FAQ - Lymphohistiocytosis, Hemophagocytic
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How rare is the disease: Hemophagocytic lymphohistiocytosis?

This is a pretty serious question so please don't try fishing for points as I will report you and have your question deleted.
I have a close friend who has just been diagnosed and I cannot find any info on the web which is "easy to digest" AND informative.

The only thing I could find is "a crude annual incidence of 1.2 cases of familial hemophagocytic lymphohistiocytosis per million children has been reported in Sweden" at http://www.cdc.gov/ncidod/eid/vol6no6/fisman.htm
It is rare, no controlled clinical trials of therapy have been performed. How rare, I don't know precisely other than the study I cited.  (+ info)

Anyone ever heard of Hemophagocytic lymphohistiocytosis?

my step dad is suffering from this very rare disease. just wondered if anyone else knows anyone thats had this

I have now...

http://www.cdc.gov/ncidod/eid/vol6no6/fisman.htm  (+ info)

What color is the awareness ribbon for Hemophagocytic lymphohistiocytosis (HLH)?

"It is a rare disorder of the immune system that primarily affects young infants and children. Although physicians have written about the disorder over the years, it has been only in the last few years that it has received more widespread attention."
Also, it is for a baby. So it would be considered childhood cancer as well. Correct?



familial HLH to be specific

Dark blue is the awareness ribbon color for Histiocytosis . . HLH is one of several different types of histiocytosis. You can find more information at the Hitiocytosis Association of America website:

http://www.histio.org/site/c.kiKTL4PQLvF/b.1455363/k.6423/Histiocytosis_Association_of_America.htm  (+ info)

i am try to llok up for pathology of hemophagocytosis lymphohistiocytosis infection?

Please refer to the reference below.
Hemophagocytosis is when macrophage (a type of inflammatory cell) engulf red or white blood cells or platelets (components of blood).
Lymphohistiocytosis is the increased lymphocytes and histiocytes (types of chronic inflammatory cells).
Increased inflammatory cells can be due to immunologic condition or infection.
This Hemophagocytosis Lymphohistiocytosis (HLH) is usually related to Ebstein Barr Virus infection, or others such as cancer, genetics or autoimmune disease.
You just have to treat the underlying conditions, either the infection, malignancy or immunologic abnormalities.
The last reference is pretty good.
Good Luck  (+ info)

Does anyone have any comments on this data concerning stem cell research? Embryonic benefits = NONE.?

Benefits of Stem Cells to Human Patients
Adult Stem Cells v. Embryonic Stem Cells
Download This List
Peer-Reviewed References (not a complete listing, sample references)
Adult Stem CellsCancers:

Brain Cancer
Ovarian Cancer
Skin Cancer: Merkel Cell Carcinoma
Testicular Cancer
Tumors abdominal organs Lymphoma
Non-Hodgkin’s lymphoma
Hodgkin’s Lymphoma
Acute Lymphoblastic Leukemia
Acute Myelogenous Leukemia
Chronic Myelogenous Leukemia
Juvenile Myelomonocytic Leukemia
Chronic Myelomonocytic Leukemia
Cancer of the lymph nodes: Angioimmunoblastic Lymphadenopathy
Multiple Myeloma
Breast Cancer
Renal Cell Carcinoma
Various Solid Tumors
Soft Tissue Sarcoma
Ewing’s Sarcoma
Waldenstrom’s macroglobulinemia
Hemophagocytic lymphohistiocytosis
POEMS syndrome
Auto-Immune Diseases

Diabetes Type I (Juvenile)
Systemic Lupus
Sjogren’s Syndrome
Autoimmune Cytopenia

Are you trying to make a political statement?

I am very much against abortion. However, embryonic stem cell research is NOT abortion. Those embryos will NEVER become a human. They will be disposed of anyways.

Scientifically, embryonic stem cells are easier to work with in research than adult stem cells.

I am familar with many treatments with adult stem cells and, I am quite skeptical of most of your list. The true list oif approved treatments is very limited.

Stop the propaganda. Support the science!!!!  (+ info)


i was a normal healthy 19 year old girl. two years ago from today, i was in the hospital. i had mono, with hemophagocytic syndrome, which obviously led to many problems. i had ARDS, a mild staph infection, and i had some adrenal insufficiency. all due to the hemophagocytic syndrome. i was hospitalized for a month in the ICU. and i came out fine. no complications for two years now. well i did a follow up with my OB/GYN and my pap smear was abnormal but the tests came out neg. i had gotten normal periods after i got out of the hospital. no spotting in between periods, nothing that was "abnormal" to me. the last time i had my period was dec. 27th. and it was normal. i havent had a period since then. i had another pap done two weeks ago and its abnormal but tests are neg. i went in today for a pelvic ultrasound..they found no follicles on my ovaries. apparently my ovaries arent functioning.(no cysts) he also said there is an infection in my tube. but didnt gimme meds.
ive had no stds, or anything of that. been tested as far as i am concerned...all neg. he thinks it can possibly be from the stress of the illness i had. my periods were a little more lighter than usual. i just thought i was getting lucky!!! jk....but im a wreck. oooooh also ive been feeling really nauseous for the past few months now. since i havent had my period. i went for an endoscopy last week, im waiting on the results. but the doctor that did it apparently thinks is might be celiac disease. idk im 21 not 91, i just want to be normal and have kids. just someone gimme advice. i go to one of the top hospitals in chicago. and i think im going to get myself another opinion at another great hospital. just to be on the safe side.

*****also he found a cancerous lesion in my cervix. its nothing to be worried about right now, it just needs to be monitored....HELP!!!

I'm not a dr but I would like to help if I can because I have a number of gyn issues, some of them starting in my teens but not getting diagnosed til my 20s.

I would definitely suggest getting another opinion to rule out things like endometriosis and Polycystic Ovarian Syndrome (a hormone imbalance, to learn more check out: http://www.pcosupport.org).

As for the ultrasound, sometimes the results can be different one time from another depending on where in the cycle the woman is. This is why when a woman is going to get fertility treatments (just giving an example) they will do ultrasounds at certain times of her cycle to see what it's looking like when it comes to the follicles.

Also, as for the pap smear, I've had my paps show up infections of the cervix on two different occasions.

Also by getting a second opinion it helps you to not only cover all bases in order to make sure nothing is missed but also maybe give you additional ideas on treatment for the problems.

When you go to get that second opinion I recommend finding someone that is not sharing the same office as that of the dr you currently see.  (+ info)

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