FAQ - Leukemia, Hairy Cell
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Whats the prognosis for someone with Hairy Cell Leukemia?

My friend just called me today saying that the doctor told her that she has Hairy Cell Leukemia. What can i do to help her? Whats her prognosis?
She is only 18
She is probably lying to me. Thats typical of her. :(

I have never heard of Hairy Cell Leukemia in an 18 year old, and I saw leukemia patients for 20 years. Below is an excerpt from a Mayo Clinic Review.
From http://www.mayoclinic.com/health/hairy-cell-leukemia/DS00673
"Somewhere between 600 and 800 people are diagnosed with hairy cell leukemia each year in the United States. Hairy cell leukemia affects more men than women, and it occurs most commonly in middle-aged or older adults. Children and teenagers don't get hairy cell leukemia."

You might double check the facts in this case.
If she does truly have Hairy Cell Leukemia - the Mayo Clinic Review should help explain the disease for you. Also, here is an NCI review http://www.nci.nih.gov/cancertopics/pdq/treatment/hairy-cell-leukemia/patient/
And one more http://www.scumdoctor.com/disease-prevention/incurable-diseases/hairy-cell-leukemia/Prognosis-For-Hairy-Cell-Leukemia.html  (+ info)

How common is it for a child to be diagnosed with hairy cell leukemia?

I read that it was most common for senior citizens to be diagnosed with the cancer. Has a child ever gotten it?

Yes, a child has ever gotten HCL.
You may want to read up on this article by Yetgin S, et al (2001). Relapse in hairy cell leukemia due to isolated nodular skin infiltration. Pediatr Hematol Oncol.18 (6):415-7. If you need the article, you can let me know. Hope it helps.  (+ info)

What webstite(s) would provide treatment information on unusual cases of Hairy Cell Leukemia ?

I was diagnosed with Hairy Cell Leukemia, but my spleen is normal and blood counts are normal. A biopsy done on a bone lesion was diagnoses as Hairy Cell Leukemia.




they are a great information resource,

29 months and still here  (+ info)

Anyone here recieve Cladribine for hairy cell leukemia?

Do you know how it makes you feel after the treatment is over? Do you develop neutropenia or drop in cell counts?

feel after the treatment, nausea is to be epxected, you can also feel muscle pains etc. cytopenia (drop in cell counts) or neutropenia (specific drop in white cells) is also expected. you can look for side effects on drugstore.com, good luck  (+ info)

Does anyone know anything about Hairy Cell Leukemia?

Hairy Cell Leukemia is what my dad was diagnosed with. I heard it was highly treatable but im still worried. i searched on the internet but i can only find stuff about side effects. I would like to know about treatments and survival rate still. If anyone knows anything that would help a lot!...even if it doesnt put my mind at ease i would rather expect something bad then be surprised by it. ok thank you!

The Leukemia & Lymphoma Society has excellent information on Hairy Cell Leukemia on its website.

The site address is: http://www.leukemia-lymphoma.org

I have also included a link under "source" to a pdf document from the society that has detailed information on HCL.

HCL is indeed highly treatable. I could not find a consensus figure on the survival rate but I assure you it is very high. I am sure your dad will be ok.  (+ info)

Does anyone know why hairy cell leukemia comes about? could it be due to an environmental factor?

my boy friend works for a water/waste water testing company, and he has hairy cell leukemia... could this be due to something he had been exposed to on the job? only serious inquiries... please...if anyone knows a doctor or a person who could help me on this, i would really appreciate it. my boy friend has it, and he is really sick...

I'm sorry, I don't know the answer.
However, this is a terrific site for info:
Best wishes  (+ info)

Is anyone familiar with "Hairy Cell Leukemia"?

