FAQ - Lipomatosis
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What is the best treatment for Spinal Epidural lipomatosis?


My husband was recently diagnosed with Spinal Epidural Lipamatosis. We were steroid shots were a small possibility but surgery was the most likely solution. Any other possibilities or what the surgery entails?
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Surgical procedure is the best option of people diagnosed with Spinal Epidural lipomatosis.
Read some articles here:
http://www.healthaddicted.blogspot.com/
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Have epidural lipomatosis. Should I fear the worst?


I have had constant back pain for the past five years. After going to many doctors I finally had an MRI done. The MRI turned out to say that I have epidural lipomatosis in the thoracic region of my back, where my back is constantly painful. My doctor did not tell me about any epidural lipomatosis though. It was on the MRI report and I only saw it when the document fell out of my MRI chart and I picked it up to read it. I did some research on epidural lipomatosis and discovered it to be rare and possibly dangerous, in that it might require surgery with a 22% morbidity rate. Should I be concerned with this disorder? Will it get worse? I am 23 and I feel like it will only get worse. Thank you for your help. I recently have started taking glucosamine thinking that it would help my flexibility, but I'm wondering if this would help the epidural lipomatosis.
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Lipomatosis is a condition marked by the excessive deposit of fat in a localized area. Epidural means located over or on the dura. Dura is a fibrous connective tissue membrane, the outermost of the meninges covering the spinal cord (dura mater spinalis) and brain (dura mater cerebri or dura mater encephali).

I do not have any more information on it, unforunately. Contact your doctor and ask him about the condition and why it was not mentioned to you during your visit. If you do not receive a satisfactory answer, then get a second oppinion.  (+ info)

Is there any way to get rid of multiple lipomatosis without surgery? Please help.?


No surgery is the only treatment option for this condition, if your doctor thinks your disease is threatening to your health you should get the surgery and be done with it  (+ info)

what is epidural lipomatosis?


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PIERPONT SYNDROME has anyone else had this mentioned as a possible diagnosis for their child?


I am just wondering if anyone else has a child with special needs, who could possibly have this rare syndrome. Includes global developmental delay, feeding problems, lots of other things but there is one unique amomily - UNUSUAL FAT PADS ON THE FEET. The geneticists call it Plantar Lipomatosis.

My child is suspected P.S. but I have been lucky to have been contacted by others with children with this syndrome.

If your child has developmental delay, feeding problems and unusual fat pads on his or her feet, then PLEASE MAKE CONTACT!

You are not alone!
Kelly S, thank you so much but I am already aware of them. All the contacts I have are either members or contacts of members. Thanks though, nice to know someone cared to offer a constructive answer. P.S. is so rare that there are only 2 or 3 on making contact and I know of them.

I am trying to find out if any others are out there, who aren't at this stage yet and therefore don't know anyone.

Very good info though, thanks again. xx
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I think I have found the answer to your prayers. It's a web site with support for this syndrome and you can make contact with others either suffering from this syndrome, or who have family members or children who do. I really hope it helps you find some good supportive friends:

http://www.makingcontact.org/index.php?ci=2048  (+ info)

PIERPONT SYNDROME has anyone else had this mentioned as a possible diagnosis for their child?


I am just wondering if anyone else has a child with special needs, who could possibly have this rare syndrome. Includes global developmental delay, feeding problems, lots of other things but there is one unique amomily - UNUSUAL FAT PADS ON THE FEET. The geneticists call it Plantar Lipomatosis.

My child is suspected P.S. but I have been lucky to have been contacted by others with children with this syndrome.

If your child has developmental delay, feeding problems and unusual fat pads on his or her feet, then PLEASE MAKE CONTACT!

You are not alone!
Philo, no, the thanks goes to YOU! You are doing so much for us (suspected or confirmed) P.S. parents. Just thought I would have another stab at finding more, but as big as Yahoo Answers is, no more members to the family! Well, anything is worth a try, isn't it?
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Good Job searching out others, Adamadamum! Thank you!  (+ info)


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