FAQ - Mast-Cell Sarcoma
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why does my son has a high alp? he has gone operation removal of left kidney, clear cell sarcoma kidney?

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Clear Cell-Sarcoma Enquiry for my Mum...?

Hi Respected Sirs and Mdms, thnks for answering back all my questions without hestiation, thanks alot.

However, there is something i wish to ask about. My mum has being diagnosed with this cancer called clear cell sarcoma on the surface of the foot. The lump has already being removed. However, after the wounds have dried off and still waiting for the radiation therapy, my mum is having sleepless night because of the pain on the foot. The pain-killer she used to consume, has effect in the past, however, the pain-killer doesn't seems to work on her anymore.. Sometimes, the dried wound may seep out a bit of blood. May i know what is wrong?
Or is there any methods or medicines to introduce to me so as to help me mum with her sleepless night?.

To add on, my mum was also diagnosed with Lung cancer and Lymph node has started swollen...

She is becoming tolerant to the pain medication. She needs to call the doctor and let him know that the pain meds aren't working and they can up the dosage. Also; have her try the rx drug Ambien. It is a sleep aid that I've used for a long time to help me sleep (I have RSD).  (+ info)

spindle cell sarcoma...what exactly is this? please help, im v.worried?

hiya, im 25 years old and have been diagnosed with spindle cell sarcoma...im v.overwhelmed by the news and dont know what to do about it...im not v.close to my family and im not able to tell the about it, a few of my friends know but i feel so alone and constantly worry... i have a 19 month old son and i worry about everything...i need some support and help but i dont know where to get any information from...
id appreciate any help...

Spindle cell sarcoma
Spindle cell sarcomas are very similar to osteosarcomas but do not produce a bony substance called 'osteoid' (whereas osteosarcomas do). There are 4 types of spindle cell sarcoma: undifferentiated sarcoma of bone, malignant fibrous histiocytoma, fibrosarcoma and leiomyosarcoma. These really behave like adult versions of osteosarcoma and are treated in a similar way.
Undifferentiated sarcoma of bone means that the cells are not specialised. They are quite primitive and it isn't possible to tell what type of normal cells they originated from within the bones. When the cells are more specialised in spindle cell sarcoma, your specialist will classify it as histiocytoma, fibrosarcoma or leiomyosarcoma, according to the appearance of the cells under a microscope.  (+ info)

info about synovial cell sarcoma in a 14 yr old.?

ok.. i was told 2 weeks ago that i have synovial cell sarcoma. i am very frightened about this.. i would like to find ppl with the same disease. it says on my other questions that i have tears but they are all coming from this. i am 14 yrs old. ive been in the hospital for a week. but now i go ever once in a while. i go to Jo DiMaggio's children's hospital. please tell me if you have it and your experience with it. i know it is a very rare form of cancer. i have it in my knee. i am scared every day about this because a lot of people has died from this. please help very scared

thank you
my reward is choosing the best answer

First of all, I know you are finally getting some answers, but I am so sorry that it turned out to be cancer.

Synovial cell sarcoma can be very aggressive, I would hope by now that your cancer has been staged. In general, the prognosis is better for those who develop this type of cancer in the knee versus in the head or neck region, as this is most aggressive type. Hopefully, yours was caught early enough that complete surgical excision will be possible, Just be aware, that synovial cell sarcomas in the knee are more likely to result in amputation than any other site due to the nerves and blood supply located in the popliteal fossa.

I came across the Stories of Hope on the Children's cancer foundation page. Please read Tori's story, she was diagnosed with stage IV synovial cell sarcoma (stage four means that the tumor has metastasized, in her case to the lungs)


Here is another more extensive link about Tori, that includes contact information:

Here is a list of five teenagers with the same cancer, you will need to become a member to view the pages (it's free) and you can also create your own page


I would also encourage you to check out the Sarcoma Alliance, they have a program to match up patients with other patients or survivors so they can share stories and lend support to each other

http://www.sarcomafoundation.com/Main.html  (+ info)

Lung cancer and foot clear cell sarcoma...?

