I have been diagnosed with SLE: Systemic Lupus Erythematosus, but for the moment it remains cutaneous. What are the chances for the disease to spread and attack other tissues? And if that does happen, is there any medication that can prevent the disease from permanently damaging the organs?
I'm so scared, please help.
Once you have this disease, do you have it for life?
In some patients with cutaneous lupus, it does also turn into systemic lupus. Most cases of systemic lupus are mild to moderate and are controlled by medication and lifestyle changes. The majority of people with systemic lupus will live a relatively normal life span if they follow their treatment regimen (90%+). You said you have been diagnosed with systemic lupus. That means it is more than cutaneous. Many patients have both.
The medications which control lupus are immunosuppressive drugs. Prednisone is the first line of defense in calming a flare, or period of disease activity. But prednisone can cause some problems at high doses and if taken for long periods of time. Most of us take hydroxychloroquine (Plaquenil) twice a day for life. This is preventive. For many patients the hydroxychloroquine is enough. If you have organ issues, then additional immunosuppressive drugs will be prescribed depending on what organ is involved.
Lifestyle choices that help are:
1. Eat a nutritious, balanced diet that is high in fruits and vegetables (at least 5 servings a day) and low in animal fat. Most of the time, avoid highly processed foods or fast food.
2. Get some physical exercise on a regular basis.
3. Learn stress management. Yoga, Tai Chi, meditation are all good tools.
4. Learn about lupus so you can better manage it.
5. Develop healthy and open communication with your physicians.
6. Follow your treatment regimen and don't be afraid to ask questions.
7. Talk to others with lupus. I am 56, have systemic lupus with organ involvement, and lead a very full and happy life. :-)
8. Stay out of the sun PERIOD!
There is no cure for lupus. You will have it for life. That said, you can learn to manage the lupus, work with your doctors and have a good life. Sure, it will be a little different from those who do not have lupus. You are the one who creates your new life with lupus. It is possible! (+ info
Could Helicobacteria Pylori be indicative of Discoid Lupus or Cellulitis of The Breast?
Diagnosed with Discoid Lupus 10 years ago. Hospitalized for Cellulitis of the Right Breast the same year. Now being tested for Helicobacteria Pylori. Intense stomach pain and have lost 20 pounds, unintentionally over the last year.
No. That Bacteria is specialized to the GI tract only. (+ info
Does anyone have discoid lupus and is pregnant?What are your symptoms? How do you deal with them?
I am about 9 weeks pregnant and I cannot take my medication to help prevent the rash. Every day about 2 hours after I wake up I get a flare up on my hands, arms, legs, ankels, neck and chest and they seeming to get worse. Is this normal? I can't get into my dermatologist for 2 weeks and none of my other doctors will touch the lupus issue. HELP!
Call the dermatologist back and be very firm about getting in earlier. If they gatekeepers still refuse, ask to have the doctor call you that day. If that does not work, call your rheumatologist.
Personally, I would look for another dermatologist ASAP. Lupus patients need to be able to see their doctors within a reasonable time when there is a problem Two weeks is not reasonable. It is most likely the receptionist who is the obstacle. Asking the doctor to call you should by pass him or her. Don't bother telling her your whole story. You can also fax the doctor explaining your symptoms clearly and asking him or her to call you ASAP. You can also call after hours and get the doctor's service and leave a message with them if you think your other approaches are not getting through to the doctor.
You might also call your ob/gyn and ask if over the counter cortison cream is permissible during pregnancy. Throughout your pregnancy the doctors who treat your lupus and your obstretician should be working hand in hand. You will be the one who has to make that happen. (+ info
Is there any natural herbs that I can take to control my Lupus? Also to get rid of discoid Lupus naturally?
Is their a way that I can naturally control my lupus with out taking a great deal of medication. Also I have discoid lupus on my face, can something like shea butter help
No. It is not normal for your immune system to attack you. That's what happens in lupus.
Lupus symptoms, whether in the skin or the body, are controlled when the overactive and confused immune system is suppressed. Shea butter moisturizes. Period.
You have a choice. You can run around looking for the magic "natural" bullet or you can bite the bullet and work with your doctors.
By the way, hemlock and arsenic are quite natural, but they can kill you. I have systemic lupus. Early on, I was sure there was some "natural cure" out there.
I take very few meds now, despite the fact that I had severe organ involvement (heart, lungs, bone marrow, kidneys). I am 98% vegetarian, severely limit processed foods, do not eat fast foods or junk foods, exercise daily, practice yoga and meditation AND follow the treatment regimen that my doctor and I have worked out. (+ info
Is there any pregnancy risks for women with discoid lupus?