It is rare, Ive done my research but wondering if anyone has any personal or professional experience with it and the treatment of it. We have chosen not to do chemo at this time. So far our natural treatments have been great BUT the need for blood transfusions about every 6 weeks has been necessary. Does anyone know how to build your blood up to acceptable levels. The blood loss and counts are stabelizing but not really improving. The natural remedies focus mainly on immune system support and I wouldnt change a thing there, but Im missing something for the anemia. The doctor has no answer, just infuses when RBC gets down to 9 (should be atleast 14-18). Thanks

Hairy cell leukemia is a chronic lymphoid leukemia.
The most common type of leukemia in the Western world, CLL involves mature-appearing defective neoplastic lymphocytes with an abnormally long life span. The peripheral blood, bone marrow, spleen, and lymph nodes undergo leukemic infiltration. Symptoms may be absent or may include lymphadenopathy, splenomegaly, hepatomegaly, and nonspecific symptoms attributable to anemia (fatigue, malaise). Diagnosis is by examination of peripheral blood smear and bone marrow aspirate. Treatment, delayed until symptoms develop, is aimed at lengthening life and decreasing symptoms and may involve chlorambucil or fludarabine, prednisone, cyclophosphamide, and/or doxorubicin. Monoclonal antibodies, such as alemtuzumab and rituximab, are increasingly being used. Palliative radiation therapy is reserved for patients whose lymphadenopathy or splenomegaly interferes with other organs.
Please see the web pages for more details on Hairy cell leukemia.  (+ info)

does anyone know or have hairy cell leukemia? help me... my boyfriend has it.?

my boy friend is 39 and just wondering if or what he will go through after chemo... serious responses only

The Leukemia & Lymphoma Society can help you. Check out www.lls.org

great resource. They have an 800# you can call and have all of you questions answered by live professionals.  (+ info)

information on "hairy cell leukemia"?

The name "hairy cell leukemia" comes from the type of cells that are over produced. Leukemia is an over production of white blood cells. Hairy cell leukemia just refers to the specific type of white blood cell that is over produced (the B lymphocyte). The B lymphocyte looks hairy under a microscope.

Hairy cell leukemia is just like other forms of leukemia as far as treatment and prognosis goes. The cause of hairy cell leukemia is unknown. It occurs more often in men than women, and often in the 6th decade of life.  (+ info)

I am seeking information on ways to reduce white cell counts in Chronic Lymphatic Leukemia?

are there any herbals.naturopathic,mineral suggestions in assisting the reduction of white cell count for Chronic Lymphatic Leukemia?

Pranayam will help to reduce the white cell count in chronic lymphatic leukemia and will help the body to fight the cancer.Over long term you will recover fully.
The pranayam techniques:
Bhastrika - Take a long deep breath into the lungs(chest not tummy) via the nose and then completely breathe out through the nose.Duration upto 5 minutes.

Kapalbhati -(Do it before eating) Push air forcefully out through the nose about once per second. Stomach will itself go in(contract in). The breathing in(through the nose) will happen automatically. Establish a rhythm and do for 20 to 30 minutes twice a day.(Max 60 min/day) Not for pregnant women. Seriously ill people do it gently.

Anulom Vilom - Close your right nostril with thumb and deep breath-in through left nostril
then – close left nostril with two fingers and breath-out through right nostril
then -keeping the left nostril closed deep breath-in through right nostril
then - close your right nostril with thumb and breath-out through left nostril.
This is one cycle of anulom vilom.
Repeat this cycle for 20 to 30 minutes twice a day(maximum 60 minutes in one day).
You can do this before breakfast/lunch/dinner or before bedtime or in bed.Remember to take deep long breaths into the lungs.You can do this while sitting on floor or chair or lying in bed.

Bhramri Pranayam -Close eyes. Close ears with thumb, index finger on forehead, and rest three fingers on base of nose touching eyes. Breathe in through nose. And now breathe out through nose while humming like a bee.
Duration : 5 to 10 times

Only by doing you will benefit and will feel good that you can do something to help the body.Copy and print this to improve your technique and stay focused.This is simplified pranayam for everyone and you do not have to go to classes to learn. This is for life, unlike short term classes where you do it in the class then stop when classes are over.  (+ info)

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