of their exacerbations. Whereas care should be individualized, some simple guidelines should be universally applied (Figure 1). All idiopathic anaphylaxis patients should be educated about idiopathic anaphylaxis and taught how to manage an acute attack. Immediately after the first signs of anaphylaxis, adult patients should inject 0.3 ml of 1:1000 w:v aqueous epinephrine intramuscularly followed by oral doses of both an antihistamine (e.g. diphenhydramine 50 mg or hydroxyzine 25 mg) and 60 mg prednisone. This emergency kit should always be within reach and should be checked occasionally to make sure it has not expired. After use, patients should be transported immediately to the nearest emergency departmentation

Patients classified with frequent symptoms require maintenance therapy, which should include 40-60 mg of daily prednisone and an antihistamine, such as cetirizine 10 mg, hydroxyzine 25-50 mg, or benadryl 25-50 mg. Prednisone should be given daily for at least 1 week, but if symptoms are not controlled after 6 weeks then the diagnosis may be called into question. When the condition is controlled, prednisone may be decreased to every-other-day dosing and subsequently weaned by 5-10 mg each month. After the prednisone is discontinued, the antihistamines may then be tapered. Although steroids seem to be universally effective in idiopathic anaphylaxis, the natural history of the condition may also lead to remission.[43]

Those patients who fail steroid tapering (classified as corticosteroid-dependent idiopathic anaphylaxis or malignant idiopathic anaphylaxis) may be tried on alternative medications. Wong et al.[44]studied nine steroid-dependent idiopathic anaphylaxis patients and reported that the addition of ketotifen helped seven of them significantly reduce or discontinue their steroids. Alternative medications that can be used include oral cromolyn, oral albuterol, or montelukast. To avoid burdensome and costly drug regimens, these second-line agents should be discontinued if they do not obviously decrease the patient's prednisone dose.

Pediatric patients with idiopathic anaphylaxis should be classified and treated in a similar fashion to adults, while taking into account dose adjustments for steroids, epinephrine, and antihistamines.[45] Of the second-line medications, montelukast has been approved for children over the age of 2 years, whereas both cromolyn and albuterol have also been approved for infants.

Although the literature has placed limited emphasis on the perioperative management of idiopathic anaphylaxis, there are cases of surgically induced exacerbations.[4, 44] A prophylactic regimen of perioperative steroids is aimed at preventing intra and postoperative anaphylaxis. Patients who experience frequent exacerbations before surgery should not undergo elective procedures until their disease is under optimal control. Patients who have had an episode of idiopathic anaphylaxis within the past year but are well controlled should be treated prophylactically with 40-60 mg prednisone per day on the 5 days preceding surgery and then 100 mg intravenous hydrocortisone every 8 h during surgery and through the recovery period.[46]

All patients diagnosed with idiopathic anaphylaxis should receive a Medic Alert bracelet or other identification that clarifies their diagnosis. They should also be educated about what symptoms to look for and how to administer their emergency epinephrine, prednisone, and antihistamine properly. Physicians should reassure their patients that compliance with the prescribed regimen offers an excellent remission rate, in excess of 80%.[4] Patients also benefit from knowing that it is unlikely that an unforeseen external allergen is responsible for their symptoms.

Follow to assess response & compliance  (+ info)

Will it help you live longer if you stay on pregnazone if you have idiopathic fibrosis of the lung?

I was just wondering because my grandma had isiopathic fibrosis of the lung and I think that the doctor took her off of it but the actor Jerry Lewis has idiopathic fibrosis of the lung and taking pregnazone and he's still living. I was just wondering if taking her off of that killed her sooner.

  (+ info)

B/w bronchiectasis and idiopathic pulmonary fibrosis which is a more serious and damaging disease ?

Which is a more serious and damaging disease ?

They both could be serious and damaging .... there are some pulmonary fibrotic disorders that cause severe hemoptysis and eventually death  (+ info)

Has anyone else with Chronic idiopathic Urticaria tried a gluten free diet?

My husband has had chronic idiopathic urticaria for the last 6years and as anyone with this condition knows it is driving him crazy, its getting worse and the medication he is on isn't as effective any more. I read the other night about a guy who had the same condition and by changing his diet to gluten free the condition cleared up! I would like to know if anyone else had tried this?

  (+ info)

B/w idiopathic pulmonary fibrosis and broncheactisis,which is a more serious and damaging disease ?

And which can be cured or treated easily ?

IPF easily.
Bronchiectasis can be treated more easily.  (+ info)

Does the bottom curve straighten out after idiopathic scoliosis surgery on the top curve?

Will the bottom curve in my spine (out, left) straighten after the top curve (out, right) gets straightened during surgery?

The answer above me is correct it cant always be done i had my bottom curve straightened but unfortunately i still have a top curve and because of this my bottom half had to be left a bit curved to balance me out,

otherwise if they straightened my bottom half i my top half would be bent sideways so i would then be bent to one side,so that's why they left the bottom half curved so i can stand upright i am disappointed as i felt it unfair to go through hours of surgery only to be left curved,

but most do get straightened as i saw for myself while in hospital but some don't, nobody can tell for sure as i was promised to be straight when they studied my x-rays but after opening me up the real truth was it wasn't possible, so even experts don't know for sure until they have a look inside you on surgery day.  (+ info)

has anyone used prialt to treat idiopathic peripheral neuropathy, and if so, what were the results and side ef?

i've heard the side effects are very emotionally unsettling, and now they're claiming they've learned how to use it more effectively to diminish the side effects. what can anyone tell me?

Try methylcobalamin (B12) first.

"Published studies show that high doses of methylcobalamin are needed to regenerate neurons as well as the myelin sheath that protects nerve axons and peripheral nerves. "


There are hundreds of testimonials on the web....  (+ info)

Will having idiopathic thrombocytopenic puta (ITP) affect my chances of having lasik eye surgery?

I have idiopathic thrombocytopenic puta (ITP)
i am also short sided and am looking into having lasik eye surgery.
will my IPT affect my chances of receiving the surgery or the effectiveness of the surgery?

Just tell the Dr. Shouldn't be a big deal. Some parts of the body aren't vascular. Won't affect the outcome either.  (+ info)

Is there an alternative treatment available for idiopathic pulmoanry fibrosis?

any herbs or stem cell treatment?


Stem cells hold great promise in the treatment of pulmonary fibrosis especially the type 2 pneumocytes. Researchers have used animal models and have successfully shown that the type 2 pneumocytes if injected in suspension form repair the damaged alveolar or lung tissue.
These studies are still in initial phases and it will take some time before a viable stem cell treatment for lung fibrosis becomes available.
Natural remedies like aloe vera juice have been found to help with the symptom of pulmonary fibrosis.
Hope this helps!

Noopur  (+ info)

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