Hi all, i seriously need help... my mum had a foot lump which the doctor call it clear cell sarcoma, being removed 2 about 2 2 to 3 months ago. She was also discovered with lung cancer 2 years ago. However, nowadays my mum have lymph node growing about 5 to 6 of them on her body. One of them was remove to do some experiment and to know whether it is from the lungs or from her foot. Result was from her lungs. These few days my mum has also started becoming restless and tired and having whole bodyache... Please everyone... my mum is is just 55 years old... And she have not even yet to put on the graduation hat for me... And i have yet to earn money to bring her for an overseas trip.. What i seriously wanted to know is... all this restless and tireness she having.. how long more can she live and what stage she is now.. Please help me... please.......
she recently also have some gastric problems despite feeling hungry.. please guys.. help me....
to add-on from my mum's desicion, she refused chemo because she knew she won't get to cure it and because of her weak body... so please guys.. what i wanted to know is how long more can she lived on.. and what is her stage of cancer... She nvr being on a honeymoon or took a plane.. please.. my heart really hurts.. i dunno what a stupid child like me can do...
Doctor actually prescibe this medicine called "Gefitinib" may i know will it be effective towards the spreading of her lungs?. Please help me...
please help me.. plss

Gefitinib is inhibitor of epidermal growth factor receptor's (EGFR) which are often found in non-small cell carcinomas. You are not giving enough information to know what stage her cancer is, but Gefitinib is only recommended in stage 3-4 lung cancers in patients that had already underwent chemo. I’m not sure what you mean by “spreading of her lungs.”  (+ info)

What do I wear to a Sarcoma Foundation fundraiser Orchestra Holiday Concert?

My best friend has Osteosarcoma, and tonight her orchestra is putting on a concert to raise money for the Sarcoma Foundation of America, because that was my friend's Christmas wish. What should I wear tonight? I know the orchestra is wearing dressed for girls, and slacks/nice shirts for guys. I am selling raffle tickets, what should I be wearing? So far I've been thinking nice black pants, black ballet flats, and a nice red sweater. What do you think?

I think your suggested outfit sounds very appropriate - you don't want to outshine the performers.

The ribbon for sarcoma is yellow, so if you have one to wear it will show up well on the red.  (+ info)

How much time would i need off after having a Soft Skin Sarcoma removed?

Im due to have a Soft Skin Sarcoma removed and want to know how much time at a minimum i will need off work?

As the other lady said, it depends on location, how deep it is, how large it is, how hard it is to remove, etc. The best way to find out is to ask your doctor how long he/she thinks you'll need to take off. If it's superficial and easy to get to, not very large, then you may be able to go back to work after a day at home; if you are having a general anesthetic, you can't drive for 24 hours. Or you may be able to do back to work the next day, depending on the time of day your surgery is done.
If, on the other hand, it is in a painful location, and is deep, then a couple days off may be in order.
Part of it depends on how much pain you are having and if you need to take pain killers, which would influence your ability to drive, make judgments, and other important things.
Bottom line; ask your doctor. Your doctor know where it is, how large it is, how long surgery will take, how painful it might be and whether or not you need general anesthesia or can get away with something lighter. Your discharge paperwork will tell you what the doc thinks you need to do(but that won't help you plan ahead)  (+ info)

May I have E-Mail address of "quijibored" for getting more information about :Spindle cell sarcoma?

I want give more info about my case e.g. "place or size of my tumor" .

Do you mean this quijibored?


If so then he has not made himself contactable via email.

What you could do is first update your profile so that you can be contacted by email by other users (other users will not be given your email address but they will then have the facility to contact you via Answers) Then add a comment to the question you originally asked, that quijibored answered, asking that quijibored contact you. Then hope that he notices your comment.  (+ info)

Anyone know much about synovial sarcoma and whether it is a serious cancer?

what are the chance of a sarcoma coming back because i have been given the all clear after bieng diognosed over a year ago with synovial sarcoma to the neck.... grade 2.