I can't find any information on this topic online. All the sites mention only the risks of pregnancy with systemic lupus. Are there any risks?
There are risks with every pregnancy and it is probably higher when you add a condition to the mix. I'd contact your doctor for the specifics.
Praying for an uneventful pregnancy. (+ info
Any females with discoid lupus?I have this with the red lesions on my face,any good make-up to use?
I think I have tried everyone foundation practicaly made and nothing seems to hide the red patches on my face......Anyone have any suggestions or does anyone have discoid lupus that can give me some tips on what to do about the chronic fatigue??
I haven't found a make-up that works. But for the chronic fatigue I started walking a mile a day and it has helped a lot, even on the days I have no energy I walk. (+ info
How much should people with Systemic Lupus Erythematosus pay for the insurance in USA?
im not an american n im with Systemic Lupus Erythematosuscan. can i buy insurance there?? if i can, how much should i pay for irt?? after i having insurance, how much should i pay when i go see the doctor and get the medicine??
Answers to your three questions in the order you asked them:
1. Yes, you can.
2. More than $1/year, but less than $10,000/year.
3. Depends on your specific insurance plan.
Hope that helps! lol. (+ info
Can Systemic LUPUS Erythematosus cause swelling in ONE HAND ONLY?
The fingertips of my right hand are swollen, even turning purplish yesterday. My left hand is fine - no change. And my feet aren't swelling, either. Just the finger tips of my right hand.
Or it might be scleroderma.
You might need a venus doppler test to see if you have good blood flow to that hand. Blue finger tips indicate poor blood flow. (+ info
im a 38 year old male have lost 30 pounds in two years due to discoid lupus,try to gain my weight back?
discoid lupus,trying to gain weight back but have no appetite.any suggestions.
Try mixing a bottle of ensure, 2 scoops of ice cream, and a scoop of peanut butter in a blender then drink it like a milk shake. I'm 15 and have Crohn's Disease so it's really hard for me to gain weight (nearly impossible). Peanut butter and nuts have healthy protein in them to help you gain weight.
Here are a few other helpful weight gain recipes ~
* 1 banana
* 1 tofutti cutie
* about 1 cup of juice
* about 1 cup of Vanilla Rice Dream
1) Mix everything in a blender.
* 3 generous scoops lactose-free vanilla ice cream
* 1/2 can Boost
1) Blend if you have a blender, otherwise stir to a shake. Tastes best through a straw.
* 1½ tsp. unflavored gelatin
* 2 Tbsp cold water
* 3 Tbsp sugar
* 2 Tbsp light corn syrup
* 1½ cups of any flavor Ensure
* 3 Tbsp corn oil
* 1 tsp vanilla extract
1) Soften gelatin in cold water.
2) Add sugar and corn syrup. Heat slowly to dissolve sugar and gelatin.
3) Combine Ensure, corn oil and gelatin-sugar mixture. Mix well and pour into blender. Blender capacity should be at least 5 cups. Blend until thick and creamy.
4) Add vanilla extract, if desired, and mix well. Or add fruit to the blender at this point. Blend well.
5) Pour blended mix into an ice cube tray and freeze until very icy.
6) Place back into blender and blend until smooth.
7) Pour into container and return to freezer until firm.
Make three ½ cup servings.
This is a shake my doctor recommended for me to gain weight:
2-3 scoops of Ice cream 1 Packet of any flavor Carnation Instant Breakfast
And any other things that you might like to add like fruit candy bars or other stuff.
1 instant breakfast packet, any flavor
3/4 c. whole milk
1/4 c. heavy whipping cream
1/2 c. ice cream, any flavor
1. Mix all ingredients in a blender until smooth.
1/2 c. whole milk
1/2 c. heavy whipping cream
1 1/4 c. strawberries (fresh or frozen)
3/4 c. lemon sherbet
2 tbsp. dry skim milk powder
Combine all ingredients in a blender.
Blend until smooth.
Go to recipes for cystic fibrosis for more weight gain ideas
Good luck! Hope this helps! =) (+ info
What gene causes lupus erythematosus and what protein is involved?
Researchers have identified more than six genes that MAY be involved. Go to www.lupus.org and read the blogs. You will find the very newest information there. (+ info
We do not evaluate or guarantee the accuracy of any content in this site. Click here for the full disclaimer.