FAQ - Insulinoma
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Ask for reccomendation for surgeon who has experiences for insulinoma surgery?

Dear all,
I have a question about finding a surgeon for insulinoma surgery. Do anybody know or experienced for that particular surgery and surgeon? If so, please let me know. Your help is greatly appreciated.
Thank you very much.

This is a pretty rare condition. You would need to have your GP refer you to a specialist. This would most likely be in a major teaching hospital in your area. Most doctors that specialize will not take you without a referral.

You can check out these hospital's websites, and look to see if they also have patient information that you can read. You can also look for an insulinoma support group forum on the web and ask there.  (+ info)

Friend just diagnosed with insulinoma?

I dont know anything about this. Have you or anyone you know suffered with this and how successful is treatment?

It's a tumor in the pancreas that produces too much insulin.  (+ info)

My sister has insulinoma, What are survival chances?

"Most patients with benign insulinomas can be cured with surgery. Persistent or recurrent hypoglycemia after surgery tends to occur in patients with multiple tumors. About two percent of patients develop diabetes mellitus after their surgery."
In other words, your sister's prognosis depends on how early she was diagnosed, whether or not she has multiple tumors, where she seeks treatment, her over-all physical and mental health, etc. No one here on Yahoo! can give you an accurate prognosis. Only her primary oncologist can do that...and then he may be wrong. Don't EVER lose hope!
***P.S. -- It's shameful to think that the responder above me (blue_moon) would try to pass herself off as a doctor. If you look at her other answers and questions, she is no doctor! She just asked a medical question concerning her own ankle and another about acne. She also gave advise to to an Asker on how to break someone's nose in a fight!  (+ info)

I had Insulinoma is there anybody else who had it or has its?

I had insulinoma which is a tumour of the pancreas i had it removed through key hole surgery is there anybody else who has it or had it as it is sure a rare condition two in every million

An insulinoma is a rare pancreatic β‑cell tumor that hypersecretes insulin. The main symptom is fasting hypoglycemia. Diagnosis is by a 48- or 72‑h fast with measurement of glucose and insulin levels, followed by endoscopic ultrasound. Treatment is surgery when possible. Drugs that block insulin secretion (eg, diazoxide, octreotide, Ca channel blockers, β‑blockers, phenytoin) are used for patients not responding to surgery.
Most patients with benign insulinomas can be cured with surgery. Persistent or recurrent hypoglycemia after surgery tends to occur in patients with multiple tumours. About two percent of patients develop diabetes mellitus after their surgery.  (+ info)

Do you have an Insulinoma?

If you have an insulinoma and need more information see www.insulinoma.co.uk How long have you had an insulinoma? What support did you receive for the insulinoma?


http://joe.endocrinology-journals.org/cgi/reprint/156/3/469.pdf  (+ info)

what test do they run to check for insulinoma?

Insulinoma may be suspected on the basis of insulin:glucose ratio greater than 0.4 and may be strengthened by determinations of proinsulin (elevated in Insulinoma) and C peptide. Localization of the tumor can be accomplished by CT scanning, Ultrasonography or arteriography and measurement of venous insulin concentration by selective venous catheterization. Treatment is by resection of (Insulinoma) tumor or if not localized, resection on the body and tail of the pancreas is done.  (+ info)

Hypoglycemia and insulinoma?

I had a 3 hour glucose tolerance test done because I have many of the symptoms of diabetes. The results, however, showed hypoglycemia. I had a fasting level of 74 but at one hour I had dropped to 47. At two hours it was 51 and at 3 it was 58. My PCP thought that since my blood sugar was still so low after 3 hours that I might have an insulinoma. He said that he really wasn't sure what to do so he referred me to an endocrinologist. What should I expect the endocrinologist to want to do? Also, when my blood sugar was at 47, I still did not feel as bad as I have on several occasions at work. (On one occasion, I basically felt like I was drunk and was having extreme difficulty functioning. My coworkers thought that I looked like I was about to pass out.) How low does one usually have to get to be at risk for serious complications such as loss of consciousness or seizure?

Just a little info. . .

Endocrinology is the study of glands and hormones of the body and their disorders. An endocrinologist is a doctor that specializes in the endocrine system which includes the glands like the thyroid, parathyroid, pancreas (where the body produces insulin), ovaries, testies, adrenal, etc... These doctors diagnose and specifically treat the diseases that affect your glands. The reason your doctor has referred you to see this doctor is because there is obviously a problem with the way your body producing insulin, and this needs to be evaluated and treated by the appropriate type of doctor. Basically, your body needs glucose to function. Glucose is a form of sugar that is an important fuel for your body, and is the body's energy source.

If I were you, I would make the appointment immediately! It is very very very important, I cant stress this enough. . . Severe hypoglycemia can cause you to loose consciousness, and if you say that at a level at 47 you felt fine, im sure that it was lower at work when you were dizzy. And much lower that 47 just isnt safe. . .

Good luck, and make sure that you follow up with your primary care physician with the results from your specialist.

*****Note---When you are feeling dizzy or faint, the first thing that you need to do is have a big glass of orange juice!!! (try and keep some OJ at work, just in case) This will help bring your glucose level up, if something should happen.*********  (+ info)


i am having symptoms of insulinoma but i have type 2 and my endo wont even test me for it....she says not possible- i have read it is possible and wanted any info on symptoms and the possibilty of this anyone can give me

I agree with your doctor. Insulinoma is a tumor on the pancreas that causes the pancreas to make excessive amounts of insulin. The symptoms are almost identical to those of hypoglycemia. You can look it up on the internet, there should be a lot of sites.   (+ info)

how can we defferentiate between hypoglycemia caused by factitious insulin injection and by an insulinoma?

lets put it in another way on measuring blood insulin level how can we know whether its endogenous or exogenous

Just to help others here, may I rephrase?.... How can we tell the difference between low blood sugar resulting from man made insulin verses insulin from insulinoma (insulin produced from a beta cell tumor on the pancreas).

One would need to carefully monitor food intake and insulin injections while monitoring blood glucose with a CGMS (continuous glucose monitoring system). Insulinoma produces hypoglycemic epsiodes at improbable times whereas regular injections of insulin (man made or other) would produce more predictable hypoglycemia.  (+ info)

how do you get insulinoma?

how is this fixed i have a 5 year old who i found out today may have this has high cpeptide levals low sugar what do i need to expect

There a two links below which may help  (+ info)

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