What is synovial sarcoma?
Synovial sarcoma is a type of soft tissue sarcoma. Soft tissue sarcomas are cancers of the muscle, fat, fibrous tissue, blood vessels, or other supporting tissue of the body, including synovial tissue. Synovial tissue lines the cavities of joints, such as the knee or elbow, tendons (tissues that connect muscle to bone), and bursae (fluid-filled, cushioning sacs in the spaces between tendons, ligaments, and bones). Although synovial sarcoma does not have a clearly defined cause, genetic factors are believed to influence the development of this disease.

How often does synovial sarcoma occur?
Synovial sarcoma is rare. It accounts for between 5 and 10 percent of the approximately 10,000 new soft tissue sarcomas reported each year (1). Synovial sarcoma occurs mostly in young adults, with a median age of 26.5 (1). Approximately 30 percent of patients with synovial sarcoma are younger than 20. This disease occurs more often in men than in women (1).

Where does synovial sarcoma develop?
About 50 percent of synovial sarcomas develop in the legs, especially the knees. The second most common location is the arms (2). Less frequently, the disease develops in the trunk, head and neck region, or the abdomen (1, 2). It is common for synovial cancer to recur (come back), usually within the first two years after treatment. Half of the cases of synovial sarcoma metastasize (spread to other areas of the body) to the lungs, lymph nodes, or bone marrow (1).

What are the symptoms of synovial sarcoma?
Synovial sarcoma is a slow-growing tumor. Because it grows slowly, a person may not have or notice symptoms for some time, resulting in a delay in diagnosis. The most common symptoms of synovial sarcoma are swelling or a mass that may be tender or painful (1). The tumor may limit range of motion or press against nerves and cause numbness. The symptoms of synovial sarcoma can be mistaken for those of inflammation of the joints, the bursae, or synovial tissue. These noncancerous conditions are called arthritis, bursitis, and synovitis, respectively.

How is synovial sarcoma diagnosed?
The doctor may use the following procedures and tests to diagnose synovial sarcoma:

Biopsy: Tissue is removed for examination under a microscope.

Immunohistochemical analysis: Tumor tissue is tested for certain antigen and antibody interactions common to synovial sarcoma.

Ultrastructural findings: The tissue is examined using an ultramicroscope and electron microscope.

Genetic testing: Tissue is tested for a specific chromosome abnormality common to synovial sarcoma.

How is synovial sarcoma treated?
The type of treatment depends on the age of the patient, the location of the tumor, its size, its grade (how abnormal the cancer cells look under a microscope and how likely the tumor will quickly grow and spread), and the extent of the disease. The most common treatment is surgery to remove the entire tumor with negative margins (no cancer cells are found at the edge or border of the tissue removed during surgery). If the first surgery does not obtain negative tissue margins, a second surgery may be needed.

The patient may also receive radiation therapy before or after surgery to control the tumor or decrease the chance of recurrence (cancer coming back). The use of intraoperative radiation therapy (radiation aimed directly at the tumor during surgery) and brachytherapy (radioactive material sealed in needles, wires, seeds, or catheters, and placed directly into or near a tumor) are under study.

Patients may also receive chemotherapy alone or in combination with radiation therapy  (+ info)

Is there a genetic test that shows who is more at risk for osteogenic sarcoma?

My daughters brother died from Osteogenic Sarcoma. Is there any genetic testing that can be done to determine whether she is more at risk for it?

Thank you.

There are some indications that osteosarcoma (osteogenic sarcoma) in some cases is hereditary as there are reports in the literature of siblings having this type of cancer. There also appears to be some type of connection with some subtypes of osteosarcoma with Li-Fraumeni.


you can check with her brothers pediatric oncologist to see if there is any genetic test, but I don't think that there is one . . but because her brother has the disease, she probably has a higher risk for the disease than someone who does not have a sibling with the disease.

http://www.ncbi.nlm.nih.gov/pubmed/11003561  (+ info)

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